- Joined
- Jan 10, 2012
- Messages
- 16
the worst few months of my life!!
At the beginig of october last year i woke with pain in my stomach which slowly got worse then the vomitting started i was told by my doctor it was a bug that was going round, it lasted a week n then i was back to normal so accepted that it was a bug.
Two weeks later the pains started again followed by the vomitting at this point i couldnt even keep water down so i went to the A&E department who said yet again it was a bug and sent me home. over the following two weeks the pain and vomiting got worse, i had various trips to my doctors and A&E department but noone would listen.
At this point i became distressed that noone was helping. yet again i went to A&E i saw a lovely nurse who realised something was'nt right and was finally admitted into hospital.
Two days of nil by mouth and various tests discovered i had a gal stone and a abnormality on my bowel, i was then sent home with nothing, no help and no medication. I then spent the following 2 months in and out of hospital as i was unable to eat and drink due to the massive pain and vomitting but atleast someone was finally listening i was finally diognoised with crohns and sent home to meet with a specialist with a massive amount of steriods and antibiotics.
I met with the specialist on wed 30th december who really didnt do or say much, late that night the pain got really bad so yet again i ended up back in hospital i dnt really remember much of what happend on thur and fri they kept giving me morphine for the pain. I was told on the sat that i needed surgery to remove a small part of my bowel by keyhole this was going to be done on monday 5th.
Monday came all my medication was stopped and i was prepped for surgery unfortunatly my surgery was cancelled at the last min. that evening was the worst of my life the pain was horiffic i has never felt anything like it i had a panic attack and was no longer able to sit up i dnt really remember much after that, i woke up in recovery my bowel had perferated i spent the next 4 days unable to move i was pumped with that much medication on the fri i was taken off all my medication and left to suffer in aggony. I had a massive dressing across the whole of my stomach which was never changed everytime i asked a question they were "to busy" to answer. I was sent home the following tue a week after my surgery with no information and yet again no help.
I had my staples removed by a nurse at my doctors surgery a week later to my suprised i had a massive incision down the centre of my stomach which noone had told me about yet again. once these we removed parts of my wound opened up and puss and blood came pouring out i had a massive infection. i was put on 3 diferent types of antibiotics and ive spent the last few weeks getting my dressings changed daily by a nurse my wound opened so far they started talking about more surgery to remove the infection which i refused my wound is finally starting to heal.
I still have no interest in food and have lost over 3 stone in weight and im still in a lot of pain, the thought of going anywhere scares me i darent leave the house. Im just glad i have an amazing boyfriend to help me get through all this. Im now waiting again to see the specialist.
My family have a long history with crohns but i am the first to need surgery.
Well i had my MRI results good news no fistula, but bad news is the crohn's has spread i have a few sites that are "enlarged" but i have been warned of a really bad bit, i have also been told its in my mouth which explains a lot. My appointment with the specialist has been brought forward to this week so i can get started on medication ASAP.
At the beginig of october last year i woke with pain in my stomach which slowly got worse then the vomitting started i was told by my doctor it was a bug that was going round, it lasted a week n then i was back to normal so accepted that it was a bug.
Two weeks later the pains started again followed by the vomitting at this point i couldnt even keep water down so i went to the A&E department who said yet again it was a bug and sent me home. over the following two weeks the pain and vomiting got worse, i had various trips to my doctors and A&E department but noone would listen.
At this point i became distressed that noone was helping. yet again i went to A&E i saw a lovely nurse who realised something was'nt right and was finally admitted into hospital.
Two days of nil by mouth and various tests discovered i had a gal stone and a abnormality on my bowel, i was then sent home with nothing, no help and no medication. I then spent the following 2 months in and out of hospital as i was unable to eat and drink due to the massive pain and vomitting but atleast someone was finally listening i was finally diognoised with crohns and sent home to meet with a specialist with a massive amount of steriods and antibiotics.
I met with the specialist on wed 30th december who really didnt do or say much, late that night the pain got really bad so yet again i ended up back in hospital i dnt really remember much of what happend on thur and fri they kept giving me morphine for the pain. I was told on the sat that i needed surgery to remove a small part of my bowel by keyhole this was going to be done on monday 5th.
Monday came all my medication was stopped and i was prepped for surgery unfortunatly my surgery was cancelled at the last min. that evening was the worst of my life the pain was horiffic i has never felt anything like it i had a panic attack and was no longer able to sit up i dnt really remember much after that, i woke up in recovery my bowel had perferated i spent the next 4 days unable to move i was pumped with that much medication on the fri i was taken off all my medication and left to suffer in aggony. I had a massive dressing across the whole of my stomach which was never changed everytime i asked a question they were "to busy" to answer. I was sent home the following tue a week after my surgery with no information and yet again no help.
I had my staples removed by a nurse at my doctors surgery a week later to my suprised i had a massive incision down the centre of my stomach which noone had told me about yet again. once these we removed parts of my wound opened up and puss and blood came pouring out i had a massive infection. i was put on 3 diferent types of antibiotics and ive spent the last few weeks getting my dressings changed daily by a nurse my wound opened so far they started talking about more surgery to remove the infection which i refused my wound is finally starting to heal.
I still have no interest in food and have lost over 3 stone in weight and im still in a lot of pain, the thought of going anywhere scares me i darent leave the house. Im just glad i have an amazing boyfriend to help me get through all this. Im now waiting again to see the specialist.
My family have a long history with crohns but i am the first to need surgery.
Well i had my MRI results good news no fistula, but bad news is the crohn's has spread i have a few sites that are "enlarged" but i have been warned of a really bad bit, i have also been told its in my mouth which explains a lot. My appointment with the specialist has been brought forward to this week so i can get started on medication ASAP.
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