Tickling/tingling in legs

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nogutsnoglory

nogutsnoglory

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Tickling/tingling in legs/feet

I am experiencing a warm and sort of tickle like and tingling feeling in my legs and feet. It feels good to put my nails into my leg and I'm wondering if that putting pressure on the nerves and maybe dispersing the feeling. I am thinking acupuncture might feel good to break up this energy.

Anyone else have any experience with these symptoms? I don't know if its neurological or fibromyalgia or just part of Crohn's.
 
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I don't have any constant tingle, but I do have tingling / numbess through my legs and feet sometimes when I'm in a lot of pain. Have you been experiencing a lot of pain since this began?

Personally, I'd probably suspect the fibro more than Crohn's. Does it usually cause issues with your legs?
 
I don't have pain in my legs just severe pain from perianal abscess surgery I had a few days ago. I'm not sure if the leg tingling comes up more with overall pain or not. I haven't been diagnosed with fibromyalgia but had a rheumatologist tell me I probably have second degree fibromyalgia. Essentially that means you have fibro symptoms but not full on fibromyalgia and they can't ascertain the cause.
 
I had a nerve conduction test so its not neuropathy. I'm really scared it could be a sign of something worse like Multiple Sclerosis. The problem is I have symptoms of many illnesses so who knows what's what.
 
Yeah, I get it a lot! I had a nerve conduction test as well. They also checked me for MS, but it wasn't that! I also have many different things. I just figure it is all Crohn's related, but if it is new to you, you may want to mention it to your Dr.
 
What kind of tests did you have other than nerve conduction? I had a brain and neck MRI. I don't know what tests are there for MS. I'd like to get to the bottom of this.
 
I had an MRI and a CT scan. The next step was a spinal tap, but it stopped at that time and I have not gone back in to do the spinal tap. I hope you figure it out. Let me know how it goes.
 
nogutsnoglory said:
I had a nerve conduction test so its not neuropathy. I'm really scared it could be a sign of something worse like Multiple Sclerosis. The problem is I have symptoms of many illnesses so who knows what's what.
Click to expand...

Do you get enough magnesium and potassium? This can cause it and B12 too.
 
I have to check my bloods but I think they are ok. Potassium I probably lose a lot because of all the diarrhea.

I had neurological issues with Humira so I'm worried this might be Cimzia. I didn't really put two and two together till penguin mentioned it happened to their kid. I just don't know if its irritation or causing lasting damage.
 
TNF blockers can cause tranverse myelitis issues.
WHich was why before the docs would let my son start humira he had to have an MRI of the brain.
He did have allergic reactions to remicade- trouble breathing mouth burning, throat burning, tongue tingling and lots and lots of skin rashes finger peeling, rosecea, dermatitis, ulcerations on his ear lobes etc...
my point being
you really "know" when they are reacting...
the tingling was a whole nother kettle of fish though
hope they get to the bottom of it
 
I have that on occasion, doc said it was neurological side effect from the meds. Also I have a lot of joint swelling and at times it cuts off circulation.
 
After many sleepless nights lately including now I couldn't take it anymore and scheduled another appointment with my neurologist. This guy last time told me he didn't know why it was happening but prescribed Neuronton. I didn't take it because it wasn't as bad at the time and I don't like the idea of treating a symptom without knowing what's causing it.

Anyone use Gabapentin/Neuronton before? The side effects scare me but I learned to ignore side effects after starting biologics.
 
Saw the neurologist who wants me on Neuronton and have more MRI and nerve conduction tests scheduled. The fun never ends!
 
nogutsnoglory said:
After many sleepless nights lately including now I couldn't take it anymore and scheduled another appointment with my neurologist. This guy last time told me he didn't know why it was happening but prescribed Neuronton. I didn't take it because it wasn't as bad at the time and I don't like the idea of treating a symptom without knowing what's causing it.

Anyone use Gabapentin/Neuronton before? The side effects scare me but I learned to ignore side effects after starting biologics.
Click to expand...

Sorry missed this! My daughter took Gabapentin for a while but had really bad side effects. Hallucinating, headaches, feeling just really weird. She didn't last long on it!

Saying that, her GP has said that it is one of the better drugs, maybe she was unlucky!

Good luck with your tests x
 
Nogutsnoglory,

If you get another MRI make sure to get it done with contrast and with out. They will scan you and then inject a dye into your vein through an IV and then re-scan. I had transverse myelitis and this is standard to show inflammation.

My episode was pretty dramatic and was bilateral. MS is usually unilateral (symptoms on one half of body). My lesion was at C2C3 (cervical spine) so my arms and hands were numb too. If you only have the sensation in your legs it would most likely be in thoracic spine. Sounds like you haven't had your lower spine scanned yet. MS and TM usually have bladder issues and gross motor issues as well. I had trouble breathing but that was because my inflammation was above my lungs.

