Tired and depressed

[linder553]

tired and depressed

It is so nice to finally find a forum where people can understand what i'm going through. I found this forum by accident as I was looking for a website that was selling crohn's awareness bracelets and i'm glad I did. I have been feeling so alone and scared for the last two years since my diagnosis. It seems like people who don't have this disease seem to think that we're feeling fine just because we don't always look sick and i'm sick of no one believing me when i teel them i'm in pain. My symptoms started in 2008 while i was doing a field placement at a daycare center for college. I started to feel really tired and started having stomach cramps that were so bad i thought I was dying (not to be dramatic or anything). People started telling me how pale i looked and that i looked like I had lost weight but I was to busy feeling sick to care. The doctors could't figure out what was wrong with me for a long time becasue my symptoms where so mixed up all the time. One doctor mentioned Crohn's but another doctor said that it could't be that because i wasn't having diahrea. I kept getting hospitalized for dehydration because i kept vomiting up everything I ate and i refused to eat much because of the pain while digesting my food. I have been on different treatments and nothing has worked yet...i'm still very sick but i'm able to eat more becasue i'm just used to it by now. I walk around looking like a ghost with big blue bags under my eyes all the time and i haven't been able to work for a while. I'm getting depressed because I need to take care of my kids and the doctor will not sign my papers for dissability. Sorry for the long story but it feels so nice to be able to vent to people who understand finally Hope everyone out there is doing great and God Bless!

 

[archie]

Hi and welcome to the forum, I hope you can get some good advice as you shouldn't have to feel as bad as this. Are you on any medication? I hope that you can get some support and start to feel better very soon. Take care

 

[Mark63]

Hi,

Welcome to the forum.You will find support and information in abundance here. We understand the difficulties that you are going though. Our stories are all different, but a lot of us share common experiences. One that strikes a particular chord for me the fact that people don't understand that you can be unwell and look fine. Some days we do and some we don't!

I hope that you soon get some effective treatment and life improves for you.

Mark

 

[linder553]

Thanks! and I hope you all feel better too! I am on Apo-Ciproflox, Apo-Metronidazole, and Apo-Azathioprine right now and i'm starting Humira next week and they also want to start me on Prednisone by next month but I heard that there are bad side effects with the steroids so i'm really scared. So far my medication isn't working at all and they said I might need surgery soon but only time will tell

 

[archie]

The dreaded pred!!! don't be scared of it it might just do the trick to get you into remission when I was on it a walked walked and walked some more to beat any fluid retention, I really did start to feel remarkably better when I was put on it so hopefully you will too. Surgery may be in the pipeline for you but again I had surgery in Nov and feel a million times better after it and am now on no meds (fingers and toes crossed!!). I dreaded the thought of having to have surgery or go on pred for that matter but now that I have I wouldn't look back. Hopefully you to will get some relief from it and try not to fear surgery too much it may be the answer to getting you back on track. There's loads of advice on her (mixed opinions) but hopefully you'll find it very helpful I know I did.

 

[MADiMarc]

Hi!
Cannot really add too much to what those above have said but wanted to welcome you to the forum.
So, welcome!
Michele

 

[margie]

Welcome to the forum, you are in the right place for support. I hope that you start to feel better soon. Thoughts and prayers are with you.

Margie

 

[spingirl]

This forum is like therapy for me!!! You will get a lot of insight from it. Welcome.

 

[ameslouise]

Hi Linder and welcome to the Forum!

Sorry you are feeling so poorly! I agree with Archie - don't be too scared of the pred. Yes, it sucks and the side effects can be gruesome, but nothing compared to what you are already going thru! It will likely make you feel tons better and FAST, and you will be able to eat and get some strenght back. You'll probably start at 40 mg and taper down, and that will give the Humira some time to kick in, which can take a few weeks or even months.

I've heard of all your drugs but never with the Apo in front of the name - what does that mean?

Hang in there. Can you tolerate liquid supplements like Ensure?

Keep us posted on your progress and in the meantime check out the Humira subforum in the treatment threads.

- Amy

 

[AndiGirl]

Welcome to the forum, Linder. You are definitely in the right place. There's one thing that I've learned about having CD, you will through many ups and downs. I think learning to cope is half the battle. I still haven't learned and really benefit from the support of the forum.

 

[spcwife23]

welcome to the forum

i have no clue why doctors think chrons are only diarrhea.. i have constipation with mines.. thats why it took so long for me to get diagnose.. i wish they would see that depending on where its located its reacts differently.. mines is located where the small and large intestines meet so i guess thats why i have only constipation..

i saw your scared of prednizone please dont be, it has side affects but it really helps.. i use to use it for my asthma but now i just got on it because of a flare i was having.. i have alot of energy and the flare seems to be dieing down a whole lot.. i know its not good to be on for a long time but short burst isnt bad