- Joined
- Jan 13, 2013
- Messages
- 36
Hey all,
I thought I would update now that we are back from our second opinion in Cincinnatti. My 12 yr old son was confirmed to have the moderate to severe range of Crohn's disease, and the doctors up there were very helpful with answering questions and discussing a treatment plan. They recommended methotrexate injections, whereas our local doc wanted to do 6MP. After Once we returned home, we conferred with our Ped GI doc here, discussed the options, and decided to begin Methotrexate injections two weeks ago, while simultaneously weaning my son slowly off the budesonide and Asacol. Since we started the Methotrexate injection, my son has felt worse than he did before we started it. He has barely moved off the couch, with waves of pain that come and go, and we realized tonight his BMs have become less frequent, down to maybe once a week. I was wondering what other parents have kids doing these injections, and how long does it take to feel better on them? Do the side effects get better? How long does it take for the symptoms to improve? Do most kids on this lay around in pain the first few weeks? We want to give this med a fair trial before trying something else, but currently he is actually feeling worse on this med than he was before he started it. I was also a little nervous that his BM had slowed down so much. I know I should be on top of all this stuff, but with monitoring everything else, I hadn't thought to ask him in the last two weeks about his bm's. Diarrhea has never been one of his symptoms; in fact, before he was diagnosed with Crohn's apparently he was constipated and we hadn't realized it since we had not been questioning him about his bowel habits. Don't all 12 year old sons love it when their moms quiz them about poop? lol Anyway, All of his bloodwork from the past couple months have shown lowered inflammation levels, which is good news. Although he has still had a lot of pain. We also have him taking D3, Calcium, and folate in addition to his regular vitamins, per his docs recommendations.
Thanks for all your input, and I just want to say what a blessing these boards are. My husband and I have really wrestled so much with getting the right care for our son, and making these decisions regarding meds and diet. Sometimes it feels like this is the only place where others seem to understand what we are going through. What a breath of fresh air all of you are. God bless each of you, and thanks for feedback. :ghug:
I thought I would update now that we are back from our second opinion in Cincinnatti. My 12 yr old son was confirmed to have the moderate to severe range of Crohn's disease, and the doctors up there were very helpful with answering questions and discussing a treatment plan. They recommended methotrexate injections, whereas our local doc wanted to do 6MP. After Once we returned home, we conferred with our Ped GI doc here, discussed the options, and decided to begin Methotrexate injections two weeks ago, while simultaneously weaning my son slowly off the budesonide and Asacol. Since we started the Methotrexate injection, my son has felt worse than he did before we started it. He has barely moved off the couch, with waves of pain that come and go, and we realized tonight his BMs have become less frequent, down to maybe once a week. I was wondering what other parents have kids doing these injections, and how long does it take to feel better on them? Do the side effects get better? How long does it take for the symptoms to improve? Do most kids on this lay around in pain the first few weeks? We want to give this med a fair trial before trying something else, but currently he is actually feeling worse on this med than he was before he started it. I was also a little nervous that his BM had slowed down so much. I know I should be on top of all this stuff, but with monitoring everything else, I hadn't thought to ask him in the last two weeks about his bm's. Diarrhea has never been one of his symptoms; in fact, before he was diagnosed with Crohn's apparently he was constipated and we hadn't realized it since we had not been questioning him about his bowel habits. Don't all 12 year old sons love it when their moms quiz them about poop? lol Anyway, All of his bloodwork from the past couple months have shown lowered inflammation levels, which is good news. Although he has still had a lot of pain. We also have him taking D3, Calcium, and folate in addition to his regular vitamins, per his docs recommendations.
Thanks for all your input, and I just want to say what a blessing these boards are. My husband and I have really wrestled so much with getting the right care for our son, and making these decisions regarding meds and diet. Sometimes it feels like this is the only place where others seem to understand what we are going through. What a breath of fresh air all of you are. God bless each of you, and thanks for feedback. :ghug:
