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Crohn's Disease Forum

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    Eli Lilly's Omvoh (mirikizumab) beats J&J's Stelara in head-to-head study

    Great news, strong data and results! Hope it will be available for CD soon. Any idea how long it takes to get approved after this kind of studies?
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    Safe foods? pizza and spaghetti

    The organic ones. I would avoid any food with preservatives, emulsifiers (they can alter gut microbiome), stabilizers… There's no definitive proof that additives directly cause Crohn's disease, certain additives may trigger or worsen symptoms in sensitive individuals by altering the gut...
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    Latest lab results, what questions should I be asking?

    I’d also ask if they plan to do other scopes soon to check what is really going on inside
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    Major cause of IBD found?

    Very goood news! Hope it translates into a treatment soon
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    Stelara Support Group

    I went to do a scan to check things further and good news: all seem to be fine, I have no signs of active disease or thickening. My docs suggest high calprotectin could be due to inflammation from my bile acids (I started questran only few weeks ago and had bile acid malabsorption symptoms for...
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    EEN makes things worse - any advice?

    You are the best person to decide whether you want to start a treatment or not. Keep in mind there are now plenty more other treatments than anti tnf, and every year there are new ones.
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    EEN makes things worse - any advice?

    I dont really understand why you want to put conditions or “therapeutic monitoring” on a medication that could help you feel better. If you loose response you can switch to another option.
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    Mirikizumab

    Impressive results on a phase 3 trial: https://www.prnewswire.com/news-releases/more-than-one-half-of-patients-with-crohns-disease-treated-with-lillys-mirikizumab-achieved-clinical-remission-at-one-year-including-patients-with-previous-biologic-failure-302150721.html « At one year, clinical...
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    Life Cut Short by Crohn's Disease

    Wow what a story! I read the wonderful Keith Richards memoir Life, I’m curious now to have a look back if he mentions any story regarding Nicky Hopkins. Apparently Keith Richards released an interview on a documentary about Nicky Hopkins: « The session Man », I’ll try to watch it...
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    Cronh's and Sleeping & Tiredness - common ?

    You been through a lot. Maybe 8 hours night sleep would be ideal for you. Crohns disease come with fatigue during flares, and of inflammation or low levels of iron, vitamins or hemoglobin.
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    Stelara Support Group

    Been under stelara every 8 weeks for 10 months and I just tested my calprotectin: 700 How should I react? I’ve been having symptoms for few weeks/months…
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    How to determine if You are "Flaring" ?

    You have now plenty of biologics treatment options tested on humans that are working with good safety results.
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    How to determine if You are "Flaring" ?

    I’d not make conclusion a product tested on mice would have the same effects on humans
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    Humira and side effect what to expect

    hi florida2001, I never had any side effect just after the humira shot. You should just expect to feel better after starting your new treatment and enjoy your trip to europe. Great plan! :)
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    How long can you stay on ENSURE/EN ?

    Usually studies to induce remission with EN are on an 8 weeks basis. Then I’m not aware of many or serious studies on EN ability to maintain remission for like 52 weeks as you can usually find for biologics. How long do you personally think you can stay on EN only before missing social...
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    Therapeutic drug monitoring in anti-TNFs?

    Interesting, how did you test this?
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    The decision : On Biologics or Not

    If it can’t wait then you use corticoids or EEN for a short period of time to induce remission and maintain it with biologics. There are no certainty or valid studies so far concluding EEN is a valid solution to maintain remission and what are the long term effects of that kind of nutritions...
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    The decision : On Biologics or Not

    Well, it’s a life long disease, and some patients may have had no response to any treatments unfortunately, so yes they can wait for 14 weeks or even 52 weeks.
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    The decision : On Biologics or Not

    It makes no sense to watch data at 6 or 7 weeks, it’s well known for how it works that it takes around 10 to 14 weeks to be effective as it slowly change how new immunity cells work. “After 1 year, nearly twice as many people had their Crohn’s under control after taking vedolizumab compared...
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    So confused after apparent relapse

    It happenned to me too that the disease came back where I had strictureplasties even under anti tnf. I switched to vedolizumab and it got better. Regarding your concerns about gut health dont worry too much, as I’m sure you have healthy habits usually. I hope an adjustement of Remicade dose or...
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