Hello!
My story with this disease started when I was 12. Went to my mom's GI and he told me I had IBS and to take Immodium and Metamucil. Went back when I was 16, told the same thing. Went back @ 31, to the same doc. I had been bleeding off and on for a few years and thought I should get it checked out since several family members had colon/rectal cancer. This info motivated the doc to run the usual tests of colonoscopy, endoscopy, biopsy, celiac's. Found the strictures in the ilieum and the biopsy confirmed Crohn's. That was 8/07. Started Entocort, Pentasa, pred to try to control the cramping and other symptoms. Well, nothing was working. Right after Christmas, my doc suggested a resection. Had the surgery in 1/08. After surgery, I started on 6MP, B12 injections and iron tablets. Things were going ok-still not convinced that I was all better. After several months on 6MP, my liver acted up and I had to stop taking it. At that point, I voiced that maybe I didn't need any drugs and I should "wait and see" what happens. Well, in 2/09, a year after surgery, there was no evidence of Crohn's during the colonoscopy. But, I began having several BM's, blood, etc. Doc said it was all due to post surgery. He did another scope in 10/09 and again, all clear. I got smart after that and decided to switch doctors. I saw the new guy in 1/10 and his first priority was to get my flare under control. He BELIEVED me! He put me on pred. That seemed to bandaid the situation, but in March I started a downward spiral. He ordered his own scopes and found the strictures, ulcer, and polyp that apparently wasn't there for the other doc to see! I started Remicade treatments and I go for my 3rd this Friday. I am also on methotrexate, folic acid, and pred. I have continued downhill and now to the point where I can't eat b/c the cramps are so bad. The blood continues and can't figure out what is triggering it!! Doc is increasing the Remicade dose and told me to start thinking about another surgery. This is just not what I was expecting 2 years after my first resection. :yfrown:
I think I am finally admitting to myself that I have this and it is going to be with me forever. So often, I try to be normal, esp when out with friends and family. But, that just isn't going to happen.
Personally, I have a WONDERFUL and SUPPORTIVE family! My husband is unbelievable. He recently lost his job, but it has been a true blessing! He is a stay at home dad to our children and niece. This has allowed me to focus more on my career as a teacher. And, btw, having Crohn's and teaching should be antonyms!! Thankfully, the bathroom is right next to my classroom! I just recently shared my disease with my students (5th graders) just because I have been out more and want them to have some sort of an explanation! I use every ounce of energy at my job. When I come home, I totally crash. And that is my other issue-I just feel like I am not doing enough with my kids. No more walking the neighborhood, going to the park, etc. UUGGHHH, I just can't wait for all this to pass!!!!
I really appreciate your insights and opinions to help me and others through this!!:dog:
My story with this disease started when I was 12. Went to my mom's GI and he told me I had IBS and to take Immodium and Metamucil. Went back when I was 16, told the same thing. Went back @ 31, to the same doc. I had been bleeding off and on for a few years and thought I should get it checked out since several family members had colon/rectal cancer. This info motivated the doc to run the usual tests of colonoscopy, endoscopy, biopsy, celiac's. Found the strictures in the ilieum and the biopsy confirmed Crohn's. That was 8/07. Started Entocort, Pentasa, pred to try to control the cramping and other symptoms. Well, nothing was working. Right after Christmas, my doc suggested a resection. Had the surgery in 1/08. After surgery, I started on 6MP, B12 injections and iron tablets. Things were going ok-still not convinced that I was all better. After several months on 6MP, my liver acted up and I had to stop taking it. At that point, I voiced that maybe I didn't need any drugs and I should "wait and see" what happens. Well, in 2/09, a year after surgery, there was no evidence of Crohn's during the colonoscopy. But, I began having several BM's, blood, etc. Doc said it was all due to post surgery. He did another scope in 10/09 and again, all clear. I got smart after that and decided to switch doctors. I saw the new guy in 1/10 and his first priority was to get my flare under control. He BELIEVED me! He put me on pred. That seemed to bandaid the situation, but in March I started a downward spiral. He ordered his own scopes and found the strictures, ulcer, and polyp that apparently wasn't there for the other doc to see! I started Remicade treatments and I go for my 3rd this Friday. I am also on methotrexate, folic acid, and pred. I have continued downhill and now to the point where I can't eat b/c the cramps are so bad. The blood continues and can't figure out what is triggering it!! Doc is increasing the Remicade dose and told me to start thinking about another surgery. This is just not what I was expecting 2 years after my first resection. :yfrown:
I think I am finally admitting to myself that I have this and it is going to be with me forever. So often, I try to be normal, esp when out with friends and family. But, that just isn't going to happen.
Personally, I have a WONDERFUL and SUPPORTIVE family! My husband is unbelievable. He recently lost his job, but it has been a true blessing! He is a stay at home dad to our children and niece. This has allowed me to focus more on my career as a teacher. And, btw, having Crohn's and teaching should be antonyms!! Thankfully, the bathroom is right next to my classroom! I just recently shared my disease with my students (5th graders) just because I have been out more and want them to have some sort of an explanation! I use every ounce of energy at my job. When I come home, I totally crash. And that is my other issue-I just feel like I am not doing enough with my kids. No more walking the neighborhood, going to the park, etc. UUGGHHH, I just can't wait for all this to pass!!!!
I really appreciate your insights and opinions to help me and others through this!!:dog:
