Hey everyone,
It has been awhile since I posted on here. I have been lurking around though. I have not been diagnosed with crohn's, but have been having gut issues for about almost three years now. I have had the following tests, Blood work, abdominal ultrasound, MRE of small bowel( 2 years ago), colonoscopy(last year) CT scan without the drink( year and half ago). These tests never showed anything so my gastro doctor keeps saying I Have IBS.
I have other health issues as well ( Interstitial Cystitis, fibromyalgia, Chronic immune deficiency, chemical sensitivities, and supposed IBS among other stuff).
My gut has not been too bad this past year actually. I mean I would still have my days, but all in all it has not been bad, up until recently. I will say that this last four months I have been under tremendous stress due to some personal issues my family and I have been going through. This past Monday I started getting the chills in the afternoon. By evening I had a fever. My temperature hovered between 99.9 and 100.3 so it was not super high but enough to where I felt awful. I also had a horrid headache and awful muscle pains. I figured I was maybe getting a flu or some bug. During the night I still had awful chills and was sweating as well. I woke up Tuesday and went to go pee and on my way back to bed I felt kind of clammy and felt like I may vomit. I laid down for about an hour more and that sick feeling passed. I got up and ate something and just sat around that day. I still had the fever about the same( 100.1). By Wednesday my fever was gone, but I started getting some discomfort in my gut, like crampy waves of pain near the navel area. They seemed to get worse as the day went on. I never vomited and never had diarrhea. I had a BM on Tuesday Morning and again on Tuesday evening. I also got my period on Tuesday so that did not help matters as I always have pain when I get my period. But this gut pain was too high up for that. It was near my navel area. I went to bed Wednesday night and woke up around midnight with that awful crampy wave of pain again in my mid abdomen near my navel. It was pretty bad. I felt slightly sick, but the not too much nausea, it was just the pain. I also chewed up some ant acid pills because my stomach felt like it was burning somewhat.
I could not get comfortable and that crampy pain was terrible. I called the Gastro doc on call and she was not helpful at all. We just decided to go to the Emergency Room. They took blood and I gave a urine sample. That all came back normal. The ER doc said he was not sure what was going on, but he did not think it was life threatening at that point. We discussed the possibility of it maybe being an ulcer or gastritis, but again he was not sure. He said the blood work ruled out anything like pancreatitis or liver or gallstone issues. So of course they sent me home and told me to follow up with my Gastro doctor! Again, I swear I will not go back to the ER unless I am near dead as they are no help at all! I talked to my gastro doc's nurse and he said I should just be on a liquid diet for a day or so and then slowly add low residue foods. He also said I could try and take zantac or something. He was thinking it was possibly IBS related!!! WHAt???? Since when does IBS wake you up in crampy waves of pain like that in the mid and upper abdomen? Also what about that whole fever thing? I mean it was strange. When I had the chills and fever and muscle pains, I really thought I was just getting a flu virus or something. At that point I did not feel sick and my gut was not really bothering me at all. The gut pain started after the fever left. It was not the stomach flu either as I did not vomit nor did I have the runs which I always get with the stomach bug. What the hell could be wrong with me? I know I have H-pylori, I have had it for years( most people do have it in their guts). I wonder if will all the stress I have been under could have caused gastritis or an ulcer to form. I am not able to take the treatment for H-pylori as I have too many allergies and adverse reactions to most all antibiotics and I cannot take PPIS at all.
I am beyond frustrated with the ER and my gastro doc. I mean my gastro wants me to do the liquid diet a day or so and then just go bland and update him in a week unless things get way worse then I am to call him right away. Sorry for this long post, but does anyone have any ideas here?? Was the fever related to what is going on in my gut? But then why did I have the headache and muscle pains all over? The fever is gone now, but I am still having the crampy gut pain near my navel and upper gut. The crampy pains are not as bad now since I have only been drinking liquids, but I do still have some slight burning in my gut. I am afraid to eat any solids again though... :sign0085:
It has been awhile since I posted on here. I have been lurking around though. I have not been diagnosed with crohn's, but have been having gut issues for about almost three years now. I have had the following tests, Blood work, abdominal ultrasound, MRE of small bowel( 2 years ago), colonoscopy(last year) CT scan without the drink( year and half ago). These tests never showed anything so my gastro doctor keeps saying I Have IBS.
