Update on Dusty's Matt

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Thanks heaps guys for your continued well wishes! It really does help to know you are there and keeping us in your thoughts.........

Now..................bugger, bugger, bugger...................the sinogram results are in and he has a fistula. Can't reeeeeally say it's unexpected but it's nice to live in hope at times (((sigh))).

Haven't seen the Prof yet but the senior registrar dropped by and had a chat with Matt so all the major talking and decision making will be done in the morning. The registrar said it is highly unlikely the fistula will close now so surgery is looming as the only option. He will go home with drain and that will stay insitu until he has the op and I forgot to ask when he can go home!!! My only saving grace is the registrar probably would have said we will have to ask the Prof when he comes.

We did discuss where the op would take place and I opted to have it done here by the colorectal surgeons as opposed to somewhere close to home with a general surgeon.

Still hoping for the 19th as the discharge date!!!!!! and wishing myself luck :ylol:

:goodluck::goodluck::goodluck:

Dusty. :)
 
aw :( sorry to hear the news is what you were hoping it wouldn't be - but at least now you all know what you're dealing with, and there's a way to sort it out - to me, i'd be looking on this as the step in the right direction Matt's been waiting for.. i know it's scary to be facing surgery, but after that he'll be on the road to recovery and to getting his quality of life back.

((hugs)) to you all.. and you know we're always here for you.x
 
Sorry Dusty!! Well, at least we know why he keeps getting ill and they can now take the right action. How long do you think it will be before surgery? Can he eat real food?

I know you're exhausted, I hope he gets out soon!! Good luck!!
 
So sorry for Matt, Dusty. Maybe after he has the operation he will feel well for a long long time! Keeping you guys in my thoughts and prayers! BIG HUGS!!
 
Thanks Ding, Dex and Amanda,

Well the Prof visited and we are set for discharge tomorrow........but then Matt developed abdo pain out of the blue..................bugger, I hope it doesn't affect our chances of going home tomorrow. The docs will be back in again this arvo so here's hoping! He had a shower this morning and it seemed to start after that, had Endone but that didn't seem to do anything so I flushed the drain in case it had moved around a bit and then the pain seemed to subside, so who knows, was it the flush or the meds that made a difference or both or neither!!! (((shrug)))

The plan is to come back for a consult in about 6 weeks with a view to surgery in about 8 - 12 weeks. Fingers crossed it all goes according to plan!

Dusty. :)
 
So does the drain stay in place until surgery? Will Matt be able to start school? It seems like quite a wait! Hope you guys get to go home on schedule!! What a turn of events!!
 
Ahhh! Hopefully he's still going to be discharged so you guys can go home! That does seem like kind of a long wait. Maybe it will heal up before then and he won't have to have surgery!! WISHFUL THINKING!
 
Hey guys,

Well we've had the privilege of spending another day in hospital :voodoo:. Can't say I'm surprised after yesterday and the docs are erring to caution 'cause we live so far away. (((sigh))). On the upside though Matt is back to his normal self today, only thorn in the side is his drain has started to leak where it enters the skin (not much, mainly when it is flushed). The Prof has just stopped by and had a long chat with him about the future and he isn't concerned about the leakage so that is fine with me. He says it will most likely take up over time.

The reason for the long wait is when Matt came in to hospital the CT showed that half his small bowel was inflamed. When he had the sinogram the inflammation had reduced significantly. They are hoping that medically they can reduce the inflammation back to that original 100mm and operate on that section alone as that is where the fistula is located. You're right Amanda .......wishful thinking :lol:!

Yeah Dex, the drain will most likely stay in until he is operated on, assuming he responds to meds. If not then I guess they go to plan B, whatever that is. Matt will start school and uni as planned.

The Prof asked if we wanted to come back here and when I said yes he seemed very relieved. I asked why and he said that quite a few people fall in love with their local hospitals and the doctors there and so prefer to go that way. I would have thought that having top colorectal surgeons and IBD specialists would have been the way go!!! After all they have all been really nice guys to boot. :confused2: Oh well each to their own. No doubt when I get all the discharge papers I will find out when all the follow up stuff is.

