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Crohn's Disease Forum

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Joined
Mar 12, 2013
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6
Hey all !

My name is Shalisha, I'm 19 years old. I was diagnosed in Trinidad and Tobago with Crohns Disease in 2011. My last year of high school. :( Missed my prom. Lost my friends.
I moved to New york later that year to live with my dad and for better medical care also.

This is the first time sharing my story with people that really do understand :) I'm happy to be here.

I was a active student in school, into sports like volley ball and basketball. The one they considered the class clown ! lol but i had good grades, just was that person that kept the class alive! I was also a big eater lol known for sneaking snacks during class and devouring big meals, yet I remained thin and tall. I was 5'9 and 120lbs. In 2010 it started. I would buy food and suddenly be full, have no appetite or have pains when i ate... but i didnt pay any attention. I just thought my metabolism rate was slowing down. I started to get thinner and thinner... then always sleepy no matter how much slept i got, i was tired all the time. Can't stay awake in classes... I started avoided friends and a anti -social behavior came over me. Everything I ate caused pain. I went on like that for months living on drinking tea, water and little bites of food now and then till i was 95lbs. People at school and home did notice something was wrong but you know how people judge. They simply assumed i was doing it to myself, that i was "anorexic" i didnt want to eat and get well at all. they didnt understand the pain and cramps that came with every bite of food i took. :mad2:
Anyway, my mother really started to get scared at the way I looked so finally she took me to the doctor. After weeks and weeks of tests, xrays, and scopes, she was horrified to hear that i really did have a problem.
I know it hurts her that she didnt pay better attention and at least they diagnosed me in time. I didnt have much time left. Since then I been put on drugs like prednizone, Imuran, 6mp and antibiotics.
I moved to the US to live with my dad and to get better care. I've been hospitalized with 3 flare ups since ive been here. My last flare was March 5th.
I'm 6ft now and 96lbs. I was 80lbs just a few months ago so progress is being made.
I'm thankful for finding this forum...I have so much to share, so much to learn.

When i researched what crohns was...I felt like my life was over.... ME?? WHY ME?? a food fanatic ! the one who one day wanted to be a chef.. travel the world and try every cuisine! Be like Andrew Zimmern from Bizzare Foods or Anthony Bourdain from No Reservations. I felt like i couldnt go on... I felt alone, Depression hit me. All i could do is lay in bed all day... i forgot how to talk to people. I became afraid of food. Paranoid about everything... It changed me.. and i want the old me back! I want to be happy again.. So from today im gonna fight for it. I feel like i have hope now that i have joined.

I'm happy now :) No longer alone.
 
:hug: Welcome to the forum, Shally! I'm glad you've found us and I hope we can help you get through this!

Does your doctor have any plans to change your treatment since you keep flaring? Hopefully you can get things under control soon and go back to your food-loving ways!

:hug: We're here for you any time you need us!
 
Welcome Shally
You will have lots of support and new friends on this forum.
Like many of us here you have had a big shock at the diagnosis and suffered a lot because of it.
It looks as if you are coming up from down, well done.
With such a good attitude you will make good headway.
Keep up the good work and
Feel better soon.
Hugs and best wishes
Trysha
 
Welcome to the club Shally. It's a real crappy club but it has some amazing and supportive members to help you through :hug:

Sorry to hear about your situation and that you just had an even more recent flare. What are your current meds/plan of treatment?

Where exactly is your crohn's located and what sorts of symptoms do you experience on any given day?

Hope you start to see some progress soon. While you wait, you have us to share, vent and laugh with :)
 
Welcome, Shally! Sorry to hear you've had such a rough time lately. I was always the class clown too, if 30 seconds went by without a smile on my face or people hearing my laugh, they were asking "What's wrong?" lol! I'm still like that, pretty much, just at work now instead of school, and with my kids, lol!
My Crohn's was pretty much constant for the first 10 years of diagnosis it seems like. So I know what the down times feel like. But I would gather a handful of great friends to make me laugh, and they always got me to the other side of it. The world wasn't online then, if I'd had this place then, wow! You have a great attitude, I know you are going to rise above it! :)
 
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SHALLY ... I am sure that you will find lots of support here and I am so sorry that you missed out on your prom !!
 
Welcome to the club Shally. It's a real crappy club but it has some amazing and supportive members to help you through :hug:

Sorry to hear about your situation and that you just had an even more recent flare. What are your current meds/plan of treatment?

Where exactly is your crohn's located and what sorts of symptoms do you experience on any given day?

Hope you start to see some progress soon. While you wait, you have us to share, vent and laugh with :)



Currently I'm taking Prednisone and 6mp, my doctors are thinking about trying a new medication on my next visit.
my last CT scan showed dialation of essentially my entire small bowel and terminal ileum.
My only real struggle is eating, and getting over anxiety at times. Sometimes gas builds up out of nowhere and causes bloating even if im trying to eat. Low energy some days but things use to be worst, I say im really improving.
 
