Hey! So I'll just start out by telling you a bit about myself. I am a teen starting High School this year. I love to read, write and draw. I am actually a published author. I have always just wanted to be a normal kid, but with all my medical problems, that doesn't seem like its ever going to happen.
My entire life I've had medical problems, but this year I was diagnosed with Lymphocytic colitis. I am in extreme pain every day. I missed four months of school this past year, forcing me to repeat that grade.
I have tried every medicine possible. I am an almost 100% vegan diet, as well as a no-gluten diet. I have come to the point where going to the doctors is pretty pointless because all they tell me is to keep waiting to see if my medication eventually works. Honestly, I'm tired of waiting.
From what I can tell, teens don't usually have lymphocytic colitis, and if they do its usually not that severe. (Am I wrong?) I honestly really hate being the "odd case", the person that has all of the medical problems that the doctors can never figure out. (I also have severe asthma, celiac disease, bursitis and major panic attacks). I am so tired of being sick constantly. Does anyone else know the feeling?
Symptoms: extreme stabbing pain in stomach that stops me from doing anything but lay down, constant nausea making me eat barely anything, constant dizziness, massive headaches at night
(none of the above are taken away by medicine)
How have you learned to handle the pain? Is there any pain medication that seems to work on you? What is a good way to distract yourself from the pain? Are there any activities that are easy to do when in pain? How do you continue participating in school while in pain? Is there such thing as a doctor specifically for lymphocytic colitis? (I have gone to about 4 different GI doctors in the past couple months and they've all been pretty useless.)
I have so many questions and it seems like no one has the answers.
Anyways, I feel all of your pain. Its so hard, but we just need to stay strong.
My entire life I've had medical problems, but this year I was diagnosed with Lymphocytic colitis. I am in extreme pain every day. I missed four months of school this past year, forcing me to repeat that grade.
I have tried every medicine possible. I am an almost 100% vegan diet, as well as a no-gluten diet. I have come to the point where going to the doctors is pretty pointless because all they tell me is to keep waiting to see if my medication eventually works. Honestly, I'm tired of waiting.
From what I can tell, teens don't usually have lymphocytic colitis, and if they do its usually not that severe. (Am I wrong?) I honestly really hate being the "odd case", the person that has all of the medical problems that the doctors can never figure out. (I also have severe asthma, celiac disease, bursitis and major panic attacks). I am so tired of being sick constantly. Does anyone else know the feeling?
Symptoms: extreme stabbing pain in stomach that stops me from doing anything but lay down, constant nausea making me eat barely anything, constant dizziness, massive headaches at night
(none of the above are taken away by medicine)
How have you learned to handle the pain? Is there any pain medication that seems to work on you? What is a good way to distract yourself from the pain? Are there any activities that are easy to do when in pain? How do you continue participating in school while in pain? Is there such thing as a doctor specifically for lymphocytic colitis? (I have gone to about 4 different GI doctors in the past couple months and they've all been pretty useless.)
I have so many questions and it seems like no one has the answers.
Anyways, I feel all of your pain. Its so hard, but we just need to stay strong.