- Joined
- May 27, 2009
- Messages
- 1,035
Hello fellow crohnies,
it has been a few weeks since i last wrote and i thought i should do an update. I really do not know what i should do at this point but I already took that angle in a previous post. In reviewing my past posts, I have been more than just a bit negative and downtrodden.
A few weeks ago I was going up to a Boston Hospital for further blood work and tests. I had more blood work done , including another test for poriphias. (?)
The results came back and again nothing showed on the tests. I have had colonoscopies, angiograms, cat scans, upper & lower gi's, blood and urine tests. I
have been poked and prodded and questioned to the point of near madness.
I was told earlier in the day that there were no further tests planned , and that they still were not at all sure what condition, affliction, disease or F"@$$^%$#
bubonic plaque that I have at this point. He said that I may be diagnosed with a functional disorder. This is apparently somewhat of a catch all , similar to using the word dementia for older folks who may have lost a step in terms of cognitive
skills. A few hours later he called and said that I need to come back up for 3more tests (each of which are new to him and the doc.) In a call just last week the doc informed me that he is 95% sure that i do not have colitis or crohn's. I was told in March that I had crohns and had been on crohns meds since that point.
Now don't get me wrong, I do appreciate the status of being on the cutting edge of the study of the mighty buttocks and all of the parts contained within.
:ybatty:However, as I whined about in previous entries, my life is already quite busy and challenging without this issue. I have been blessed in this life as I have a wonderful wife, three fantastic young men who I am very proud of and one daughter who is my absolute princess. My wife is recently diagnosed with fibromyalgia. She is a very strong lady whom I completely adore.
The stay in Boston i had another colonoscopy and an endoscopy performed. In all previous tests, they were 4 unable to study the ileum area due to inflammation in that area. The Docs were able to get in there this time and study the area but I was in a great deal of pain and actually grabbed the docs hand in the middle of the process. biopsies were taken results not yet in.
Any suggestions are appreciated,how the F!~!@#%^%& do you folks keep up with the emotional roller coaster aspect of this disease? I appreciate anything you may have to offer . I am trying so very hard to be strong, but am not at all feeling that way.
two more blood t 2nd flloor lab slips in office container for 24 hour urine collection.
it has been a few weeks since i last wrote and i thought i should do an update. I really do not know what i should do at this point but I already took that angle in a previous post. In reviewing my past posts, I have been more than just a bit negative and downtrodden.
A few weeks ago I was going up to a Boston Hospital for further blood work and tests. I had more blood work done , including another test for poriphias. (?)
The results came back and again nothing showed on the tests. I have had colonoscopies, angiograms, cat scans, upper & lower gi's, blood and urine tests. I
have been poked and prodded and questioned to the point of near madness.
I was told earlier in the day that there were no further tests planned , and that they still were not at all sure what condition, affliction, disease or F"@$$^%$#
bubonic plaque that I have at this point. He said that I may be diagnosed with a functional disorder. This is apparently somewhat of a catch all , similar to using the word dementia for older folks who may have lost a step in terms of cognitive
skills. A few hours later he called and said that I need to come back up for 3more tests (each of which are new to him and the doc.) In a call just last week the doc informed me that he is 95% sure that i do not have colitis or crohn's. I was told in March that I had crohns and had been on crohns meds since that point.
Now don't get me wrong, I do appreciate the status of being on the cutting edge of the study of the mighty buttocks and all of the parts contained within.
:ybatty:However, as I whined about in previous entries, my life is already quite busy and challenging without this issue. I have been blessed in this life as I have a wonderful wife, three fantastic young men who I am very proud of and one daughter who is my absolute princess. My wife is recently diagnosed with fibromyalgia. She is a very strong lady whom I completely adore.
The stay in Boston i had another colonoscopy and an endoscopy performed. In all previous tests, they were 4 unable to study the ileum area due to inflammation in that area. The Docs were able to get in there this time and study the area but I was in a great deal of pain and actually grabbed the docs hand in the middle of the process. biopsies were taken results not yet in.
Any suggestions are appreciated,how the F!~!@#%^%& do you folks keep up with the emotional roller coaster aspect of this disease? I appreciate anything you may have to offer . I am trying so very hard to be strong, but am not at all feeling that way.
two more blood t 2nd flloor lab slips in office container for 24 hour urine collection.
