Waiting to be diagnosed.

[Nikki7223]

Hi everyone! First of all thank you for having this page.
I am currently waiting to see my GI specialist to get my first colonospy. I have been having problems with diarreha and pain in my lower right side for going on three months. Until all of this I never realized how embarrassed I was about all of this.
I am being tested due to family history. My mom and Aunt have IBS and all three of my Uncles (same side of family) have Crohns. The only difference my youngest uncle passed away when he was 25 due to Crohns and Colitis. His small intestine died and then went into liver failure. He had surgeries and was in the hospital his last year or so.
All of this sounds so scary. I am scared about every thing and i am only 3 years older than my Uncle at his time of passing. I know when you first hear about it, it doesn't sound bad until you fully start researching it. I am married with two daughters who are 3 and 7. I really have not talked a lot to my husband about it. I was going to hold off telling him everything until I was for sure I have it.
I guess I am here to look for support and help moving forward!
Thanks again!

 

[Keepingfaith]

Hello! Welcome to the forum! This is a great place to get to meet other people with Crohn's & receive a lot of support!

I am SO sorry for your loss! This disease can hurt the strongest of people! We are here for you if you ever want to ask questions about Crohn's, medications, symptoms etc. No question is too 'gross' Crohn's is rarely fatal if taken care of in time & you are on the right track! Kuddos for you taking for control of your health!

There is an Undiagnosed Club on here & if you haven't already, I would pop in over there! They are a great bunch of people & many of them are in your same situation: family history of Crohn's yet no DX yet.

Take care!

 

[David]

Hi Nikki and welcome

I'm sorry you're having to go through this. Hopefully it turns out to be something less serious than Crohn's Disease but there are a ton of great treatment options out there these days if it is indeed what you have. I know being undiagnosed can be really frustrating. We're here to help you every step of the way.

All my best to you.