Hi everyone I am 20 years old and the doctors believe I have Crohn's disease they are doing colonoscopy Friday today i cleanse. I have been bleeding per rectum during bowel movements and had blood in stools, sometimes going to the bathroom is unbearable mines more of constipation rather than diarrhea although even when i am not constipated I still have significant bleeding. I am in so much pain tonight but a week ago I had the same pain and thought it was my appendix so I went to the ER and Didn't think to tell the ER doc my GI issues since I didn't think it could be related but after the ct and he said it was fine not my appendix I told him the other symptoms and he said did I have family history of Crohn's I explained yes my uncle and grandmother on my dads side. I explained I was supposed to have colonoscopy done soon he said my symptoms were probably related to what was going on but he couldn't say for sure since he's not my GI doc and the colonoscopy hadn't been done so I got sent home on loratab for pain and phenergan for nausea. But here I am a week later and in tons of pain same side same pain and nausea but this time one of my eyes is swollen up and I have 3 mouth ulcers. Feels like I have to go to the bathroom bad but can't thoughts anyone?? Please I understand you probably all get this a lot from people but my pain is genuine and really want answers and thoughts. Please help give advice on if I sound crazy or what it's okay I want honesty. I don't know anyone with Crohn's so I have no one to ask these things I posted this on the other page but they said I should discuss the whole mouth ulcers and eye swelling here that y'all may know better?
Undiagnosed have questions on a few odd symptoms other groups referred me here
- Thread starter RTM03
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Hi RTM03! 
Hope the scope goes well! Keep us posted on the results (biopsies will take time to come back).
Many people on the forum experience mouth ulcers and eye inflammation as well. Doesn't have to be at the same time either but can definitely be. Crohn's can affect people from their mouth to their anus but there are also secondary conditions that can affect your eyes, skin etc. Check out the image and link below. It talks about Crohn's in general along with Extra Intestinal Manifestations near the end.
http://www.hopkins-gi.org/GDL_Disea...DL_DC_ID=D03119D7-57A3-4890-A717-CF1E7426C8BA
Whenever I get any mouth ulcers (sometimes I just get canker sores, those little ulcers) I rinse my mouth with some salt water or usually dab salt directly on it with a Q-tip. It does sting but it helps with the pain for a little while and I noticed it helps them heal faster. How big would you say your mouth ulcers are?
If it is Crohn's then using steroids should help reduce the inflammation going on all over your body (usually not just steroids alone though for the condition in general but steroids help kick start the healing process). Entocort doesn't really treat the lower portion of the colon and I'm not sure how well it would do with mouth ulcers but I know it helped reduce my joint pain as I have osteoarthritis so I think it spreads out in the body more than previously thought.
Hope the scope goes well! Keep us posted on the results (biopsies will take time to come back).Many people on the forum experience mouth ulcers and eye inflammation as well. Doesn't have to be at the same time either but can definitely be. Crohn's can affect people from their mouth to their anus but there are also secondary conditions that can affect your eyes, skin etc. Check out the image and link below. It talks about Crohn's in general along with Extra Intestinal Manifestations near the end.
http://www.hopkins-gi.org/GDL_Disea...DL_DC_ID=D03119D7-57A3-4890-A717-CF1E7426C8BA
Whenever I get any mouth ulcers (sometimes I just get canker sores, those little ulcers) I rinse my mouth with some salt water or usually dab salt directly on it with a Q-tip. It does sting but it helps with the pain for a little while and I noticed it helps them heal faster. How big would you say your mouth ulcers are?
If it is Crohn's then using steroids should help reduce the inflammation going on all over your body (usually not just steroids alone though for the condition in general but steroids help kick start the healing process). Entocort doesn't really treat the lower portion of the colon and I'm not sure how well it would do with mouth ulcers but I know it helped reduce my joint pain as I have osteoarthritis so I think it spreads out in the body more than previously thought.