My mom has nerve issues as well and currently takes Gabapentin. She feels very strongly it is effecting her memory so she is weaning off of it. She has been on it for 2 years and says she occasionally shows up places and has no idea why she is there. Very scary for her. She also is 70 so it might be an age issue, she does not think so. I will let you know once she weans off if that side effect goes away. She has to wean for 4 months so it will be a while.

Hope you get some answers and relief soon. ((((Hugs)))))
 
Niks what was she taking it for? Did it actually work for the problem even though the side effects were unbearable?

Johnnysmom thank you, the new scan will be the lower spine. My neurologist also felt my reflexes were too fast which could be a sign of neurological problems. Hopefully this is all just medication side effects but I will know in the next few weeks.
 
She was taking it for Abdo Pain, and looking back she does think it helped. The side effects were really not worth the gain for her. I hope it works for you though! x
 
My mom wasn't sorry she tried gabapentin. You can always give it a try and then go off of it if you are seeing some negative side effects. She was told the side effects would go away she is just skeptical because she was on it so long and ignored the side effects for so long.

I hope it works for you.
 
Taking 50,000 Vit d a day after 6 mo I was at 110. My GP
Told me to go to one pill a week and my symptoms came back.

My B12 is at 307, that is low normal. I feel like I have symptoms
Of low B12 but, neither dr will treat it. When I read about it on
The computer it says adults in the low normal range could/should
Be treated. What do I know? I am just the patient and just trying
to make sense of it all and feel better!

I just wonder what lasting affects my vitD will have had being so
low! I was diagnosed at 28 and not tested until I was 49.

This has to be one of the most under treated diseases!

Lauren
 
Why would arthritis cause neurological problems? I have crohns arthritis too but never considered that as the cause of my parasthesia.
 
My rheumatologist explained that prolonged inflammation of the joints cuts off the healthy blood supply over time and damages the surrounding nerves, leading to chronic pain/tingling.
 
My rheumatologist and GI said that crohns arthritis is different than regular arthritis and even though the pain is terrible, no lasting damage is being done.
 
Yes my Rheumatologist told me the same thing. She said the damage is not done to the actual joint but instead is done to the nerves surrounding it and so its not considered directly caused by the Crohns arthritis. I guess they got me on a technicality. :/
 
nogutsnoglory said:
After many sleepless nights lately including now I couldn't take it anymore and scheduled another appointment with my neurologist. This guy last time told me he didn't know why it was happening but prescribed Neuronton. I didn't take it because it wasn't as bad at the time and I don't like the idea of treating a symptom without knowing what's causing it.

Anyone use Gabapentin/Neuronton before? The side effects scare me but I learned to ignore side effects after starting biologics.
Click to expand...



Hey there. My partner took neuron tin for her fibromyalgia and had
A wicked awful time w it. Terrible headaches dizziness and she totally lost her
Memory at 27 years old! She went to dial a number one day and couldn't remember her coworkers name!

I hope your experience is different. If I've learned anything
No two people are alike w meds so I guess if its really necessary then
You have to give it a go and these stories probably just scare you.
Either way hugs!!
 
I'm sorry to hear about your partners experience. I am still holding off because crohn's is the priority and this is secondary albeit frustrating. I don't want more drugs its s viscous cycle.
 
I had tingling in my feet, legs and hands,my bloods were done and apparantly is malabsorption of Magnesium, watch it Drs do NOT CHECK Magnesium levels,my GP told me,
Mine was 4.2.which also bought mypottasiums down, Had to have emergency IV to get it back up to 0.7. Within three days it was back down again and the tingling came back.
Mine is defintley Magnesium deficiency.
 
My Dr. put me on it for nerve pain I have had from surgery. It made me feel so out there and weird. I couldn't get used to it and quit. But have trouble with alot of medicine.:(
 
RosaleeMae said:
My Dr. put me on it for nerve pain I have had from surgery. It made me feel so out there and weird. I couldn't get used to it and quit. But have trouble with alot of medicine.:(
Click to expand...

That's interesting, since my surgery I have been doubled up with a kind of stomach Gastritus, Drs have tried me on Lansoprazole but not worked now trying panproctomol or something like that, I am also making my own Kefir from yesterday,but now wondering if this is all nerve pain as my scar goes right up just underneath my chest.I cannot do anything, mop the floor nothing cos my stomach hurts so much, Gastro reckons it's trapped gas,it maybe but I really think something else is going on as well,especially since my Magnesiuim has been low,does anyone know if this helps digest food or something.

Thanks
 
I've been having problems like this, too. Ever since I started Cimzia in May (I'm off of it now) I've been having cramping in my left leg, almost like a Charley horse. And it gets really tingly and stiff. My Rheumy said she thinks I have Fibro or something related as a result of my Crohn's, but I don't know if that is what's causing this?
 

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