Hi there,
I'm completely new to this, i've never joined a forum before!
I was diagnosed with Crohns in October 2011 (i'm 49 years of age) after 10 years of symptoms gradually getting worse, every trip to the doctor (and there were many) had me being told I had IBS. Eventually I practically demanded that I have a colonoscopy as my quality of life had dwindled so much, I was just so miserable all the time, cold, tired and unable to eat much with out pain in my stomach and regular bouts of vomiting.
Finally had a CT scan and colonoscopy and was told I had Crohns.
I was initially put on a course of Prednisalone starting at 40mg and decreasing by five mg every 5 days, I felt terrible initially really bad bloating and pain but when I reached the 10mg mark I started to feel the benefits (despite gaining nearly a stone), I felt great for the remainder of the course and for a couple of weeks after being off the steroids. I started Azaithropine (after much deliberating but my consultant said if it were him he'd go on it,,,sounded good enough for me, he's the expert) one week after completing the Prednisolone, i'm on 75mg at the moment to be increased to 125mg in two weeks time.
I have to say that I have been feeling terrible, bouts of stomach pain and vomiting if I eat anything to much. I am confused as to why I was not kept on a maintenance dose of Prednisolone until the Azathriopine had had a chance to kick in, surely the inflamation is back now so whats the point of the steroids in the first place. I am trying to get an appointment with my doc to see if I can increase the Azathioprine sooner.
Really sorry for moaning but its been a miserable New Year, I have spent 2 days in my bed feeling 'sea-sick' and in pain, i do question the logic of my meds and why there is a time frame between coming off steroids and the immune suppresant getting a chance to kick in, perhaps someone out there can enlighten me or perhaps they have gone through the same thing and can let me know their outcome.
Thanks for listening xxx
I'm completely new to this, i've never joined a forum before!
I was diagnosed with Crohns in October 2011 (i'm 49 years of age) after 10 years of symptoms gradually getting worse, every trip to the doctor (and there were many) had me being told I had IBS. Eventually I practically demanded that I have a colonoscopy as my quality of life had dwindled so much, I was just so miserable all the time, cold, tired and unable to eat much with out pain in my stomach and regular bouts of vomiting.
Finally had a CT scan and colonoscopy and was told I had Crohns.
I was initially put on a course of Prednisalone starting at 40mg and decreasing by five mg every 5 days, I felt terrible initially really bad bloating and pain but when I reached the 10mg mark I started to feel the benefits (despite gaining nearly a stone), I felt great for the remainder of the course and for a couple of weeks after being off the steroids. I started Azaithropine (after much deliberating but my consultant said if it were him he'd go on it,,,sounded good enough for me, he's the expert) one week after completing the Prednisolone, i'm on 75mg at the moment to be increased to 125mg in two weeks time.
I have to say that I have been feeling terrible, bouts of stomach pain and vomiting if I eat anything to much. I am confused as to why I was not kept on a maintenance dose of Prednisolone until the Azathriopine had had a chance to kick in, surely the inflamation is back now so whats the point of the steroids in the first place. I am trying to get an appointment with my doc to see if I can increase the Azathioprine sooner.
Really sorry for moaning but its been a miserable New Year, I have spent 2 days in my bed feeling 'sea-sick' and in pain, i do question the logic of my meds and why there is a time frame between coming off steroids and the immune suppresant getting a chance to kick in, perhaps someone out there can enlighten me or perhaps they have gone through the same thing and can let me know their outcome.
Thanks for listening xxx
