- Joined
- Oct 11, 2009
- Messages
- 872
So, I spoke too soon about being in remission. Last week, I was still feeling pretty good but I was having some issues with not being able to go to the bathroom for days at a time (never my problem before), so my Dr decided that I should have a test done – not a colonoscopy, but it sounded pretty much the same to me- and I had to get do bowel prep.
So I took the bowel prep around 5 PM, and nothing happened until 1AM at which point I still wasn’t going to the bathroom but I did start throwing up like crazy. That went on for the next 10 hours, at which point I finally started having D. All I was throwing up was yellow clear stomach acid the whole time. I missed my appointment because the prep hadn’t worked fast enough and had just started working about the time the test was supposed to take place. I was also in too much pain to move at the time. I was in more pain than I had ever been in my life (back, stomach, and etcetera), so I decided that I needed to go to the ER. I threw up more bile all the way there, and continued until I was hooked up to the IV and given some anti-nausea stuff. All in all, I was throwing up pretty non-stop for over 12 hours. I have had about 12 colonoscopies in my life, and I have never had a reaction to prep like that before.
I have never gone to the ER for my Crohns before because I have always felt that they wouldn’t know what to do with me, but they actually admitted me right away (it might have helped that I was crying and vomiting right in front of them) and they were all wonderful the whole time.
I got another CT scan while I was there that showed that I have even more disease than in November when I was having the most problems. The idea of a bowel removal was brought up again.
Despite all of this, I am still feeling a lot better than I had been, and my spirits are still high. Despite the active disease, the Cimzia is still really helping me pain wise, and I have been able to eat more normally than I have since I got this disease without problems.
I am going through a bit of a “who am I and what do I want to do with my life?” moment right now. I think that a lot of it has to do with the fact that I have been doing so much better lately. I think I finally feel like I have the chance to choose what my life might look like, rather than just basing my whole existence on this disease.
That’s probably enough for now. Thanks for reading this and thanks for the support that you guys always give. Even though I haven’t written in a while, I have still been checking in from time to time. This forum really helps me get through this disease without feeling so alone. It helps all of the bad stuff feel a lot less frightening too.
So I took the bowel prep around 5 PM, and nothing happened until 1AM at which point I still wasn’t going to the bathroom but I did start throwing up like crazy. That went on for the next 10 hours, at which point I finally started having D. All I was throwing up was yellow clear stomach acid the whole time. I missed my appointment because the prep hadn’t worked fast enough and had just started working about the time the test was supposed to take place. I was also in too much pain to move at the time. I was in more pain than I had ever been in my life (back, stomach, and etcetera), so I decided that I needed to go to the ER. I threw up more bile all the way there, and continued until I was hooked up to the IV and given some anti-nausea stuff. All in all, I was throwing up pretty non-stop for over 12 hours. I have had about 12 colonoscopies in my life, and I have never had a reaction to prep like that before.
I have never gone to the ER for my Crohns before because I have always felt that they wouldn’t know what to do with me, but they actually admitted me right away (it might have helped that I was crying and vomiting right in front of them) and they were all wonderful the whole time.
I got another CT scan while I was there that showed that I have even more disease than in November when I was having the most problems. The idea of a bowel removal was brought up again.
Despite all of this, I am still feeling a lot better than I had been, and my spirits are still high. Despite the active disease, the Cimzia is still really helping me pain wise, and I have been able to eat more normally than I have since I got this disease without problems.
I am going through a bit of a “who am I and what do I want to do with my life?” moment right now. I think that a lot of it has to do with the fact that I have been doing so much better lately. I think I finally feel like I have the chance to choose what my life might look like, rather than just basing my whole existence on this disease.
That’s probably enough for now. Thanks for reading this and thanks for the support that you guys always give. Even though I haven’t written in a while, I have still been checking in from time to time. This forum really helps me get through this disease without feeling so alone. It helps all of the bad stuff feel a lot less frightening too.
