- Joined
- Feb 10, 2011
- Messages
- 180
Sorry about how long this is! It's been long and convoluted. Anyone willing to read this, I thank you.
I've been out of reach for a while here due to some serious Crohn's issues.
While I have been dealing with a very serious flare and a partial blockage for the better part of two years, so much else decided to break in my body. No bones are broken, but that's just out of sheer luck.
A couple weeks ago I spiked a fever of 103.7. Yeah, that was fun, but I was also dizzy, nauseated and could barely stand without falling over or be in so much pain that I'd crumble. Stubborn me decided I had to finish my work that night. I know, completely stupid, but I was so focused that Stacy (my hubby) couldn't shake me.
The next day I relented when my daughter got here and I couldn't stand up. They took me down to the hospital. Walking from the car to the front door - about 40 feet - I had to hug a trashcan or I'd have hit the ground. Stacy ran and got a wheelchair for me to fall into. Of course the lady at the front desk in the ER obviously didn't believe Crohn's Disease, not being able to stand, etc.
Went to triage and the nurse took my vitals and info. Back in the waiting room for about a minute when someone called my name. I raised my hand. She ran across the waiting room, grabbed my wheelchair and took of at a full out run. Stacy and my daughter Ellie barely saw it and had to run after her. I was quite shocked. In the room she took my blood pressure laying down, then sitting up, then wanted me to stand as the BP was REALLY LOW in triage. I stood and my BP crashed. She only gave me one number, 60. It was the top one.
She was shocked and said because I have typically low BP that I was standing. Most people would have been in a coma with 60/40 and a resting pulse of 140. Of course this meant she couldn't get the first IV in. The second one worked. She took blood cultures, hooked me up for an EKG and kept a close eye on my BP.
Of course I was admitted. The first culture looked like it might have been staph, but the next sample said it was and external contaminate. After four days in the hospital on a heard monitor and no tests, I wanted out. They wanted to CT scan my gut, but 7 hours after drinking contrast, throwing up most of it an passing the rest, I was leaving.
Had a CT scan, nothing different. So I'm a bit annoyed, but it is what it is. It's the next part that will get everyone yelling at me. I've been barely able to stand through the pain lately, but my GI knows this and is looking for a surgeon willing to work on me. So he knows most of this. Three days ago I discovered a solid and swollen section of my gut. It goes back and forth between hurting and not, being firm and not.
After all this, any ideas would be appreciated, and I'm sorry about how long this is.
I've been out of reach for a while here due to some serious Crohn's issues.
While I have been dealing with a very serious flare and a partial blockage for the better part of two years, so much else decided to break in my body. No bones are broken, but that's just out of sheer luck.
A couple weeks ago I spiked a fever of 103.7. Yeah, that was fun, but I was also dizzy, nauseated and could barely stand without falling over or be in so much pain that I'd crumble. Stubborn me decided I had to finish my work that night. I know, completely stupid, but I was so focused that Stacy (my hubby) couldn't shake me.
The next day I relented when my daughter got here and I couldn't stand up. They took me down to the hospital. Walking from the car to the front door - about 40 feet - I had to hug a trashcan or I'd have hit the ground. Stacy ran and got a wheelchair for me to fall into. Of course the lady at the front desk in the ER obviously didn't believe Crohn's Disease, not being able to stand, etc.
Went to triage and the nurse took my vitals and info. Back in the waiting room for about a minute when someone called my name. I raised my hand. She ran across the waiting room, grabbed my wheelchair and took of at a full out run. Stacy and my daughter Ellie barely saw it and had to run after her. I was quite shocked. In the room she took my blood pressure laying down, then sitting up, then wanted me to stand as the BP was REALLY LOW in triage. I stood and my BP crashed. She only gave me one number, 60. It was the top one.
She was shocked and said because I have typically low BP that I was standing. Most people would have been in a coma with 60/40 and a resting pulse of 140. Of course this meant she couldn't get the first IV in. The second one worked. She took blood cultures, hooked me up for an EKG and kept a close eye on my BP.
Of course I was admitted. The first culture looked like it might have been staph, but the next sample said it was and external contaminate. After four days in the hospital on a heard monitor and no tests, I wanted out. They wanted to CT scan my gut, but 7 hours after drinking contrast, throwing up most of it an passing the rest, I was leaving.
Had a CT scan, nothing different. So I'm a bit annoyed, but it is what it is. It's the next part that will get everyone yelling at me. I've been barely able to stand through the pain lately, but my GI knows this and is looking for a surgeon willing to work on me. So he knows most of this. Three days ago I discovered a solid and swollen section of my gut. It goes back and forth between hurting and not, being firm and not.
After all this, any ideas would be appreciated, and I'm sorry about how long this is.
Sounds like a very long time with very little testing done. I'd be frustrated too. You said you had issues with obstructions in the past or recently even if its partial so the idea of a full on obstruction is a very real and scary possibility. There needs to be more communication from your doctors such as what's next and all that business. Does your GI know that you noticed a mass 3 days ago? I'm sorry you might be going under the knife for exploratory surgery but you gotta do what you gotta do and I really hope they find it and fix it fast! Good luck, we're all thinking of you!
