Swelling in my feet and legs due to low protein levels

[countrycoffeehouse]

Hey I just wanted to update those who knew how sick I was. I started to have lots of swelling in my feet and legs which was due to very low protein levels. A friend forced me to the ER where I was admitted into the hospital for a week. My labs were awful with very low iron, protein, potassium and a super low red blood cell count. I was not eating and barely drinking. Ciparo and Flagell via IV and a Banana bag of vitamins. Humira shots, and Metheltrexate shots. Endocort was also given. 6 days later I was able to eat some salmon and rice and felt lots better. Went home on antibiotics and endocort. Endocort does not agree with me and my legs and ankles swelled to logs! I had developed a toxcitity to it and had to stop taking it. Pain has increased without the drug though.. but my legs are normal again.. I applied for the drug Cimizia and hope they give e the grant for free meds.
I am still super weak and I am still skinny.. but I have a bit more energy and less trips to the bathroom. I was so sick when I got to the ER that they almost sent me to ICU but I begged them not to due to no insurance.. ICU is way expensive.. Have not got a bill yet.. they might write some of it off for me..

thanks so much for all you help and understanding. This site is about the only group of people who get this disease..
Thanks
Daniele

 

[Rebecca85]

So glad to hear from you, we wondered where you'd gone! Let's hope you get the cimzia. Get lots of rest and build your strength back up.

 

[Dras]

I was worried sick about you, glad to see you went and got some help. I agree with getting lots of rest.

Don't stress about the bills just yet. Usually hospitals are open to payment plans, etc.

xx good luck

 

[Sailorluna]

I am happy to hear you went in. Glad your legs are normal again. Esp when you are already weak the extra weight on your legs makes it so hard to get around. Hope you can get the meds you need going forward.

 

[Jennifer]

Good luck! I know my boyfriend went to the ER with no insurance and they wrote off quite a large sum due to having no insurance so don't worry about the bills. Hope you get the meds you need and soon.

 

[Hope]

Sorry to hear! I suggest your buy a juicer and start juicing some fruits and veggies....it will bring you back to life....it worked for me! I love it!

I am so greatful I live in Canada where we dont have go worry about those bills!! Good luck hun! Take care!

 

[Manzyb]

There you are!! I am glad we got to hear from you, we were worried!!

Hopefully you will be able to get the cimzia. Did they give you prednisone at least since you cannot take the Entocort?? I hope so.

I hope you get to feeling better! We're all rootin' for ya!

 

[countrycoffeehouse]

Thanks guys.
No I will not take prednisone so they didn't even ask me.. its in my chart in bold letters. Im shocked at how bad I let myself get before going in.. dumb choice. My head thinks.. yeah I can do all the old stuff I did.. then my body says nope.. and I am on the couch.. exhausted.. but where I am today is 10 times better then where I was.. I hope that the meds come through.. otherwise once this Humira wears off I will be back in a hyper flare again.. not so sure about metheltrexate if it will work but we will see.. its cheap though

 

[Christy]

Very glad you got help & I'll keep my fingers crossed about the meds!!

 

[Mountaingem]

So glad to hear from you-I've been wondering how things turned out. Well, now you've got some answers and meds the healing will start!