Tingling in hands and feet

[Mazen]

tingling in hands and feet

Does anybody suffer from occasional tingling and burning in feet, hands and legs. Sometimes a little bit painful also? I'm wondering if this is from Crohn's or the meds we take

 

[tonya_n_ky]

How are your B-12 levels? When mine was low I had that happen. After I started the monthly B-12 injections it's seemed to have settled it for the most part. I also have poor circulation sometimes too and not real sure if it's from the Crohn's or if it's something else. Hope you get it all taken care of.

 

[Jeff D.]

Last year my middle finger of my left hand went numb almost everyday. Then I started eating better and it fixed the problem. I hope that helps a little.

 

[mikeyarmo]

A poor diet can cause all sorts of weird pains and feelings. This does not mean you eat just junk all day (but you might of course ), but you might not be getting all your needed vitamins/nutrients or may be suffering from some mal absorption. People with IBD often can face shortages of many things, including B-12, iron, calcium among many others. The first two though are sort of know for causing weird problems (like pain and odd feelings in your hands). Try increasing your intake of foods with these items or consider taking a daily supplement to ensure you receive enough of these items each day.

 

[UMGuy]

Are you by chance on a high dose of Flagyl?

 

[Valentina]

A poor diet can cause all sorts of weird pains and feelings.

ooh ya, and even if your not throwing up or have a lot of D... my potassium dipped dangerously low and I didnt even know it, I had all sorts of strange tingly sensations in my hands feet, and legs. And at that point I would say I was eating fine.. well sort of lol
I would make sure you bring it up at your next appointment, and make sure they check everything they need to be when they do your bloods.

I also found when I first started any drugs, I would get strange sensations as well.. so could be a side effect issue.

hope you figure it out, and its not too uncomfortable.

 

[crampygut]

Hi Mazen,

Some Medicines can cause these symptoms eg. Antibiotics etc. Check the Medicine side effects list and see if any of the meds you are on have these side effects. I suggest that you should see a doctor asap before any of these symptoms get worse. Make sure you see a good doctor who knows what he or she is talking about. There are plenty of good dotors at the American University Hospital in Beirut. But also keep in mind that what everyone else has posted because being low in vitamins and having a poor diet can definately cause al sorts of problems.

 

[Bubba91873]

I have had severe problems with numbness in my hands and feet for many years.

For me I believe it is due to B-12, and "nuerapathy" as a complication from untreated diabetes.

I was discovered to have cataracts in the summer of 2004 with no explanation as to why I would have them and me being so young.

I am 33 years old now and for the last year my blood-work says that I am pre-diabetic but I have the symptoms of active diabetes.

The only ways to get cataracts at this age is too either have untreated diabetes for 2-5 years or suffer an eye injury.

I have never had a eye injury ....

 

[Cookie]

Mazen, did you ever find out if this was a result of the flagyl? If so, how often did you experience it? I know that it can be a side effect and was told to look out for it, but my GI said it should not be a problem at this low dose. I am currently only taking 250mg/day, but have been on it for 5 months straight (started with 750mg/day for 1 month). I have noticed tingling in my hands and feet for some time but it seems to be getting worse. At first it was usually just when I would lay down to rest and when i woke up in the morning, but now it is happening throughout the day. Sometimes the bottoms of my feet get this really weird sensation. I don't know if I should stop taking my flagyl.

 

[kello82]

i got that side effect when i was on the iv flagyl after almost 7 months and then had to stop taking it. however ive been on oral flagyl 375mg 3x day since then and havent had the sensation.
it was exactly like you described, ony got it in my feet though. they were all tingly, and a bit numb too. sometimes the tingling would turn into sharp prickles/stabs that hurt quite a bit.

shady hve you told your doc? in my opinion, you should probably stop. if it gets to bad it can do permanent nerve damage there.
i was afraid mine was, it took over a year to go away completely. even now sometimes when someone touches the tips of my toes i jump becuase the feeling isnt totally there. it feels like a lil spider or something running across.

tell ur doc!

 

[Cookie]

Thanks Kello. I will call my doc. I don't think it's that bad to cause anything permanent, but it's not something I want to mess with. At first I thought maybe I was imagining it, but now I am certain. That sensation on my feet bottoms was really strange...almost like it "hurt" to walk on them. I have not had that since Sunday...but hands and feet still tingling intermitantly.

I am not sure what my doc will do about the meds though. My fistula has been sore and draining a lot lately. My first thought was to UP my dose of flagyl for that. I think I am in a catch-22.

 

[SpoonNinja]

ive had it but i think it more when it falls asleep for me but it happens randomly when ive not done anything for it to fall asleep...

 

[kello82]

i think theres other antibiotics you can take to help control the infection.

hmmm i think i was put on bactrum (sp?) for it at one point. maybe a different drug would give your body a break from the side effects

 

[la la]

I was on Thalomide and numbness is a side effect of that. I had the same feeling and I too thought it was in my head till I mentioned ot to my Dr and he said ~no more Thalomide.. It was to bad because the med was a very good one for me. Best of luck!

 

[Cookie]

Thanks everyone. I did call my doc yesterday and he said to stop taking the flagyl. I didn't take it last night, but I am still tingling today...not sure how long it will take to go away.

I am currently taking no prescription meds (first time in 7 years!). I have a GI appt. on May 19, so I'm sure that will change. My doc mentioned Humira last time, but I decided to stick with the flagyl route. I guess since that is not working, I will probably be joining the Humira club real soon.

 

[merrywidow]

i have that, as does agentx20. its perhiral nerorapthy.
sharon xx

 

[Cookie]

You know what baffles me? When started taking Imuran and Remicade I did internet searches and found all of these references to these horrible, horrible side effects, and like so many others here, I was scared to death to take them. When I started taking flagyl and felt like ick, I found all of these doctors saying how well the drug is tolerated. There are very few medical references linking it to peripheral neuropathy and the ones that do say that it is a very rare side effect, yet just about EVERYONE here who has taken this drug for an extended period has experienced it. I kept thinking that maybe I was imagining it. I mean, how likely would it be that I would be the one to end up with this RARE side effect???

Once again, if it wern't for this forum and being able to talk to people with real world experiences, I don't know what I would do!

 

[kello82]

thats a good point shady. if its supposedly RARE,....then why are there quite a few of us who have experienced it?
if a poll were to be taken on this forum, it seems it would be more than rare.

 

[merrywidow]

i have peripheral neuropathy but none of the "professionals" relate it to my crohns. peripheral neuropathy is supposed to be a old persons illness,but i am NOT old, only 39 (nearly 40!!).
its just another bit of my body that refuses to work correctly!!
sharon xx