Looking like tomorrow might be the day!

Fingers crossed, :):):)
Dusty
 
Fingers crossed for tomorrow for all of you. Keep on plugging, Dusty.

Yes to top surgeons over feel-good local general doc! Wise choice. I have zero experience of surgery, but I've had moles removed by a plastic surgeon and moles removed by a GP (who thought plastic surgeon was overkill), and I'll tell you which scars get looks and comments! For surgery? There is no overkill!
 
This thread should be a sticky by now. Wishing yall luck on the hospital break! That's like a jail break, except a hospital. What I'm saying, is bust outa there!
 
AAAAAAAAAArrrrrrrrrrrrrrrrrrggggggggggggghhhhhhh..........

Docs have just been in again and his white cell count is back up to 24! We will now have to wait till he has bloods again tomorrow and if it hasn't gone down they are talking about putting the IV back up but ultimately it will be up to the Prof. Poor Matt is now on a major downer. :(:(:( Ugh the kid just can't seem to take a break.

@ Kelly, agree with you 100% there! Nothing but the best.....:lol:

@ Manimation ~ Please get over here now and help us break out!!! :voodoo:

Dusty. :yfaint:
 
Dusty, Sorrry to read about Matt's continuing struggles. I'm sending some positive energy your way, I hope it helps! Hang in there dear, you must be just so worn out from all of this.
 
Send away stinky, I reckon we can use all we can get!

%#*$&*(%$@#&*..................

Team came in this morning and said Matt could go home....YAY!. So we packed up and he was seen by all and sundry, we were given all our supplies and medications and were waiting for the discharge papers when the registrar walks in in his scrubs and I said to him....." Oh hell this is gonna suck!".

Turns out Matt's bloods today are worse than yesterday, WCC 26 and CRP 200, but he feels well and has no pain or fever. He is to have a CT Scan in about an hour. If they find further abscessing I am guessing the drip may go back up, not sure about the drain. If they can only see inflammation of the bowel then he may still be able to go home tonight. No doubt it will all rest with the Prof.

Can Matt and I get off the merry-go-round now??? Pleeeeeeeeeeease.

Dusty. :(
 
CT Scan showed he has another small abscess but it is too small to drain. Back on IV antibiotics for the next 3 days and then review Monday. If his bloods indicate he has responded well then they will give him one more chance at treating this flare conservatively before moving to surgery at a later date. If he hasn't responded well by Monday then he will most likely go onto TPN and have surgery the week after next. He may also end up with a temporary stoma.

The surgical team will be having a meeting in the morning with Gastroenterologists and then the Prof will come and speak with Matt.

It's a lot for Matt to take on board. I took him out for tea and we had a long talk about what they said and he asked me about Sarah and what she went through. I am still amazed at his ability to cope with all that has happened and may happen and his determination to see the positives and move on.

Dusty.
 
Ugh, now they're talking stomas. It's not a merry-go-round, it's the Twilight Zone!! Sorry for you both!!!!!!
 
Dusty!!!!!!!!!! That DOES suck. :-( I'm so sorry and I know you'll keep us posted.

Thinking of you both - Matt sounds like an amazing kid.....
 
Gosh Dusty ,I'm sorry :( It sounded like things were going better. That really sucks with all of this stuff. Dexky is right, it sounds like the friggin' twilight zone!!! I keep thinking about you guys. Hang in there and I always look forward to hearing updates from you! BIG HUGS!!
 
Thanks guys. :hug:

Matt continues to feel well and his WCC and CRP are dropping so hoping for good news on Monday.

Oh man I am just feeling incredibly pissed off at the moment. When we got such a quick diagnosis with Matt I was thinking, well aside from how much it sucked, that at least we should be able to knock it on the head pronto and he won't have to put up with all the shit Sarah went through. F*%$ this disease.

Okay, now I've got that off my chest I'll think about where to take Matt for lunch today.......:):):) (((happy thoughts, happy thoughts, happy thoughts)))!

Dusty.
 
