Surely I Don't Have This...

Crohn's Disease Forum

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Jun 19, 2012
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So, this is a long story, but I'll try to keep it short.

I am 22 and up until an emergency appendectomy in October 2010, I was a perfectly healthy and normal young adult. After the appendectomy, I contracted MRSA, which took 6 months to clear up (after having three separate lesions). But that was the least of my problems.

For the past year and a half, I have had a fever every day (generally low grade, but with definite spikes). I have had terrible fatigue. I cannot seem to fight infections and have had bronchitis around ten times, pneumonia twice (once before and then once after getting the vaccination), pertussis once (bad enough to break two ribs and this was a year after getting the vaccination for this), chronic acute mono, the flu twice, and just feeling sick and tired in between. I now have random, massive bruises all over my body. I also gained 20-25 pounds in three months and it previously took a miracle for me to gain even a single pound.

I have bounced around from specialist to specialist trying to figure out what is wrong with me. The thyroid levels were normal a few months ago, so they've ruled that out. I have a low subclass of IgG (subclass 4), but all of my other antibodies were in the normal range (low, but still normal) and my chest CT scan showed nothing.

As you've read this, I'm sure you've noticed that not once have I mentioned any sort of intestinal issues. I've not had a single one! But, today my doctor called and said I had an elevated antibody level that was indicative of Crohn's Disease and now she's sending me to a GI specialist. In all the research I've done, I can't find anything that says that you can have Crohn's Disease without GI symptoms of any sort and all sorts of immune problems.

If anyone out there has had the same situation or has any answer or advice that could lead me in the right direction, I will be forever grateful. I am lost and so beyond frustrated by all this.

Thanks in advance for anything anyone can offer.
 
Hello JJones! :)

I am sorry your body has been literally going crazy on you!

It is possible to have Crohn's with NO GI symptoms. I have actually met about 5 people with asymptomatic Crohn's Disease. One of my close friends only had severe anemia as a symptom. When they did a pillcam it was discovered she had Crohn's Disease. Another friend of mine only has joint aches as a symptom of his Crohn's.

Unfortunately, if you have Crohn's, it will be hard to manage your condition from a 'symptom' stand point. The positive is, you will have an answer to your problems & can get treatment! All of the above mentioned people are currently in remission & are feeling great! :dance:

Hang in there & bear with the doctors! You could not have Crohn's but it is best to find out sooner rather than later!

Take care!
 
Hi JJones and welcome.

I do know that inflammation can be present without symptoms until damage and complications occur.

I hope you get answers. Sending you my support.
 
Hello and welcome to the forum
Firstly, some of the symptoms you describe are possible symptoms of crohns, it's common for people with crohns to experience fatigue, have trouble with catching colds and the flu, difficulties with bruising caused by anemia etc.

Although it isn't that common for people to have no gi symptoms at all, it is not unheard of. The intestines don't actually have that many pain receptors, so it is possible for damage to occur without it causing pain. It can actually take quite a lot of damage before significant pain can be felt. Other symptoms such as diarrhea, passing blood or vomiting are dependent on many factors including the location of the disease.

I know it can be difficult to come to terms with something so out of the blue. Remember that you aren't diagnosed for sure yet but if you do discover that crohns is the cause of your problems there is plenty of advice and support here for you should you need us.
 

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