What do you do when you start seeing blood again?

[cookieoftruth]

what do you do when you start seeing blood again?

I kind of want to just be extra careful with that i eat right now and not tell my doctor unless it gets worse because i never want to take prednisone again in my whole life lol. is there anything you do when you start seeing blood again to hopefully try and get better? im currently on remicade, iron infusions, asacol, 6-mp calcium and a multivitamin. Usually when this happens to me i just slowly start getting worse until i land in the hospital (have been in the hospital 3 times in the past year).

 

[cookieoftruth]

also incase it means anything ive had it for the past two days, bright pink/red, a very very very very little bit in like mucus when i wipe. and no i dont think its a hemroid. For me i started bleeding way before i ever got diagnosed, before stomach pains and always had that sort of bleeding and was checked for hemmrhoids and that wasnt it.

 

[darkmuse]

First of all, keep track of how much blood you're seeing and how often. If there's more than a tablespoon at a time you need to notify him, even if you're loathe to take Prednisone again. I understand why you wouldn't want to take it. It gave me horrible night-sweats, huge emotional swings, made me swell, I ate all the time, and it made me gain almost fifty pounds! There were only two upsides that I saw to Prednisone: it made my condition better and while on it....I felt like Superwoman.

You don't need to keep this from your doctor. How can he help you if you keep him in the dark? Maybe he can switch your med to something better, if the Remicade isn't working for you. I took Remicade for almost a year, but stopped as it stopped working for me. My infusions started out about two months apart, but by the time we stopped them I was having them every four weeks, needing it sooner.

I wish you well...

 

[cookieoftruth]

hm thats an interesting point, the needing remicade sooner. i had to get remicade at first to help me get off that evil prednisone (was on it for like 10 or 11 months) but anyways i was fine with the first remicade doses that was like once a week, then in a month and this is i believe the first one in 2 months so maybe i need it sooner. thanks tons.

 

[Johnnysmom]

Don't be afraid to talk to your Dr. about it. With all the information they can hopefully put your mind at ease or give you several different options. My son started bleeding the very day his taper started on Pred I called the nurse at G.I. clinic fearing they would immediately up his dose. She told me it was not uncommon to have some bleeding when taper starts and wait and see. It lasted another day or two and went away. It started again when he started iron pills when I called (same fear) they asked me lots of questions and felt that it was from large stools and constipation but did a rectal exam just to be sure. They put him on Miralax and again it went away. There are other options besides Pred and it might not even get to that but have the conversation with them. If it is serious you may wind up in the hospital again on an even higher dose. With all the information, if you trust your Dr. you should be able to come to an acceptable decision. Good luck. Hang in there.

 

[chrisnsteph1022]

I would call the doc. It's your right to refuse certain medications. I've had two different GIs this year (had to switch due to insurance) try to put me on prednisone. I politely told them that I would not be taking pred unless it was literally life or death, as the side effects are too detrimental to my mental health. They both respected that decision and offered other alternatives (switching biologics, taking Entocort instead, etc.).

 

[KayleighMeek]

I'm sorry your having this problem I am going through the same I am on my last week of pred and the past few weeks noticing more mucus and blood. This time on pred hasnt been as bad as in the past. I am on methotrexate but I don't hold out much hope for it working plus it sending my blood work all out of whack. I would defiantly talk to your dr if you start feeling worse or notice more blood, I'm playing the waiting game at the moment with symptoms it can be so frustrating. I hope you feel better soon x