Dear Dusty,
When the numbness wears off Matt will still have the best supportive mum. My thoughts are with you and both of your children. Remember to take care of yourself during all this please. You are way to important to way too many people to succumb to illness due to stress!
Michele
 
I haven't been here for a while due to the death of a dear friend. But I'm so sad to hear all that you and Matt have been going through. Bless your hearts. Matt is growing up quickly with this damn disease! My thoughts and prayers continue for all of you. And like Michele said, make sure to take care of yourself Dusty. We love you and admire you from afar :)
 
MADiMarc said:
Dear Dusty,
When the numbness wears off Matt will still have the best supportive mum. My thoughts are with you and both of your children. Remember to take care of yourself during all this please. You are way to important to way too many people to succumb to illness due to stress!
Michele
Click to expand...

I second the motion....Take care of yourself Dusty. You have really been thrown a another curveball. Stay positive. Stay positive. Stay positive. That is so hard to do when you are in this awful place and have been "mommy drained" with all you have gone through with Roo and now Matt. What you may not realize is that you show so many of us how to manage this illness mentally. Attitude is everything. I can't speak for others, but you are my hero... So curse a little more, punch a few doors, and then go back to being the supportive and strong mum you are. :hang:
 
Oh my Michele, Sara and Stacey thank you so much for your lovely words..........:blush::blush::blush:

Well Matt's IV can finally come down today, YAY! He feels well, looks well and has no pain but I said that last time too didn't I :eek:. His bloods are just about back to normal so he will go to oral antibiotics and if his bloods stay in positive territory then he will be discharged Friday! Man I hope that happens 'cause we are so hanging out to get home! If things go topsy turvy again then we will be here until he has his op. :(

Oh well it's Australia Day here and at least we will be able to see the fireworks on the harbour from the hospital! Well to be honest the last few days haven't been too bad 'cause the IV's been capped between doses so we have been out and about quite a bit, sure makes the days go faster. :)

Dusty.
 
Well, as a natural worrier, every time you don't update for a few days, I think the worst...actually I just start bugging Roo!!:) Glad things are still going well!
 
Sending my thoughts as well. Glad to hear things are turning around in this Saga of the Ouchback. You like that? Yeah, I'm wordsy. Hope the fireworks rocked!
 
Hi Dusty

Sorry, I keep missing this thread for some bizarre reason!

I've only just read about Matt's possible op. I'm sorry it's come to this.
I really hope he can go home asap, just to give you a break, if nothing more!
I wish you all the very best and I'll be crossing everything for you
love lots & lotsa hugs
xxxxx
 
Thinking of you Dusty and Matt.

Hope you enjoyed the fireworks!!!!


Glad that again things are looking a little better. Hang in there and hopefully he will get to go home soon!!
:bigwave:
 
@ Rebecca, thanks hun for your well wishes.

@ Dex, stop badgering my daughter!!! :lol: Thanks mate.

@ Manimation, Thanks buddy but don't give up ya day job! :ylol:

@ Clearwell, Thank you so much and I will gladly take all the good luck I can get! ;)

@ CDDad, Thanks mate and we sure are looking forward to getting home. :)

@ Joan, Haha no worries Joan. The op is a given, well short of a miracle, it's just a matter of whether it's sooner or later and hopefully it's later!

@ Manzyb, Thanks hun and the fireworks were great! Hope all continues to go well with you and the bub and I see you are going to name her Sadie, bugger I lost! Nah just kidding. I bet you two are so excited and I'm so happy for you both. :):):)

On the docs round this morning I was pushing hard for a definite answer about tomorrow but they wouldn't commit, hell I didn't expect them too but I had to try didn't I? hahaha.

Matt still going strong and it will all hinge on his blood results tomorrow, oh well either way there will be a definite answer as to which path we take and I'm hoping it's the path home for more reasons than just to get out of the place. It's kinda sad in a way in way because Matt has given up on hoping for the best. I mean he's okay and all that but I guess he's being realistic but in doing so he not allowing himself to get his hopes up. Hell does that even make sense! Man he could so do with something going his way.

Anyway on a more positive note we are off to the city for the day so I should be able to keep him off the ward until about 9:30 tonight so that's gotta be a plus, woohoo!

