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Getting older and seem to be adding more conditions/issues each year that goes by.

I am doing much better. I got surgery to reverse my ileostomy in July. I spent 11 days in the hospital due to a stricture developing and being taken off all food and liquid for 7 days, just an IV. I got back on a diet and then went home three days later.



Then, a few days later, a severe pain was near where the ileostomy site. So much pain, I needed to call an ambulance. It turns out there were fat cells from the stomach wall that surrounded the wound and swelled with fluid. It got resolved enough after 9 days and I went home, being told I would feel, "Flu-Like" symptoms for 6 to 8 weeks.



Now, I am feeling better, and things are slowly getting solid.

Diagnosed with a milder Chron's case 5 months ago
Lately I've just been extremely low on energy / tired and napping couple times a day
My calprotectin score was Up from 169 to 190
They want to infuse me with entyvio ..but i'm reading that makes people even more tired ?
Anyone have experience with entyvio ...did it help your tiredness ?

mrbeast

Hi Lisa,
My name is Megan. I am writing on behalf of our son, Nick, who has Downs Syndrome, little language, and Crohn's. When you have a minute,
could you please read my post under new member N, for Nick. Thank you. I am new at all of this. I am not sure how this works. Thank you, Megan