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Jan 28, 2008
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I am currently 18 suffering from Ulcerative Colitis and because of this I also have Sclerosing Cholongitis (Liver Problems). I have had IBD for 2 years now and have managed to finish High School without too much trouble since it was close to home and my classes and lockers are close to the toilets. But know that I am off the Prednisolone i have been feeling very unwell and the doctor is trying to not put be back on them because he said I have already used them longer then I was supposed to and it could be bad for my health.

In less than a week I will be starting University. The problem is its far to get to and I dunno where the toilets are and how long my classes go for and what I say when I need to leave during classes?

Main Problems
Worried about getting there (1Hr Train ride)
Do I tell my teachers i have IBD and might need to leave classes? (dunno how this works at Uni)
Eating...
Toilet Locations/ Classes on campus
Days absent or Late because of IBD?
 
hi pitrof. first of all, well done for sticking it out and completing high school despite having UC problems.

it seems fair enough that your gp is concerned about the long term use of steroids, but i would think he/she then has to come up with an alternative for you, particularly as you are feeling unwell now you are off medication. i'd suggest thats the first direction to go in - get some other meds.

maybe if you do get some treatment working before you start uni, you'll be able to guage the length of time you can go between toilet visits, and time your journeys accordingly. i'd advise letting them know of your condition and its effects on your time-keeping, and your need to be excused from studies when necessary. maybe a letter to the personnel dept asking all relevant staff to be made aware, and/or a little note you can show to the tutor when you need to leave the room..?

regarding the other uni worries, maybe a phone call before you start, & just tell someone in admin/personnel the various issues... i'm sure they'll have dealt with other students with conditions that require a bit of help and understanding.

good luck! :)
 
Hey pitrof

There are a couple of us on this board that are in college and some in high school. I would say that if you are definitely in a flare right now, to go and talk to your professors about it. Just give them a heads up through a meeting, phone call, or email. In college it doesn't so much matter that you walk out of class to go to the bathroom. Just get up and go. Some people even leave classes early due to other committments or from boredom, so don't hesitate to just get up and go if you have to. But if you are going to be doing this all of the time, it would be nice to let your professors know. Some classes have attendance policies, and in those classes, you may have to talk to your advisor or the dean to be excused from that portion of the class. Most professors are willing to work with the student... the only problems I've ever had in my past were with a TA from Singapore and she seemed to think that I was able to give a speech from the hospital after a colonoscopy... so she gave me a D in the class and I moved on (pick your battles, you know?)

As far as class length, I'm sure you have been or will be provided with a schedule of classes that will tell you the length. If your school has an online program like we do, it is probably located there. (Usually you login with your student ID number or a combination of your name)

With the bathrooms and class locations, I would suggest going to campus before you actually start classes and walking your schedule. Go find your classes, get accompanied to the campus, and find your bathrooms. Your school should have a map of the campus somewhere (maybe online) and you could print it off and add in your own little marks to tell you where the potties are :) I would actually suggest you do this regardless on having UC... any student needs to become familiar with their campus before they start.

The bus ride is a tough one, I would suggest driving yourself to campus so you could stop and go to the bathroom if you needed to, but if that is not an option, just try to control what you eat before you leave. Last year I had a 7:30 A.M. class and I would wake up at 5:45 and allow myself an hour to use the bathroom to make sure everything was out of me, and then I would only drink water. That got me through my two morning classes and by 10 A.M. I would eat some breakfast.

Also if Prednisone isn't working anymore, maybe look into other treatments. I'm not sure if Remicade is used for UC, as I have Crohn's Disease, but It worked wonders for me. Currently I am taking Humira, and its doing pretty well too.

I hope this helps!
 
Hi Pitrof, Welcome to the forum. Congrats on finishing high school. Tho I am not a college aged individual, I understand your concerns. But I think you have to set a priority list. Getting into uni, and finishing... IS an important and worthwhile goal. However, your FIRST responsibility is your health. It has to come first. Your doc. HAS to be consulted... you'll need a working drug/personal regimen to enable you to tackle uni.. If pred. is off the table because of how much/long you've been on it, then he/she has to provide you with alternatives.

The train ride sounds daunting, but I think if you prepare for it before hand, and scout out the loo locations at the station and on the train (hopefully there is one) then you should do OK. You don't say where you are from, but if it's in the UK, think our UK members can tell you about getting a special key to loo.

As for telling your teachers, my stance would be an overwhelming YES. you've got a real challenge to deal with, and it is going to present unique situations. I would advise all of your profs/instructors that you have this condition, and that you are going to endeavour your best to cope with it while in university, but it has a mind of it's own, and when push comes to shove, it really calls the shots. (Notice how I spelled that, so tempting to mis-spell it - dont' get me wrong, I'm not making light of your situation, but I usually try to see the humour in "OUR" situation, OK? Just one of my methods of coping, but then again, I'm a looney).

Eating... That's a trial N error situation for a lot of us when it comes to eating outside the home. Pack a lunch, lite snack, to tide you over. Try the food there, see how you make out. Given time, you'll probablly learn/adapt to college fare.

If you've advised your teachers, then see if there are guidance counselors, etc on campus .. health nurse, etc.., who can advise you on this. Think you'll learn that you aren't the 1st student they've had with this ailment, and they'll likely already have some things in place to make your transition to college easier. It certainly doesn't hurt to ask. And in the extremely unlikely event they don't, it is as good a time as any for them to tackle the issue. you're a student, its their responsibility to put measures in place to assist you in this. don't settle for less

Think that pretty much covers most of the points you raised. I'll address one I think is 'between' your lines. Think that you are compounding your fears, and letting them grow out of proportion. not that the concerns you listed are in any way ingenuine. they are all real. But, like any group of concerns, if you lump them all together at once, they can seem overwhelming, even insurmountable.
that's not the case.. you just need to break them down.. tackle them one at a time.. reduce them to a 'manageable' level you can cope with, with your health issues. You can do this. worst case scenario, you have to compromise, maybe take a little longer (with health considerations/interruptions) longer than your peers. Big deal. do you want to get thru uni.? think you do, else why go, right? Life throws a lot of obstacles in our path, be on your own side. Don't go putting any in your path... if they are going to surface, let them do it on their own. OK, enuff of my long winded ramble. welcome to the forum, all the best.
 
Last edited:
Pitrof said:
I am currently 18 suffering from Ulcerative Colitis and because of this I also have Sclerosing Cholongitis (Liver Problems). I have had IBD for 2 years now and have managed to finish High School without too much trouble since it was close to home and my classes and lockers are close to the toilets. But know that I am off the Prednisolone i have been feeling very unwell and the doctor is trying to not put be back on them because he said I have already used them longer then I was supposed to and it could be bad for my health.

In less than a week I will be starting University. The problem is its far to get to and I dunno where the toilets are and how long my classes go for and what I say when I need to leave during classes?

Main Problems
Worried about getting there (1Hr Train ride)
Do I tell my teachers i have IBD and might need to leave classes? (dunno how this works at Uni)
Eating...
Toilet Locations/ Classes on campus
Days absent or Late because of IBD?

I'd defiantly let the university know about it. You can get extensions on deadlines and additional time for exams sometimes.
 

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