When your on a medicine that works, life doesnt seem real.

[sashaz]

Im on Humira and have taken my second week double injection. Luckily it is working and I am very happy. YET i cant help feeling its a false reality. I dont want to get into bad habits because I can eat a few more things. This medicine isnt for ever. So in basis i am worried that when i come off I go back to being ill and would have picked up bad habits of eating stuff i wouldnt have eaten usually. Then it makes me think whats the point of the medicine if I cant be without it?

I dont know I am not a great writer to say what i mean.

 

[Manzyb]

You need to just enjoy being on the Humira and enjoy feeling well. There's always going to be something in the back of your mind of "whatif it stops working" or whatever, but maybe for you... Humira will work for many years and you will feel great for a long time.

Truthfully, when I get to points when I'm in huge flares, it doesn't matter what I eat. Good choices, bad choices... its all the same and all make me feel equally as ******.

I hope this helps, but in my opinion, you really just need to enjoy feeling well.

 

[sashaz]

Thank you I am enjoying it and have to live for now. Tkank you again.

 

[moogie]

I agree,

we have tio live day to day. Tomorrow is far away and today well I'm going to eat that nice Poutine with extra sauce!!!

hmmm

Live your life while it's good.

 

[jlanier]

I have thought similarly to that as well. Im Humira as well, and it appears that we might have started at the same time, and havent been in any pain since the first surgery i had in august. I think for us the reality is that there is always the potential for things to go totally south tomorrow when today we are feeling perfect. That is one of the perks of having this disease. However, we can never stop living, and let the disease take control of us. I think it is important for us not to live in fear that tomorrow we could possibly be in a flare. I definitely understand where you are coming from with thinking whats the point of taking the drugs when you are feeling well. I have felt great since having my first surgery, however, my surgeon and gi tell me that things are really messed up on the inside, so it is necessary to continue taking these drugs. I know for me, i know how bad i felt before i was on the drugs, and i dont want to go back, so i continue to take them even when i dont think i need to.