:hug: :hug: :hug:

Be careful with the Predisone ... It can be nasty stuff my hubby was on it and well I just want to say HE WAS A BEAR !!!! So, be sure to share updates and keep us posted and I will be here for you !!!

:hug: :hug: :hug:
 
I am so glad you found this forum too. We all support each other,
My daughter was also having symptoms that were misdiagnosed that I should have noticed, so i know how your mother feels. Im sure she never thought it was Crohns.

I hope they get you going on the right meds too. I have heard many say they get feeling better with the SCD diet. We are going to try that with our daughter too.
It is important they get your flare under control soon

Also, are they making sure you are getting all the vitamins and nutrients you need?
 
Hi Shally! Welcome to the forum. It's nice to meet you but I'm sorry for the circumstances. I'm glad you were finally diagnosed--at least it didn't stunt your growth! Six feet! Wow. I'm 5'5" and have never weighed under 100 lbs! I'm glad to hear you're gaining some weight back. Weight gaining Ensure is really helpful if you're not already drinking it.
 
Hey all !

My name is Shalisha, I'm 19 years old. I was diagnosed in Trinidad and Tobago with Crohns Disease in 2011. My last year of high school. :( Missed my prom. Lost my friends.
I moved to New york later that year to live with my dad and for better medical care also.

This is the first time sharing my story with people that really do understand :) I'm happy to be here.

I was a active student in school, into sports like volley ball and basketball. The one they considered the class clown ! lol but i had good grades, just was that person that kept the class alive! I was also a big eater lol known for sneaking snacks during class and devouring big meals, yet I remained thin and tall. I was 5'9 and 120lbs. In 2010 it started. I would buy food and suddenly be full, have no appetite or have pains when i ate... but i didnt pay any attention. I just thought my metabolism rate was slowing down. I started to get thinner and thinner... then always sleepy no matter how much slept i got, i was tired all the time. Can't stay awake in classes... I started avoided friends and a anti -social behavior came over me. Everything I ate caused pain. I went on like that for months living on drinking tea, water and little bites of food now and then till i was 95lbs. People at school and home did notice something was wrong but you know how people judge. They simply assumed i was doing it to myself, that i was "anorexic" i didnt want to eat and get well at all. they didnt understand the pain and cramps that came with every bite of food i took. :mad2:
Anyway, my mother really started to get scared at the way I looked so finally she took me to the doctor. After weeks and weeks of tests, xrays, and scopes, she was horrified to hear that i really did have a problem.
I know it hurts her that she didnt pay better attention and at least they diagnosed me in time. I didnt have much time left. Since then I been put on drugs like prednizone, Imuran, 6mp and antibiotics.
I moved to the US to live with my dad and to get better care. I've been hospitalized with 3 flare ups since ive been here. My last flare was March 5th.
I'm 6ft now and 96lbs. I was 80lbs just a few months ago so progress is being made.
I'm thankful for finding this forum...I have so much to share, so much to learn.

When i researched what crohns was...I felt like my life was over.... ME?? WHY ME?? a food fanatic ! the one who one day wanted to be a chef.. travel the world and try every cuisine! Be like Andrew Zimmern from Bizzare Foods or Anthony Bourdain from No Reservations. I felt like i couldnt go on... I felt alone, Depression hit me. All i could do is lay in bed all day... i forgot how to talk to people. I became afraid of food. Paranoid about everything... It changed me.. and i want the old me back! I want to be happy again.. So from today im gonna fight for it. I feel like i have hope now that i have joined.

I'm happy now :) No longer alone.

Welcome Shalisha! I am so sorry to hear of all you have gone through! You have had a hard time!

I was just diagnosed in Sept/12 and it was very overwhelming! I am lucky in one sense that my two stepbrothers also have Crohn's and we can support each other, but I have found these forums to be a sanity saver!

One of the hardest things to deal with I have found is the hits to one's dignity this disease keeps giving, LOL Abscess on the butt, sitz baths, carrying a donut around to sit on, driving samples around to labs, people poking and prodding your private areas....oh ya, and diaper cream at age 41! Good times!!

But it is best if you can find ways to laugh at this stuff, and talk freely among the people here who know what you are going through and don't judge you. And it sounds like that is just your personality :) I have had some really "down" days or weeks even, but I keep telling myself there will be better days, and you know what? There are! The good days that come along feel a hundred times better than when I took my health for granted. :)

I hope you are able to find comfort and support here. HUGS!!
 
THANKS YOU ALL :)
I Do feel the support and I'm doing better each day

Ate such a big meal today and no pain i was shocked! hope that lasts
 
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