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Hi Susan welcome and sorry you had to find us. My little girl Lucy is now 5 and was diagnosed at 2 with onset of symptoms at 9 months. Looking back she was probably showing symptoms from birth - she vomited at least 3-4 times daily from 2 days, never had a formed bm and always cried going to...

Farm wife - when you hear the big drugs being mentioned it is like a bomb going off in your brain and firing in all directions ( well it was for me!), but humira and metho has worked so well for Lucy. Our syringes aren't pre filled so we have to draw it up ourselves - they don't come pre loaded...

Lucy had mouth ulcers biopsied at time of diagnosis when she was being scoped under ga. The GI came out to get consent on the day as the hadn't done it prior to her going in, he explained the what why etc but for the life of me I can't remember - I got such a fight when he came out to me I...

Lucy has a special needs assistant a resource shared between her and another student. Her role is to help Lucy if she is feeling unwell or tired and to assist her in the bathroom. It really is a great comfort to me. Lucy goes to a small rural school with just under 100 students so we pretty...

Hi I'm mom to Lucy age five who was diagnosed with crohns when she was two and a half. Symptoms started at 9 months old. Happy to say she is doing really well at the moment on humira and methotrexate, she failed infliximab - she has also been on 6 mp, flagyll, prednisone and cipro - all of...

Sorry to hear about the party and the storm. Really glad grace is feeling better- happy birthday

Lucy started main stream school this year and has a special needs assistant who is ther to assist her if she has issues with her bms. So it works well for her.

Lucy has been taking mtx 7 months, she takes it orally once a week and is also on bi weekly humira shots. I was really concerned about the mtx because of its rep for causing nausea and general malaise. Lucy has had mouth ulcers on two ocassions but the were minor enough and cleared up without...

So sorry he is not well, my little lady Lucy (5) always passed lots of mucos in her stools. She has crohns but no two kids present the same so until all his tests results are back and scopes are done you won't know. Did the test for celiac disease also. Good luck

Belated happy birthday a - am of no help with new symptoms as Lucy has not experienced them. Hopefully the will resolve soon. Re bloodwork Lucy started mtx (orally 2.5mg) weekly and initially had weekly bloods (6weeks) then went to bi weekly, then monthly and now we are doing them bout every...

Oh god Mary can't believe this is happening after everything Rowan has been through. Hope she feels better soon

Hope you had a great Christmas and happy new year

Lucy never had teeth pain but she has got mouth ulcers wonder could she be mixing up teeth and gums if they are close to each other

What a lovely story that really show the true spirit of Christmas. Well done devynn for being such a generous soul

Merry Christmas everyone- dh is stuffing the turkey now and I have just got the kids ready for Christmas Eve mass. Tomorrow my parents come for dinner so we get to stay home all day which is great.

I think I would let her try it (if it was still my choice) I think the unfortunate thing about this drug is that when it becomes an issue re the devadting side effects it will be no longer my choice. The side effects are avoidable by not getting pregnant so if somebody is really strict about...

Angie it was so good to read your update and it's great to hear izzi is doing so well. Hope you all have a great Christmas

Lucy started remicade a year ago for her perianal disease and while ultimately it didn't work it worked for a while and the results were phenomenal there was a dramatic improvement after about 10 days. Really hope it works for you.

Really hope grace got through the night without pain. I know that tiredness you are talking about, I would get her iron levels checked and get the doc to have a look to make sure she's not incubating something but it's probably part and parcel of the disease. When Lucy is like this I just try...

I definately find with Lucy that a tummy bug hits her far harder than the others, but if is still sick by late afternoon on day three I generally call the doc for an opinion. So as you are on day three maybe call the doc and see what they think, is he keeping anything in. Hope he starts to...