I have other health issues as well ( Interstitial Cystitis, fibromyalgia, Chronic immune deficiency, chemical sensitivities, and supposed IBS among other stuff).
My gut has not been too bad this past year actually. I mean I would still have my days, but all in all it has not been bad, up until recently. I will say that this last four months I have been under tremendous stress due to some personal issues my family and I have been going through. This past Monday I started getting the chills in the afternoon. By evening I had a fever. My temperature hovered between 99.9 and 100.3 so it was not super high but enough to where I felt awful. I also had a horrid headache and awful muscle pains. I figured I was maybe getting a flu or some bug. During the night I still had awful chills and was sweating as well. I woke up Tuesday and went to go pee and on my way back to bed I felt kind of clammy and felt like I may vomit. I laid down for about an hour more and that sick feeling passed. I got up and ate something and just sat around that day. I still had the fever about the same( 100.1). By Wednesday my fever was gone, but I started getting some discomfort in my gut, like crampy waves of pain near the navel area. They seemed to get worse as the day went on. I never vomited and never had diarrhea. I had a BM on Tuesday Morning and again on Tuesday evening. I also got my period on Tuesday so that did not help matters as I always have pain when I get my period. But this gut pain was too high up for that. It was near my navel area. I went to bed Wednesday night and woke up around midnight with that awful crampy wave of pain again in my mid abdomen near my navel. It was pretty bad. I felt slightly sick, but the not too much nausea, it was just the pain. I also chewed up some ant acid pills because my stomach felt like it was burning somewhat.
I could not get comfortable and that crampy pain was terrible. I called the Gastro doc on call and she was not helpful at all. We just decided to go to the Emergency Room. They took blood and I gave a urine sample. That all came back normal. The ER doc said he was not sure what was going on, but he did not think it was life threatening at that point. We discussed the possibility of it maybe being an ulcer or gastritis, but again he was not sure. He said the blood work ruled out anything like pancreatitis or liver or gallstone issues. So of course they sent me home and told me to follow up with my Gastro doctor! Again, I swear I will not go back to the ER unless I am near dead as they are no help at all! I talked to my gastro doc's nurse and he said I should just be on a liquid diet for a day or so and then slowly add low residue foods. He also said I could try and take zantac or something. He was thinking it was possibly IBS related!!! WHAt???? Since when does IBS wake you up in crampy waves of pain like that in the mid and upper abdomen? Also what about that whole fever thing? I mean it was strange. When I had the chills and fever and muscle pains, I really thought I was just getting a flu virus or something. At that point I did not feel sick and my gut was not really bothering me at all. The gut pain started after the fever left. It was not the stomach flu either as I did not vomit nor did I have the runs which I always get with the stomach bug. What the hell could be wrong with me? I know I have H-pylori, I have had it for years( most people do have it in their guts). I wonder if will all the stress I have been under could have caused gastritis or an ulcer to form. I am not able to take the treatment for H-pylori as I have too many allergies and adverse reactions to most all antibiotics and I cannot take PPIS at all.
I am beyond frustrated with the ER and my gastro doc. I mean my gastro wants me to do the liquid diet a day or so and then just go bland and update him in a week unless things get way worse then I am to call him right away. Sorry for this long post, but does anyone have any ideas here?? Was the fever related to what is going on in my gut? But then why did I have the headache and muscle pains all over? The fever is gone now, but I am still having the crampy gut pain near my navel and upper gut. The crampy pains are not as bad now since I have only been drinking liquids, but I do still have some slight burning in my gut. I am afraid to eat any solids again though... :sign0085:
