- Joined
- Mar 22, 2010
- Messages
- 1,456
wow seems to sum it all up....
I have had a difficult couple of days. I found out on Thursday morning that my friend (37 years old) died of an accidental overdose. She had been struggling with addiction for years and had lost her children to CAS until she could prove she was able to take care of them. Her children are amazing little people!! My friend Julie and her boyfriend (after 5 months of being "clean") went out and celebrated that he had gotten his children (from another relationship) out of the care of CAS. Julie's were/are still there. One night of partying and now all the children are in care even more lost than they were to begin with. I am not angry with Julie because I understand the dynamics of addiction however, i am very focused on her children being in care and that nobody stepped forward to take them out and offer their home to them. I am quite seriously contemplating applying for kinship care through CAS. This means I will take responsibility for them as their caregiver and bring them in to my care. It is an intense process where they will bring my childhood up and will need doctors letters, reference letters, supervised access visits, etc. There are 3 children and one is living with his father. The other 2 are little and are in care. I do not want them to be split up and to lose contact with each other. I also have a lot of access to the places their mother took them and can tell them how much their mother loved them and how her actions had nothing to do with them. Her mother did truly love them, just not herself very much. My concern is how having Crohn's will effect this process. This was really sad news.
Then, I received an e-mail from a editor. They had noticed one of my photos on Flickr and would like to use it on the cover of a text book. They would like to know my production fee (???) and if I would be willing to work with their lawyers. The first run would be 1,500 textbooks. I have had the same photo published in a book before but the author said there was no money in the budget to compensate me. (I found out later that the hardcover was being sold for $95.00 and the soft cover for $45.00 -- I received a free book and a coupon code that was good for 20% off but only good for a month.) I have also been commissioned to produce three drawings for a good fee from 2 separate people. I thought maybe they weren't serious at first. This news was really good news.
Then I called my GI (AGAIN) to find out if I could make an appointment. There are no appointments until May 2011!! I told her my new symptoms and she said she would put my file on his desk and if there is a cancellation, I might be able to have that appointment. Since being diagnosed with a hiatus hernia, gastritis (inflammation of my stomach lining), 2 strictures of my lower bowl, Crohns .. I have seen him the grand total of 2 times. Once for the initial consultation and the 2nd time briefly before he did the endoscopy. I have had an MRI since and plan to have another in September, but someone will call me Monday. I have been taking a lot of tylenol ones and laxatives and using a lot of ice packs in for awhile now. For the first time in awhile, I went out to where the people at my appointment told me I look really pale. This news of no appointments pissed me off (and found it to be totally ridiculous) and made me feel disillusioned by our medical system.
The GI nurse told me to call the doctor (who is taking over for my doctor while on sabbatical) - I did but she is on vacation for three weeks. This made me laugh and throw my arms in the air....temporarily...
Then I called my family doctor to find out when MY doctor would be back and apparently she has been back for a week (I called last week and the receptionist told me the end of July). I have an appointment Monday afternoon!!! This made me happy!
This has been my week and aside from my frustration with the lack of medical care and pain in my right hip/pelvis, it has all made me realize that I have to be the one to make things happen. Fighting for the children, telling the editor how much I want for my photo, and going to the hospital (if need be) and telling them I need medical care because I am not getting it anywhere else. I have'nt had a bowel movement for about 13-14 days now and quite frankly I am feeling a little "crappy" physically.
I am sharing all this because I think this is what everyone has been telling me since I signed in the first time. I just wanted everyone to know to keep talking because I am finally hearing... and for the new people to listen to the old timer's (no offence :biggrin because they really do know what they are talking about regardless of where they are located. The message to me has always been you have to make them listen/show them how much in pain you are otherwise they will move on to the person who is making more noise (all somehow in a diplomatic way).
So, just thought I would let anyone reading this know that i have actually heard and it took my weeks roller coaster experience's to have opened my eyes.
