Why do flare ups happen at the worse times!

[CatherineM]

Just a wee vent

I hate being unwell and it really gets me down. Especially when there's plans that are affected by how I'm feeling. My daughter is 5 and 3 times iv bought her tickets for Disney shows. The last 2 times I couldnt go with her cause I was in hospital! Now today we r suppose to go to a Disney on ice how n iv been up all night in pain, with nausea, diarrhea and stomach this morning is still agony! So upset this has happened again, it always happens. Yesterday I was at college and left for the bus stop, I was fine till I got to the bus stop and urgently needed the toilet, I had to run to use a random buildings toilet cause I was that desperate, it's so embarrassing.

Why has it got to be so hard an depressing? Just want my diagnosis so I can be treated. Its really getting me down

 

[shazzy]

Im sorry to hear you are suffering . I understand that feeling all to well. Always late because of toilet trips . Cant get to work on the train some days ,scared I wont make the 20min trip. I hope you get the help you need soon . Sending big hugs your way .

 

[Ihurt]

Hi Catherine.

I am sorry you are dealing with all this. I am also trying to figure out what is wrong with me. I am in intestinal agony a lot lately. I know what you mean about never being able to make plans. I never make plans anymore as I usually always end up cancelling them due to how I feel. I have a lot of othe health issue too, so it is complicated. You are not alone. I pray you get some answers soon and the right treatment to get you better...

 

[CatherineM]

Thank u both for the replies and support. Luckily with lots of medication and a bit of pain I managed to take my daughter to the show and it was worth it seeing her face. This is so awful, I have colonoscopy booked in 2 weeks so hopefully get answers soon.
IHurt I also pray that u get some answers soon to, it is awful having to wait. The doctors gave me 2 ct scans, MRI, endoscopy, nuclear medicine scan and other test, turned out me being so unwell is due to two different issues so they completely missed my possible IBD. I hope u get something soon xx

 

[Ihurt]

Ughh, I am sorry. I know all about tests. I got sick 9 years ago with other health issues and went through every test you could probably think of, some more than once. Now here I go again. It is funny, back 9 years ago I had a slight case of constipation( I mean it was nothing really). Well I had at the time an over-zealous doctor who sent me for a colonoscopy( which came back perfectly normal). Even the GI doc who did the colonoscopy was like" why the hell did your regular doctor have you do this test anyways"?? She said it was over-kill. Well here I am now actually having a bunch of intestinal issues and the GI doc I have now is so reserved he does not want to push tests!! This is crazy. I will likely end up asking him to do the colonoscopy though as I need to find out what is going on. I do know what ya mean though, it sucks NOT knowing what you are dealing with.

I am glad you were able to take your little girl to the show, that is awsome. Just wish you felt better. It is hard to have fun when you feel like crap:ymad:
Hang in there..

Thank u both for the replies and support. Luckily with lots of medication and a bit of pain I managed to take my daughter to the show and it was worth it seeing her face. This is so awful, I have colonoscopy booked in 2 weeks so hopefully get answers soon.
IHurt I also pray that u get some answers soon to, it is awful having to wait. The doctors gave me 2 ct scans, MRI, endoscopy, nuclear medicine scan and other test, turned out me being so unwell is due to two different issues so they completely missed my possible IBD. I hope u get something soon xx