Thanks again guys, you're presence is a godsend. :):):)
Dusty
 
Yes, he COULD use something going his way, and we'll look forward to hearing when that happens. In the meantime, sending wishes for small moments of joy and steady improvement in symptoms.
 
Hope all goes as well as you hope for today and you and Matt get a plan of action. Also hope you enjoyed your day of freedom yesterday!
 
@ Dex, She already knows you're a creepy old fart!

@ Kelly, Thanks heaps Kelly, hoping things stay on the straight and narrow! :)

@ littlemissh, Thanks hun, had a fab day yesterday and we now have our action plan!woohoo!!!

Well we were finally discharged today....................

:mbh::mbh:

Have decided to spend a day with my Mum and Dad before making the trek home Sunday. We have a follow up appointment with the Surgeon and GI on 7th March regarding progress and when surgery will be, they really don't think the fistula will close on it's own. He will stay on oral antibiotics until then so I am hoping more than anything that it keeps things in check and the drain behaves itself!

We had a fab time in the city yesterday, Matt really enjoyed it especially since he got to spend 2 & 1/2 hours uninterrupted in the book shop and then the rest of the day was spent in sport stores! Oh joy :lol:.

Thinking happy thoughts! (or may be I'm in lala land) :).
Dusty
 
Yeah!! Out of the hospital and got to do something fun all in one day! Hot diggity dog! I am happy for both of you as I know the hospital can make both patient & caregiver mad as a hatter. Enjoy! Hugs to all and know I am thinking of your Matt walking around the book and sports stores grinning.

Michele
 
Thank you so much littlemissh and Michele! :hug:

Well home one week now and things seem to be going okay. Haha can't seem to let myself get my hopes up too much! He has no pain or fever and most of the time looks pretty good.

Drain has been behaving itself so far, still leaking when I flush it but I think it's always going to be like that. My only concern is I am getting a little resistance when I do flush and I am assuming it's because the cavity is closing (((shrug))). Oh well time will tell.

Went to the GP yesterday for bloods to be done but it was late in the afternoon so I guess unless they are off the board I won't get the results until Monday, so here's hoping the WCC and CRP are normal or at least close to it!

The GP said he could still feel quite a mass so it must be the thickened terminal ileum. I asked him it was bigger than when he first felt it and he said it wasn't so at least that is promising.

Stable at present. :):):)
Dusty
 
Stable is good. :) Thinking lots of good thoughts and praying for Matt. Does he feel pretty good overall?
 
Hey Julie,

Yeah he says he feels fine. It's a fine line between asking and asking too much! :lol:

To me at times he looks really good and other times he looks quite washed out but then he has just had 3 weeks in hospital and his sleep at home is a bit disrupted because of the drain, plus it is quite hot here at present.

If he says he feels fine and I am not seeing any obvious signs of pain then all is good. If the bloods support that then that will be the icing on the cake!

Dusty. :)
 
Yep, he did Dex, but he only has 2 subjects this year so he was home by lunch time every day.

Dusty. :)
 
Hiya Dusty

so glad everything's stable and going well. Stable is a good word!
Hope you're doing ok too?
take care
xxx
 
Thanks you Doug and Joan for your well wishes!

Emotionally feeling a bit up and down like a honeymooners nightie at present! :eek: :ylol2:

Matt had a bit of pain yesterday, not like his previous pain and he said it was more an annoyance than anything else, plus a low grade fever :( . Thankfully all seemed to resolve by the evening. He was on Panadol four times a day when he was in hospital but felt he didn't need it so has been taking nothing for quite a while. I think I will put him back on Panadol but only at breakfast and bedtime. I don't see how you can have a drain and not be a little bit uncomfortable and when I put it to him he agreed that it was so we may be on the right track.

Got his blood results today and I am so happy.......:emot-dance::emot-dance::emot-dance: His WCC is NORMAL! (10.6) and CRP is still above normal at 28.6 but it sure beats being the 300's. Plus he is feeling fine again today. Now all we have to do is keep producing the goods for the next few weeks...............my fingers are in a constant state of being crossed!

Dusty. :)
 
DustyKat said:
Emotionally feeling a bit up and down like a honeymooners nightie at present! :eek: :ylol2:
Click to expand...

Well, your emotions may be on a roller-coaster, but your thoughts, as usual, are always in the trough!!

Good to see the positive bloods!! I know you will remain vigilant till the surgery consult. Matt's in such good hands!!

Hmm, as I'm typing, they just interviewed J. Gerrard about the Oz wildfires!! What an awful summer for you guys. One side of Oz is under water and the other is on fire!!
 
Hi Dusty,glad to hear Matts blood tests ok and he is feeling a bit better.It is awful that people so young have to suffer.I think we are all keeping our fingers crossed for you all .
lots of love to you all.
 
Hi Dusty,
Been out of the loop for a while, so just catching up here.
Glad to hear thing's are improving for Matt. Hope his recovery continues to go well.
Sending best wishes to you all
And x
 
@ Dex, my thoughts are never in the trough, it's you that has the problem......:ylol2:

@ littlemish, thanks hun......ah they are cramping a bit! :lol:

@ clearwell, thank you so much for your well wishes. :hug:

@ Dougute, thanks mate. I think we can use all the prayers we can get!

@ Welshy, thanks buddy and I hope you are also well on the way to recovery!

ARGH AGAIN!!! :yfrown::yfrown::yfrown:

Matt still feeling well and looking good, YAY! Had bloods done yesterday and check up with GP this afternoon. I didn't go with him and when I rang to see how he got on he said the doc wants me to ring him.......boo!

His CRP is slightly lower (25) but his WCC is 13.5. The GP said his temp was sitting at the edge of a low grade fever and the mass he felt last week is larger. He thinks it is the abscess they found when he was in hospital but was too small to drain. He said nothing is urgent at this point but he feels it is going to grumble away and not get any better, only worse, so feels we should probably head back to Sydney.

BUT before we do anything he wants to speak with the Prof at RPA. Being late Friday afternoon he didn't think he would get onto him today so it would be fine to wait until Monday if he doesn't. I haven't heard back from the GP so I assume the Prof was gone for the weekend.

Hmmm, I wonder what Monday will hold.

Dusty, :voodoo:
 
oh dear :( sorry to hear Matt's still not right yet... maybe the abcess can be drained now?

good luck for Monday.. i've got my fingers crossed with you. x
 
Well, if it's going to happen anyway, maybe this will be for the best. I bet Matt is ready to get it over with and move on to the next chapter. This one has sucked long enough for him...and you too!!
 
So sorry to hear this Dusty, but keeping everything crossed that there's no need to head back to Sydney early.
Thinking of you, and Matt too,
And x
 
@ ding, thanks mate. I am hoping if it is the abscess then it won't have fistula involvement and we are only there a few days for them to drain it. I just wish everything was settled enough to get rid of it all.

@ Dex, thanks buddy, you know the ideal outcome for me, short of everything miraculously disappearing!, would be to role up to the hospital and find that the inflammation has reduced back to the original 100mm and they whip out all the offending crap. Yeah I'm fed up with it all, not for me but for Matt, it's breaking my heart seeing him receive the news of set back after set back. :(

@ Welshy, thanks hun. I have a feeling we will be heading to Sydney if any sort of treatment is required 'cause the GP doesn't think the local hospital is appropriate and I can't shake the feeling that something will need to be done sooner rather than later. :(

I guess one of my big fears is if we end up back in Sydney next week that may be his last chance lost and they may want to operate. The fear being that the inflammation still hasn't settled to any great degree.

This sucks, :(
Dusty

PS. See Dex, how spot on was I with the honeymooners nightie analogy! ;)
 
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Dear Dusty,
Honeymooners nightie! Good one! So happy to hear things are going well for Matt. In all of this up & down & all around, how is Roo doing?
Michele
 
Hey Michele,

Thanks! Yeah he's feeling good I just wish the bloods reflected that! ugh!

Roo is doing really well! Everything points to her still being firmly in remission, woohoo! :emot-dance::emot-dance::emot-dance:. Her vegan diet is suiting her and the psyllium husks are doing the trick with her short bowel syndrome. All is good.