I was reminded this week of just how precious life really is.
Wendy
I have had a difficult couple of days. I found out on Thursday morning that my friend (37 years old) died of an accidental overdose. She had been struggling with addiction for years and had lost her children to CAS until she could prove she was able to take care of them. Her children are amazing little people!! My friend Julie and her boyfriend (after 5 months of being "clean") went out and celebrated that he had gotten his children (from another relationship) out of the care of CAS. Julie's were/are still there. One night of partying and now all the children are in care even more lost than they were to begin with. I am not angry with Julie because I understand the dynamics of addiction however, i am very focused on her children being in care and that nobody stepped forward to take them out and offer their home to them. I am quite seriously contemplating applying for kinship care through CAS. This means I will take responsibility for them as their caregiver and bring them in to my care. It is an intense process where they will bring my childhood up and will need doctors letters, reference letters, supervised access visits, etc. There are 3 children and one is living with his father. The other 2 are little and are in care. I do not want them to be split up and to lose contact with each other. I also have a lot of access to the places their mother took them and can tell them how much their mother loved them and how her actions had nothing to do with them. Her mother did truly love them, just not herself very much. My concern is how having Crohn's will effect this process. This was really sad news.
Then, I received an e-mail from a editor. They had noticed one of my photos on Flickr and would like to use it on the cover of a text book. They would like to know my production fee (???) and if I would be willing to work with their lawyers. The first run would be 1,500 textbooks. I have had the same photo published in a book before but the author said there was no money in the budget to compensate me. (I found out later that the hardcover was being sold for $95.00 and the soft cover for $45.00 -- I received a free book and a coupon code that was good for 20% off but only good for a month.) I have also been commissioned to produce three drawings for a good fee from 2 separate people. I thought maybe they weren't serious at first. This news was really good news.
Then I called my GI (AGAIN) to find out if I could make an appointment. There are no appointments until May 2011!! I told her my new symptoms and she said she would put my file on his desk and if there is a cancellation, I might be able to have that appointment. Since being diagnosed with a hiatus hernia, gastritis (inflammation of my stomach lining), 2 strictures of my lower bowl, Crohns .. I have seen him the grand total of 2 times. Once for the initial consultation and the 2nd time briefly before he did the endoscopy. I have had an MRI since and plan to have another in September, but someone will call me Monday. I have been taking a lot of tylenol ones and laxatives and using a lot of ice packs in for awhile now. For the first time in awhile, I went out to where the people at my appointment told me I look really pale. This news of no appointments pissed me off (and found it to be totally ridiculous) and made me feel disillusioned by our medical system.
The GI nurse told me to call the doctor (who is taking over for my doctor while on sabbatical) - I did but she is on vacation for three weeks. This made me laugh and throw my arms in the air....temporarily...
Then I called my family doctor to find out when MY doctor would be back and apparently she has been back for a week (I called last week and the receptionist told me the end of July). I have an appointment Monday afternoon!!! This made me happy!
This has been my week and aside from my frustration with the lack of medical care and pain in my right hip/pelvis, it has all made me realize that I have to be the one to make things happen. Fighting for the children, telling the editor how much I want for my photo, and going to the hospital (if need be) and telling them I need medical care because I am not getting it anywhere else. I have'nt had a bowel movement for about 13-14 days now and quite frankly I am feeling a little "crappy" physically.
I am sharing all this because I think this is what everyone has been telling me since I signed in the first time. I just wanted everyone to know to keep talking because I am finally hearing... and for the new people to listen to the old timer's (no offence :biggrin because they really do know what they are talking about regardless of where they are located. The message to me has always been you have to make them listen/show them how much in pain you are otherwise they will move on to the person who is making more noise (all somehow in a diplomatic way).
So, just thought I would let anyone reading this know that i have actually heard and it took my weeks roller coaster experience's to have opened my eyes.
I was reminded this week of just how precious life really is.
Wendy