The 500+ hours Crohns stole from me...

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
Jan 8, 2008
Messages
4,321
the 500+ hours Crohns stole from me...

While recently in the midst of one of my bouts in the bathroom I was wondering to myself in anger how much time I've spent due to abnormal bathroom habits, in the bathroom/cleaning up from the bathroom since diagnosis 18 months ago. Well, I averaged it to be closest to an hour/day to be fair, since during remission for 4.5 months I went only once a day on average (maybe 8 minutes) and some days as many as 18 or 20 times (maybe 10 minutes a piece) in the last two winters...making up to 3 hours/day on the pot for months at a time...all in all I figure it's gotta be a minimum of 1 hour a day average over those 18 months....thus calculating out to nearly 550 days, an hour a piece....makes well over 500 hours on the toilet...and that's generous, it's probably much more....and that's above and beyond all the treatment and time spent due to the disease elsewhere (like the 30 minutes per night I spent awake for 3 or 4 months total for enemas so they'd stay in on my left side).

Do you realize what I could have accomplished with 500 hours of free time in the last 18 months? Thank you Crohns demon, thank you for leeching my life away in the most inconvenient times especially, like during Christmas morning, during a movies I paid $7 to see-TWICE in one film, during restaurant outings with friends, during thanksgiving diner, during gatherings with my gf's family, during car rides where I'm NOT the one driving, during my sleep-sometimes 6 times a night, during work when I'm on the phone with a client, during a team meeting at work when my boss is going over new program updates, while spending quality time with my gf, and while visiting the Crohns forum itself....

Thanks a bunch, Crohns, you're just a bunch of shit aren't you.

Anyone else feel robbed of life?


(okay, my self pity has lapsed, you can stop shaking your heads)
 
Last edited:
500 hours is almost 3 weeks...

I have only been diagnosed for just under three months, and my symptoms started only a few months before that -- but I've gotten used to spending all of my 15-minute breaks from work in the bathroom (if not for the entire break, at least for most of it). I've also gotten used to being a few minutes late for work on a somewhat regular basis, because just as I was walking out the door, I suddenly had to sit down for a while. (This just needs better planning.) On the plus side, I've also learned where the "good" and "bad" bathrooms are in different buildings, which I suppose is a good thing for the adventurous part of my personality!

I'm fortunate in that Crohn's hasn't sent me running as much as it has for others, but what bothers me is that when it *does* send me running, then I get to the bathroom and nothing comes out... how much time wasted for nothing even to happen!
 
Last edited:
aw benson, yes i know how you feel and its not self pity, as such. its just every so often, its natural to reflect on the effects the crohns monster has had on us.. and wonder "what if.."

i think anyone who's got an ongoing condition feels this way - i know i certainly do, but i try not to let myself think too far down that road.


hi & welcome sibelius :) i was nodding at your description of knowing all the local toilets - i think crohnies could rival the tourist information department when it comes to loo info!
 
Yeah, I don't see it as self pity... More like howling at a rainstorm. Practically, it can't abate the rain... but it does make one feel better, doesn't it. That alone is the only rationale I need for my occasional howls... One thing that might help... Laptop with wireless connection... You may as well do something while sitting there accomplishing nothing... just be sure the web cam is completely off (video N audio)
 
dingbat said:
hi & welcome sibelius :) i was nodding at your description of knowing all the local toilets - i think crohnies could rival the tourist information department when it comes to loo info!

Hi! Yeah, I've sometimes fantasized about being a tour guide somewhere, and someone asking the question: "Tell us something really unusual that most tour guides wouldn't tell us!" and then responding, "Well, here at the _________ we have all different kinds of toilets. This one over here is very low with a bowl-shaped seat, and that one over there is very high with a flat seat...." :D
 
Benson, I dont think you will find us shaking our heads at "self pity" we will all be nodding our heads because we understand and know the frustration you feel at lost time and the strain of trying to explain or not the absences in all the different situations and the exhaustion from it all too!

I sat last week in my GP's and the tears streamed down my face and felt I made such a prat of myself! All he was concerned about was what the cause was and trying to sort it out to my relief. He understands and it does make a difference but you guys here are the ones that truly understand. So know you arent alone on that front Benson ok?

Feel free to have a good yell any day not one of us will mind believe me!
 
I shouldn't thank anyone for also having the same disease as me, but I should thank those blessed with it for finding this forum who support each other (and I guess Mikeyarmo for starting it).....eh, Easter wasn't as bad as the winter holidays at least...
 
In the terminology of the old jungle book film - thats what friends are for!

I think each and every one of us is glad we found the site. Its very different to any others I have been on in the past in that everyone has an input and their thoughts are respected even if not agreed with. So that and the support generated for each other is what makes it the place to come and talk things through on a good day or otherwise eh?

Hang in there. ((hugs))
 

Latest posts

Back
Top