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Crohn's Disease Forum

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Joined
Feb 7, 2010
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Hello people,

I am a 18 year old guy (almost 19) who goes to school and is doing pretty fine in life. I have been found with Crohn's about 2-3 years ago, getting it from my dad who has much more severe case. My mom has Gluten intolerance, which i also have a little bit.

My crohn's is a bit mixed but i am happy to know that some people here have some of the symptoms i have to the way I feel is not specific.
My Diet corresponds with semi-vegetarianism, where i only eat chicken and some sea food, never having much taste for the red meat. I love cheese but hate yogourt, and I tend to drink 1% milk rather than 2% like a lot of people. My favourite foods are pastas, casseroles and bakery sweets. I don't drink alcohol much, as in maybe once a month or less. I know which food will make me feel bloated or full and what i can digest easily and what i can't ( fast foods, fried food, red meat, a lot of pasta or a lot of bread takes time).
What I find funny here is that sometimes I feel so hungry, so empty, that there is a slight pain right in the stomach where the duodenum starts. This Part of my stomach is where the pain generally occurs and this can happen with any type of food.

I am currently taking Pentasa 4 pills a day with Folic Acid and Prevacid because I'M really bad with acidity. This helps a lot, when I have tested a lot of other medicines and none have proven to work. I have never been keen on taking meds much, until recently i had an appointment with my doc who put me back on pentasa (jan 11, 2010)... The thing I don't understand is that My crohn's is Not with Diarrhea or regular flair ups.

I am mostly constipated when I have flair ups, these happening about once every third month or when i have neglected my diet for a day or two (this is rare). Another funny thing is that I have not taken meds except prevacid between end february 2009 to around christmas. I don't recall having a flair up with pain or anything that could have put me in the slow down mode.

I am in the 5% of people who can't tolerate Purinethol, giving me Pancreatitis when I have taken it. This pancreatitis has happened twice in a year, once on meds and the second time because i had stock up on way too much chinese food.

Right now I am concerned about whether my meds (pentasa) are doing anything at all, except thinning my hair, since I feel like i was better before taking them. In The last week until now, I have felt as if I was constipated most of the time and with this i felt some inflammation pain in my large intestine. My Stomach itself is acting cranked up. It just feels as if the Pentasa are taking so much time to adapt itself and i wonder how long it'll kick back and work. I know that pentasa is suppose to work well within the small intestine and mostly with the large intestine up to the colon... but, sometimes i get scared and I don't know what to do.

I thought about laxatives, or some fiber that could help me pass stool easily and relax my large intestine for a while but I guess i'll have to call my doc to ask.

anyone has suggestions ? Regards?

Thank you!
 
I would suggest to call your doctor and ask before taking any laxatives.
I did want to welcome you here though :)

I was on Pentasa a long time ago cannot give much advice on it as I was really sick while I was taking it at the time. It was stopped after my surgeries. Possibly someone on here can give you more advice on it.
 
Welcome to the forum - I have never taken Pentasa so can't help there but there are a lot of people full of wisdom on the site! :)
 
Hi there and welcome... I am on Pentasa and the 4th or 5th time around in 17 years. Everyone is different with Pentasa but it is the mild to moderate drug and I have no ill side effects and I always take food with my meds. Your disease maybe progressing, and you might need a stronger drug. I find if I dont change my drugs every so now and then it stops working. Pentasa takes a while to work. I am also on Entocort and seems to be helping, I had a 1.5 month flare and finally taming down. As others say here, see your GI, laxatives should not been taken regularly, you may have to change your diet. Let us know how you keep on.
 
Welcome! I was on Pentasa for 2 years and did very well with it. I don't know how long it actually took to work because I was on Prednisone as well when I started it. I found that if you up your fibre (be it throught diet, or supplements like Benefibre) that helped with the constipation. My GI also said I should take stool softeners and a laxative as needed. But, every dr and every person is different, so ask your dr what they recommend.

Good luck to you!

Cindy
 
Hi there i have the same symptoms as you and they started at around 19. I am now 28. It's been 5 months since i've been diagnosed. I've been living with symptons since 19. They thought it was only gluten intolerance as i have that too. I'm currently on Pentasa granules. They work well for me. I sometimes get constipated when on it. My only side affect at the moment it loss of hair! Aghhh! I find that if I increase my fruit intake especially plums and fruits that are juicy. It helps. I've asked my doc about the aches and pains you've described as i had them and he just said it's common.
Hope that helps a bit. I find movement (exercise) and rubbing stomach from top to bottom many times helps bowel movement.
 
Hi Marc
and welcome

I've been on Pentasa for many years now, and it's been ok for me too, but it does take a while to kick in as it's a slow release med, and it's also quite mild on it's own, for mild to moderate pain. Maybe consider another med to compliment the Pentasa?
I wouldn't start the vicious circle of laxatives if I were you, alternating D with C, not good, can cause a blockage, I'd see your doc first and explain about the C.
Sounds like you have a good diet tho,
have a read around the threads, lots of info on meds and diet
good luck
Joan xx
 

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