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Crohn's Disease Forum

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  1. C

    Desperate..for advice and opinion

    You all are wonderful!!i am feeling hopeful and want to present my argument for an ostomy. I wouldnt choose it if my life could be managed reasonably. I feel at least the crohns specialist I am going to see in three weeks wl at least hear me out: he may say no but I think he will at least give...
  2. C

    Rectal inflamation

    I'm also in the same boat!i couldn't do the suppositories due to diarrhea all the time but I did manage to get some lidocaine jelly up there and it helped a whole lot with the pain..just numbed me up..if you can ask for viscous lidocaine. It has a small applicator that u can put it in with right...
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    Desperate..for advice and opinion

    Thanks kaz!i love the pros and cons lists!i know it seems strange to lobby for such a radical procedure and to have it done electively. But I am going to stay open minded to their suggestions as I trust this doctor. And indeed I will advocate for whatever will have the most chance of increasing...
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    Desperate..for advice and opinion

    Can anyone else contribute?its really helpful right now..thanks so much!
  5. C

    Pro stoma!

    Amy,thank you so much for this post! I am seriously thinking of lobbying for an ostomy because I have had so many bowel resections and my life is spent mostly at home now because of unpredictable symptoms like being incontinent of stool, constant diarrhea, and pain. Evn us 'old ladies' (: have...
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    Desperate..for advice and opinion

    Littlefreebird,thanks so much for the pros and cons list! That's awesome! And super thanks for the encouragement!! Sometimes I feel like a big whiner! I really don't want that much.just a quality of life that is bettr then staying close to a bathroom! If it happened every once in awhile or I...
  7. C

    Newly diagnosed

    Maximillion..I see you are in the uk so I am not sure if this will be helpful but my brother is an oral surgeon and when I began getting those horrid ulcers in my mouth and throat he ordered something called 'magic wash'..it's benadryl(an anti histamine),viscous lidocaine(a watery xylocaine) and...
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    So much worse than Crohn's

    Well I may be the one to get shot down but I do love my chiropractor! He's my biggest cheerleader when it comes to everything including crohns. Having said that, he hasn't really helped the crohns at all but has kept my back and neck in pretty good shape. But he isn't very aggressive...
  9. C

    Desperate..for advice and opinion

    Hi all..I may have placed a post here previously on this issue. But I wanted to get some advice. I am going to an IBD clinic in Chicago at the end of September and I am to a point with my crohns that I want to lobby for an ostomy. I want to hear how you all have felt this has changed your life...
  10. C

    Remission not in sight.

    Sniffles..my labs are always normal..even during my worst flares with visible inflammation on ct scan they remain..sigh..normal. So I know the frustration! I probably had had crohns since I was 20 when I was in a hospital in London and they allowed my appendix to rupture as I was...
  11. C

    What's your theory on how you got Crohn's Disease?

    For me,it's been stress and environmental factors..was sick and had several surgeries in my twenties then my thirties were great!hit my forties and when I was exposed to both several vaccines for oversaw work and working in India and Africa..that did it.no one else in my family has IBD..a few...
  12. C

    Looking for answers....

    I honk star girl is right..an ultrasound can show things like gallstones,fluid filled cyssts..crohns is better diagnosed with upper and lower scopes..blood work may or may not show inflammation as well..get a consult to a good gi doctor if you are thinking it may be crohns
  13. C

    What should I do?

    Hannah!you sound so sweet!and I wish I could have met up with you when I passed through London this past spring. I know humira shots hurt!i take one a week and I'm a nurse!and a big baby too!(: so just know its not just you! I had an appointment today with my therapist and cried..and actually...
  14. C

    From a positive attitude to a downward spiral

    Kevin..I can see you also have a great sense of humor!sometimes when the spiral is traveling downward or already there,that helps so much! I,too admire that you keep on plugging along!and to get off oxys!woah..that's a major accomplishment on your own!! Sometimes I find it helpful to think of...
  15. C

    Feacal calprotectin test

    LOL!this fecking disease is right!!(: I'm glad you're getting attended to..frustrating when those tests show everything is either crazy or 'normal'..I deal with that a lot!
  16. C

    Anyone find it hard to work fulltime???

    I haven't worked for ten years and have den on disability retirement with the Feds. I tried all sorts of switches in my last job as a nurse..working days in an outpatient clinic..and it was just impossible.i want to return to work badly. That's my biggest goal. To do that,I am going to see...
  17. C

    Green poop

    Sounds like it..hopefully that's your answer!(:
  18. C

    Becoming steroid dependent & need help on pain management!

    Keepingfatih, you're so sweet!(: I completely understand about not wanting to miss out on life/ it's really frustrating isn't it? I hate that you have to go through this at a time when I know you would rather be going to school,being social. I'm a lot older than you(51) but I feel the same way...
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    Green poop

    Hi ontariomom. Yes,I have had green and every color of poop imaginable!what I have heard is the color shows transit time and absorption or malabsorption of bile. if its green,it passes very quickly through the small intestine. I don't think 6 bites of a salad would affect the color so much. Hope...
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    Becoming steroid dependent & need help on pain management!

    Keepingfaith,I just wanted to send you a big hug and positive thoughts! I so admire your tenacity! Training on the swimming team and going about your school has got to be rough with both crohns and jra! Your positive attitude even while frustrated and feeling so rough gives me a lot of...
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