Dusty. :)
 
Hi dustykat,
I just read this entire thread for the first time, being that I have not been able to spend a lot of time on the forum. I am truly sorry that Matt is going through all this. He has a great mum to help him get through it all.
I hope things start looking up for him, Maybe surgery sooner isnt a bad thing, if you know it has to be done anyway.
I am thinking of you all. take care
hugs to you
 
@ Rosemary, thank you so much for kind words and well wishes. :hug:

Well the GP spoke with the Prof today and before making any decisions about his ongoing care he wants a CT scan done. I have organised one for tomorrow morning, it wasn't hard to get an appointment when they asked what the clinical notes said and I mentioned pigtail drain and abscess, and the results will be sent to him to evaluate. So we'll just wait and see what the scan shows and what the Prof thinks.

Hell, I don't know anymore what is real and what isn't! Some days I think he looks well and other days I think he looks pale and drawn. Now I think his limp is getting worse! ugh!!! Two things I do know for sure is he is hovering around a low grade temp and he is as tired as all heck.

Pressing on, :eek:
Dusty
 
Ho boy, what a road for you both to have to take. Poor Matt. Been through the wringer and taking his mum along for the ride. Thoughts are with you both.
Michele
 
Awww thanks Michele. :hug:

GP rang this evening with the CT results. Ugh he is such a mumbler on the phone but I think the gist of it was they are pretty sure it is an abscess, he is sending the results to the Prof and see what he thinks. I'll get a copy of the report tomorrow and judge for myself.

In the meantime the GP is happy to sit on it and so am I as Matt has no new symptoms, well aside from the fact that I don't know if I'm hallucinating or not! :ywow:. So until I hear anything further we'll press on with his weekly bloods and GP visits.

Thanks guys for listening. If you had told me at the outset it would still be going on I wouldn't have believed you!

Dusty.:)
 
I had a doc like that once. My husband nick named him marbles, cause he talked like he had a fist full of marbles in his mouth.
 
Good to hear Matt's still hanging on in there Dusty, but maybe you could take his bed and get a much deserved rest?
Sending a big hug, xx
 
Good to hear, hope Matt is ok and you too Dusty, time for a big chillax?
Keep swimming
xxx
 
Thanks Michele, Welshy, Joan and Zoodles, your words and wishes are so appreciated! :hug:

It's been one of those days today where seeing things in black and white just rams it all home again big time. I know I deal with his drain twice a day everyday but envisioning what is going on inside well, it's a bummer.

I guess the GP mumbles even more than I realised because the radiologist doesn't think the mass is an abscess. He thinks it is a loop of jejunum that is obstructed or has a torsion and perhaps a fistula that is bypassing it??? Matt has no symptoms of either of these two things, so I have no idea what the hell is going on. After speaking with the GP I think he is still sceptical that an abscess has been ruled out. (((shrug)))

He also has some swelling of the right renal pelvis and ureter. Well that is just out and out deja vu 'cause that's exactly what Roo had from the bowel inflammation compressing the the structures.

The good news is the drain has done the trick and there is no cavity or evidence of the abscess left! YAY!

The GP has forwarded the results to the Prof so I'll just wait to see what his take is on things.

Not drowning yet, :eek2:
Dusty
 
Good news on the abscess!! I'm not sure what all the rest could mean but it sounds like it would create problems that would cause a great deal of pain. How has Matt's appetite been? Seems like digesting food would be a nightmare under that scenario. Well you said he has no symptoms and you've said before that he doesn't mask pain very well, so this is unlikely isn't it? I guess you're back to the wait and see game again. Ugghh!!
 
I am taking the good news and running with it! Especially since the other stuff I am going to look up so I know what you are talking about. As Mark said, sounds painful.
Good luck girl,
Michele
 
It sounds like a mixed bag, Dusty. I'm going with Michele and running with the good part!!

Keep treading water~~~~~~no drowning allowed.

Hugs,
 
Haha, I'll put my floaties on!

I so badly want to run with good stuff so I can keep that bloody black dog off my shoulder, he's nipping at my heels at the moment but I'm sure I can out run him!

That's the thing Dex, he doesn't have any symptoms of obstruction or torsion so I guess that may be why a fistula was thrown into the mix as a way of explaining things away but then again I could just be talkin' through me bum! He is only taking Panadol twice a day and has been going to school and will be attending residential school at university today so how obstructed or torsioned can he be?? Just doesn't make sense to me.

Anyway bloods again today and docs tomorrow so we'll see what they reveal.

Thanks guys, :)
Dusty
 
We'll be anxious to hear, Dusty. Oh and I have some BIG-A$$ floaties if you need them. :wink:

J.
 
Haha thanks guys!

Well sort of standing still at present which is far better than being worse!!!

Matt's feeling okay. He is attending an intensive school at the uni at present, they're long days and he is pretty whacked and feeling sore by the time he gets home but he is loving it so that's what counts!

The GP hasn't heard back from the Prof so I told him to stop sitting on his hands and make the first move. Matt's WCC is 13.2 so much the same. His CRP is higher, now 45, but the mass hasn't increased in size.

Just sittin' and wonderin', :shifty-t:
Dusty
 
it's certainly swings & roundabouts right now, huh? at least there are some steps in the right direction.. the abcess clearing is definitely a good thing, it's one less thing pulling him down.

let's hope everything else can get identified properly soon, and some treatment underway...
 
I can think of more than a few times when I have thought to myself, "I can handle whatever it is with a diagnosis and a plan!" You need the plan!!!!

I can't help but think they'll make one since you told them to quit sitting on their hands........:rof:

Hugs -
 
Boy, it is hard to wait for somebody to do something, isn't it? The waiting is the worst! Glad Matt is in school if it makes him happy.
Get yourself some rest, too!
Michele
 
@littlemissh - :lol:, cakes nom, nom, nom. :)

@ding - thanks mate. :)

@Julie - Ugh, every time we have a plan it goes AWOL! Boo! But yeah we should get another one when the docs stop circling each other like a couple of mongrel dogs! :ylol:

@Michele - Oh man waiting sure is the hardest and my oh my doesn't the mind play it's dirty little tricks then! :lol:. That's the other thing, I just can't seem to relax. I feel like I'm wound up and ready to take flight at any moment! I know it's because they could say; we want you back in Sydney at any time but it doesn't make me any less flighty! :eek2:

Matt's stable, not sure about me though! :):):)
Dusty
 
I sure hope Matt is on the mend, and that his mom is getting some rest and relaxation. I'm wishing you all the best.
 
If biscuits are crackers...what are cakes? Cause, I'd suggest a piece of cake maybe, but sitting and eating cakes plural would not be a good idea....not over here anyway! :):)

Just breathe Dusty:)
 
Awww thanks Andi, Dex and Welshy!

I rang the Profs secretary today and well she was a right pillock! Nice enough but no bloody idea and when I made the biggest mistake of my life and mentioned the *mass* she went into a flat spin and started firing questions at me like a blessed machine gun! Every second word was tumour and it took me forever and a day to calm her down! In the end, and after a few expletives, I told her I would get the GP to ring.

So the GP rang and said the Prof was happy to let things continue as is at present. He spoke at length with Matt and was also happy to let sleeping dogs lie. For Matt's sake I am happy to keep the status quo. I don't think he is significantly better but he certainly isn't any worse so that's gotta be good! Who knows, we may even make it to the 7th March after all!

Thanks for being here guys, I couldn't do it without you, :hug:
Dusty
 
Thinking of you and Matt, Dusty! Get some much needed, well-deserved rest :) Hopefully things will get better for him.
 
Hey there, thanks Michele, Dex, Welshy and Amanda! I am taking deep breaths and trying to get some R & R, not sure that I am excelling at that though! :ylol:

Worry, worry, worry, worry, maybe I should change my name to WorryKat! Haha the skills you develop to look at your kids without really looking at them! Anyway have been quietly (yes Dex, quietly!) stewing away worrying about Matt's level of fatigue, so rang the doc yesterday and had B12, Folate and Iron Studies added to his blood request.

