Hi everyone,
Im new here and wanted to introduce myself. I was diagnosed with fairly mild Crohns in 2021, and for a long time, I was able to keep my symptoms under control with mesalazine. It worked well for my colon, but unfortunately, it didnt do much for my ileum. I had clinical remission, but still a lot of inlammation. Over the years, the inflammation in my ileum kept getting worse, so my doctor decided it was time to switch to a biologic.
12 weeks ago, I started Entyvio, and while it has helped my Crohns, Ive been struggling with severe side effects. About a week after my first infusion, I began experiencing constant dizziness and extreme weakness. Instead of improving, these symptoms have progressively worsened to the point where Im now completely bedridden. I even ended up in the ER after collapsing, but all my tests came back normal.
Whats strange is that my symptoms arent tied to the infusions themselves and they are constant, every single day, between infusions as well. Despite how severe my symptoms are, my doctor doesnt believe Entyvio is the cause. However, given how much my quality of life has declined, I will likely have to switch to another biologic. Im really worried that Ill have the same reaction to other treatments.
Has anyone else been in a similar situation? Did things improve after stopping Entyvio? And how did you tolerate other biologics after a bad reaction to one?
Looking forward to hearing from others and being part of this community!
Im new here and wanted to introduce myself. I was diagnosed with fairly mild Crohns in 2021, and for a long time, I was able to keep my symptoms under control with mesalazine. It worked well for my colon, but unfortunately, it didnt do much for my ileum. I had clinical remission, but still a lot of inlammation. Over the years, the inflammation in my ileum kept getting worse, so my doctor decided it was time to switch to a biologic.
12 weeks ago, I started Entyvio, and while it has helped my Crohns, Ive been struggling with severe side effects. About a week after my first infusion, I began experiencing constant dizziness and extreme weakness. Instead of improving, these symptoms have progressively worsened to the point where Im now completely bedridden. I even ended up in the ER after collapsing, but all my tests came back normal.
Whats strange is that my symptoms arent tied to the infusions themselves and they are constant, every single day, between infusions as well. Despite how severe my symptoms are, my doctor doesnt believe Entyvio is the cause. However, given how much my quality of life has declined, I will likely have to switch to another biologic. Im really worried that Ill have the same reaction to other treatments.
Has anyone else been in a similar situation? Did things improve after stopping Entyvio? And how did you tolerate other biologics after a bad reaction to one?
Looking forward to hearing from others and being part of this community!
