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You really need to get the blood work and a stool sample done. That way they can tell where your inflammation markers are at (if blood work is a good indicator for you.) Is the stool sample for a fecal calprotectin test or to check for infection blood etc? If that's normal might make sure that...

Unfortunately, humira can cause new or worsening psoriasis in some patients. It's listed as one of the possible side effects. I'd keep your dermatologist updated in case they want to add another med or give you an rx for a topical

Kiny is a member here that can give you some great info on peyer's patches and their involvement in CD. It's a common find in scopes that peyer's patches are inflamed with CD in the terminal ileum. Hopefully by me tagging Kiny they will be by to comment.

When he started back, while getting his second infusion, his chest got tight, he became a bit short of breath and was flushed. They stopped the infusion gave solumedrol and continued the I fusion with no issues. So the 3rd infusion he was premeditated with solumedrol but the reaction occurred...

The GI probably needs to run a levels test at the end of your schedule to see if there is remicade left in your system. Some people just metabolize it faster. If you are on the closest schedule and highest dose and tests show undetectable remicade levels at the end of the cycle then the GI may...

Initially, C's GI mentioned when starting humira of things went well he'd remove mtx after maybe a year. But at a later appt he mentioned he might lower the mtx (C is on the highest dose) but would not remove. This wasn't realistic though since the mtx at that dose is needed for his joint disease.

Since neither an upper endoscopy nor a colonoscopy can see into the entirety of the small bowel a CT scan or MRE can be used to visualize the majority of the small bowel that is left unseen by the scopes. Since Crohn's can affect anywhere from mouth to anus it's is important to get further...

The last 3 times his CRP has been checked it has been .3 mg/l, .1 mg/l and .4 mg/l with NRR of 0.0 - 4.9 mg/l Two of these, .4 and .1 were tested in the same time frame of scope. The scope, both times showed inflammation from anastamosis site at terminal ileum, a bit above that and throughout...

Since UC is only located in the large bowel and you have terminal ileum involvement then it's fairly good bet you have CD. Crohn's affecting the colon is called crohns colitis. It's not completely unheard of to have both but generally when they aren't certain they list it as indeterminate. CD...

Question about stelara. We pushed to try Stelara as prescribed in the clinical trials. The GI had to do a peer to peer review and appeal but insurance covered it. Janssen patient assistance program for Stelara has so far denied to help because the dosing is higher than normal for Stelara...

We still haven't figured out where that dollar amount came from. We're not sure if that is a glitch on the specialty pharmacy side or the payt assist side. Or is the amount was correct. We paid 40 dollars for 4 shots in the end. Payt asst rejected C because the dose was higher than the norm they...

Wow 5 mg is a lot? Is this an rx or otc folic acid? C takes 1 mg a day but there are others on 2mg a day. Injections might be worth a shot before coming off altogether. You sometimes go to a lower dose of mtx with the injection. My son is at the max but he's also dealing with his joint disease...

So it's been about a week since we took the first loading dose. 3 shots 90 mg each. He used the synera patches(left them on about 40 mins before shots). He let the shots sit out for about 30 minutes. The shots could be given top of thighs or tummy. C refuses top of thighs so tummy it has...

lgpcarter what side effects are you suffering from mtx that are making you miserable? Do you take folic acid each day? Are you taking pill form or injection form of mtx? My son has been on mtx with first remicade then humira and now stelara. He started with the pill form of mtx but has been...

Is the anti-spasmotic med you are on hyoscyamine(brand name levsin)? It doesn't really treat CD just is supposed to help with spams. It's more effective for say IBS than IBD, like Crohn's. Are you on any meds for CD, like 6mp, imuran, methotrexate, remicade, humira etc? I would keep your GI...

Sorry to hear that she is having issues right now. My son was on remicade then humira. He built up antibodies to remicade as well but his probably had to do with stopping the remicade for surgery and then a bit afterward for recovery. He moved on to humira. With remicade and then with humira...

My son has never had a CRP result indicative of the severity of his active flares with CD. His has always been the lower end of normal range.

You could schedule an appt. with a rheumatologist familiar with the EIMs of CD. My son has axial SpA and peripheral type 1 arthropathy. When his axial pain is at its worse he can't get out of bed. He has no damage showing on xrays yet so it just the inflammation flare of the SpA. Maya142, my...

It's great that her number are moving in the right direction. It sounds as if she's in clinical remission, at least. Problem is with clinical remission there can still be simmering inflammation possibly doing permanent damage. Histological remission with full mucosal healing is the goal for most...

The first two scopes what were the diagnostic criteria? Did they find granulomas? There are, of course, a number of endoscopic and histological markers as well as medical history etc. that signify Crohn's disease so they could have diagnosed without the presence of granulomas. The link below...