Will Crohn's & I ever get along?

[Crohns_in_NS]

Hi to everyone, I have been using this forum and found it very informative for a while now. As my disease continues to control my life I though it would be best to take an active role in my education of a disease I have been in denial of for 5 years.

My story begins about 7 years ago when I was in my early 20's. I started to not feel myself, loss of appetite, weight loss, pains, we know the symptoms. I repeatedly mentioned this to my family Dr (who happened to be well past 80! That was probably my first mistake,) he would tell me its growing pains, life pains, adolescent pains you name it he had an excuse but no solution. Years went by and I lived with the knowledge that I was not well, but didn't know where to turn. After going through a rough summer where i dropped 60 lbs and, didn't recognize myself i finally changed doctors. My new doctor knew right away something was seriously wrong. She started a number of tests and within 6 months I had my Diagnosis, Crohns.

I remember leaving that appointment, thinking great I know whats wrong with me, things will only get better, this can't be hard to live with. Keep in my I had never heard of crohn's and no family history of IBD. I was a clueless 20 something in denial. That day was probably one of the better days I have had in 5 years.

It has been a yo yo since then, I have been from the bottom of the drug options with doses of asacol and azathioprine which put me in the hospital for mal-nutrition because they made me so sick all the time all the way up to the top with with remicade 2 years ago and humira last winter. I am now re-trying Remicade for the 2nd time, living live with fistula's, active abscesses and and on a downward spiral..

I find myself wondering if Crohn's and I will ever lead a life together, one where we can co-exist in harmony? I am hopeful of that day, but scared of the bridges still to cross until that day comes.

Thanks to all who will help me reach that day in the future.

 

[Astra]

Hi Crohns in NS
and welcome

I hope you find some comfort here with us, some support and lots of friends!
Really hope the Remi works this time round, we have a Remicade Club, check it out for some answers.
lotsa luv
Joan xxx

 

[aliciars]

Still searching for that peaeful co-exisitence myself. Hope we both can find it sooner rather than later. Until then, on these boards we will be searching for our peace. Best of luck to you.

 

[CrohnsNYC]

Welcome! I think in some way we are all probably trying to find that nice peaceful co-existence. Or at least get to the point when we dont have to deal with all these nasty little things. I guess we have to stay hopeful that it WILL happen one day. I feel your pain. I have struggled, and am still struggling, with fistulas and abscesses. Good luck. I found this forum to be so wonderful.

 

[LOSTnut]

Peaceful co-existence sure sounds good, I'll sign on for that

I hope things will go well for you from now on and you'll find all the information that you are looking for within the forum.

Welcome!

 

[MADiMarc]

Hi! I think we all get what you are asking and boy if there is a list some where, sign me up too! I think the problem is that we never know how we are going to feel from day to day. Planning future events is very difficult. Well, I think so for me anyway.

Good luck,
Michele