Tysabri and PML

[Manzyb]

I had a GI appointment today and my doctor was super excited to tell me that there is now a blood test that can screen you for antibodies for the progressive multifocal leukoenchephalopathy (PML) that is sometimes associated with the drug.

I had the blood test today and if I test negative for it will start Tysabri as soon as the insurance approves it. The best part... if I'm negative the I won't have to worry about this possible brain infection!!

Anyway, I thought I would pass this info on since I know that Tysabri is kind of a taboo drug around here because of the possible scary side effect

 

[chrisnsteph1022]

That's fantastic! I told my doc I refused to take Tysabri because of that. If it becomes necessary in the future, I'll make sure he knows about that test and tests me for it.

 

[Manzyb]

I didn't think to ask what the blood test was called. I will ask him next time I'm there. i was going to end up taking it regardless because I'm pretty much out of options, but if i test negative I won't have to worry!! If i'm positive for it, then we're going to have to figure something else out.

 

[Rebecca85]

Is it e JC virus test?not sure what JC stands for, but I have heard it in relation to tysabri and ms.

 

[DustyKat]

Organism
JCV is a nonenveloped double-stranded DNA virus of the Polyomaviridae (formerly Papovaviridae) family, which also includes BK virus (BKV) and SV40
JCV and BKV were named using the initials of the first patients identified with these diseases
JCV infects only humans

http://www.arupconsult.com/Topics/JCVirus.html

Good luck Amanda, I hope it's negative!...:goodluck:

Dusty. :heart:

 

[Manzyb]

Yes! I believe it is the JC test. I looked it up last night and pretty sure that is what it is. I should have asked more questions, I always feel like I should ask more questions when I leave there... but I always get wrapped up into all the stuff going on!

Thank you, Dusty!!