Still on the standing routine of bloods Thursday and docs Friday, so I shall sit and take deep breaths and see what the end of the week brings.

Still chuggin' along, :)
Dusty
 
Thinking of you, Dusty, I DESPISE limbo! I'm sure you are watching him like a hawk. And sideways like this :yrolleyes:

You're a good Mama, even when your middle name is Worry.

Hugs,
 
I can see you there just knitting away in your rocking chair, quietly stewing away!! Hah, I bet the prof's nurse doesn't think you're quiet! Stop "stewing" and try to relax while you have the chance!!
 
:lol: Julie, yeah that's about how I look!

Are you stalking me again Dex!! How did you know I'm sittin' in ma rockin' chair clickin' them tha needles!!!! Hmph, the Prof's nurse probably thinks I'm a raving lunatic mother who can't cut the apron strings and I don't give a toss what she thinks! Now where are the scissors..............


jsin250l.jpg



:eek2::eek2::eek2:
Dusty
 
Tried to delete above post as it's sooooo behind the times due to my ridiculously slow computer but it won't let me! But whilst I am here faffing around i'll make the most of wishing you and matt well WorryCat.
 
You know, if you need to relax I am not opposed to flying around the world to come lay on the beach in Australia to keep you company!! Think they will let me do that at 8 months pregnant?? :)
 
@ Andi, thanks mate, I feel I could really use some prayers right now. :)

@ littlemissh, :lo: Don't worry about the post! I knew what you talking about and I reckon your definition is spot on! Thanks for the well wishes hun. :)

@ Amanda, 8 months!!! Holy cow that's flown by and you must be getting excited, I am! Nah I don't reckon they'll let take the long haul downunder, ;). Other problem is...I don't know nuthin' bout birthin' babies! (in my best Prissy voice). :ylol:

Dusty. :)
 
ahaha!!! :) Well damn. I thought we had a plan there!!

I know, can't believe it. It has gone by completely fast!! I am very excited! Little girl weighs just over 3 pounds!!

Seriously though, I hope that you find a way to relax and take it easy a little bit. You've been through so much, you deserve some relaxation as well as a mom of the lifetime award!!! I have to say, I don't know what I would have done without my mom by me. It really means the world to us to have people care so much about us when we are down for the count. Matt and Roo are very lucky to have you!!!
 
Awww, thanks Amanda. :blush:


YEE HAW!!!​


Just back from the GP and we are gonna make it to the 7th March! :):):)

WCC down to 6.5, CRP still climbing but ever so slowly from 45 last week to 50 today. The B12 result isn't in yet but taking everything into account (raised CRP) it would appear he is not iron deficient. Reading through the side effects of some of the meds he is on I guess I will put the some of the fatigue down to that. Hb a little low but steady and the MASS is smaller!!!

GP still not sure why he spiked the temp based on these results but I guess that Crohns for ya!

Thank you, thank you, thank you everyone for being here for us, it truly does make difference!

So happy, happy, happy, :):):)
Dusty
 
That's great Dusty!! :) It does help to have people to talk to about all of this. Especially people who understand it all. Keep on keepin' on!!!
 
Hot diggity dog!!! Maybe you can get some sleep now??? Turn off the worry button for just a bit! I am so, so happy for the both of you!
Michele
 
DustyKat said:
Awww, thanks Amanda. :blush:


YEE HAW!!!​


Just back from the GP and we are gonna make it to the 7th March! :):):)

WCC down to 6.5, CRP still climbing but ever so slowly from 45 last week to 50 today. The B12 result isn't in yet but taking everything into account (raised CRP) it would appear he is not iron deficient. Reading through the side effects of some of the meds he is on I guess I will put the some of the fatigue down to that. Hb a little low but steady and the MASS is smaller!!!

GP still not sure why he spiked the temp based on these results but I guess that Crohns for ya!

Thank you, thank you, thank you everyone for being here for us, it truly does make difference!

So happy, happy, happy, :):):)
Dusty
Click to expand...

YAY!!! Good to hear!
 

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