Search results

yes certainly, Gilberts can cause jaundice, supposedly caused by elevated levels of unconjugated bilirubin in the bloodstream. I only found out about Gilberts over 1 week ago at my normal gastro aptmt, google it and youll find lots of info :)

I also have an elevated bilirubin count, and have recently been told it is down to gilberts syndrome. My blood work has been looked back as far as 2008 when i was first diagnosed and it has always been a little elevated, but will keep going up and down. Hope he finds out what is wrong soon :)

Hi guys... Im just after some advice from anyone who is on infliximab. I have come down with yet another cold but this time a lovely Horrendous cough with it! Im due my infliximab infusion on Wednesday, do i go ahead with it...or should i see my Dr tomorrow to discuss? Its not the cold im...

Im soooo glad i found this thread.... i feel like i have become an old lady, and im only 24 lol! I first noticed memory loss when id lose things around the house. Then id forget things like parking tickets whilst out shopping, or where id left my car. It seems to be short term things that ill...

I work in an opticians and used to be an opticians manager so i can help out on this one.... Firstly you dont say if youve been on any kind of steroid since having the blurry vision? This can affect the eyes and will do up untill around 6 months after even taking any steroids. Have you been to...

HI, I had the same dilema 5 months ago. Why are you deciding towards the surgery instead of infliximab? I choose the infliximab over the surgery, in my opinion the longer you can go without surgery the better! Infliximab does lower the immune system but as does other drugs. I also still take...

hi! what hospital are you seen at? I live only 10 miles from reading so not far at all! I started infliximab around 5 months ago. My case was seen at a pct meeting and the results spoken to me at my next appointment with my consultant a few weeks later. I also had to have an MRI before any...

I have also had "Normal" bloods whilst in a flare... my consultant has told me that in some cases this is possible. If there is a narrowing from inflamed tissue from a previous severe flare this can cause the pain and symptons but the blood counts can still seem normal. I had an MRI which showed...

Wow ive just seen youve been in remission for 13 years... well done you :) I have bloods every 2 weeks to check my liver count and then everytime i have an infusion as well. Good luck for your remicade, when do you start?

Does anyone else ever ask themselves " Will a whole day ever pass without having any pain ?!! " I was diagnosed back in 2008, at the time i was more relived that they had figured what i actually had... i guess i hadnt really accepted having crohns back then! I left hospital with a handful of...

Hi, ive been on it for nearly 2 years now. It took around 12 weeks for it to fully kick in and did give me flu like symptoms. Only up until 6 months ago have we got to the right dosage, i weigh under 7 stone and am on 100mg, every time they changed my doage i got flu like symptoms and felt like...

Hi, you need to mention this to your hospital consultant asap. I myself had exactly the same problem, things became blurry and id get floaters all of the time with dry and itchy eyes. Fortunatly i am an Opticians manager so i was able to monitor the change of vision, this would change monthly...

Thankyou stephanie.... Your right it was nothing to worry about, I was at the hospital for 7 hours. Now feeling VERY tierd, is this normal?!!

I've just found this thread.... Very helpful so thankyou guys :) I have my first infusion tomorrow morning, am very nervous :/ Fingers crossed I have a success story like many of you on here!

Sorry to hear your having a rough time of it at the moment!! Blood can mean a number of things, usually a sign it's active! Ive had flares for the past 8-9 months, and like you had blood present shortly before having an MRI done. It's been a LONG, painful and exhausting 8-9 months but finally...

Yes rachel tht maybe why your feeling tierd aswell, I'm exactly like you my blood tests show I'm not Low on anything either! Although my blood tests have also showed my White blood cell count normal in the middle of a severe flare!!! I'm due to the hospital on the 13th where I'll find out more...

Hi Rachel, thankyou for the reply :) Im sorry you feel so tierd aswell!! its a nightmare, im 23 and feel like an old lady half the time. I can completley relate to having to be signed off work becuase it gets to much, ill be driving to work sometimes crying because im so drained and have no...

infliximab A hi to all those other suffering crohnies out there!! im after abit of advice and support from others that have had Biological therapy in the form of Infliximab. I have jst been informed by the hospital that as no other tablets have worked they are going to try this therapy on me...