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Hello, welcome to the forum I'm sorry I'm late into this, but I'm glad you've found the forum. Bleeding is a known symptom of Crohns, but that doesn't make it normal as such. Your doctor should definitely be more interested and at the very least needs to take some blood to check that it...

Hello, welcome to the forum Just wanted to clear something up first off, generally, you either have crohns or UC, not both together. Are you sure you were told its both? Its quite a common confusion as doctors will say people have " crohns colitis", meaning that someone has inflammation of...

Hello, welcome to the forum I'm sorry to hear about your problems but I'm glad you've found us. What testing have you had so far? If you are going to be tested for coeliac disease again, then you need to be eating gluten. I know that you feel the change in diet has been helpful, but if you...

I am aware that it's best to be in remission before pregnancy. I'm also aware of your feelings about SpA over RA. I'll let you all know what happens. Thanks.

Hi both, thanks for your responses MLP - I hadn't actually heard of Arava, after a quick search I have been able to find some basic information and I can't say how suitable it would be for me. One of the main issues with MTX is the fact i want children in the not so distant future and from...

Hi all I have now been taken off the sulfasalizine as it has been causing problems with my white blood cells. It has been happening for a couple of months now, at first my rheumy insisted it was just a blip/a one off and kept me on it despite me having reservations but it has continued to...

Hey guys So, I had a follow up with my gastro last week, my calprotectin is a little raised but its come down a lot since I started vedo, so it is working and he says this is enough for us to keep having the infusions without having to have all the testing redone, he doesn't think this would...

Hello, welcome to the forum I'm 24, I was diagnosed as having Crohns when I was 19 after 5 years of battling for a diagnosis, and have a host of other illnesses as well. I have been with my partner Gareth for 5 and a half years and got engaged in June. He has never known me well. Crohns is a...

Hello, welcome to the forum. You've certainly been through a tough year, its no wonder you're struggling. Do you have anyone you trust to talk to about this? I'm in the UK so its a little different here but in our school we had counsellors we could speak to when things were bothering us, and...

I'm aware that steroids can affect results, but the last time I was this sick I ended up waiting too long and it resulted in being in hospital on a two week course of IV steroids, so tablets is still a compromise really. Its not just me that doesn't want to be on MTX, my IBD nurse doesnt want...

I'm just going from what my own IBD nurse has told me, to be honest I didn't ask about what side effects she specifically meant, as at the moment it's all hypothetical, but I don't think she was talking about infection risk. My IBD team seem to be a little more cautious than others I've come...

I'm not sure exactly hun, my IBD nurse just said it can come with some nasty side effects, but from my understanding of the drug I didn't think they were any worse than the other biologics. She did say though that the recovery people are getting with it is amazing if they can stick it out. I'm...

Hi guys. So, many of you will know my back story and know how long I've been struggling to get this beast of an illness under control. After a promising start on Vedolizumab, it appears the wheels have once again began to fall off the wagon. Initially, I experienced a decrease in pain, my...

Hello , welcome to the forum. I'm 24 now and was diagnosed at 15 so I can relate strongly to your fears. I agree with the others though, in general, surgery is a last resort and should only be done if medication doesn't work or if it's an emergency. If you start a medication and it doesn't...

If you're not absorbing enough iron, this can be because of inflammation, if the intestine is damaged by Crohn's then you loose ability to absorb nutrients from that area. I have coeliac as well as Crohn's so yes it's entirely possible to have both active at the same time. It's good that you...

Hello, I am the only one in my blood family with Crohn's disease, purely by coincidence I have a step cousin who also has it, but no one else does. We do, however, have other illnesses in our family , including coeliac disease and arthritis (both things I have and both involving the immune...

Just to add.. the fact you've managed to stay symptom free for 2 years doesn't mean it's less likely to come back at some point, it could be that it's been active for months already without you knowing and it's not unheard of for people to go 5 + years between flare ups.

Is your doctor aware that you're not taking the medication? If not then you need to make them aware as soon as possible as it's really important they know what you are and aren't taking. It's good you don't currently have symptoms, but please don't take this to mean that everything is ok. If...

Here are some new pictures, the first is me after fully recovering from my jaw surgery, it was a long process but it's been worth it. The second is me and my fiance Gareth the day we got engaged, and the third is my beautiful engagement ring.

Hello, I'm sorry you're going through this I must admit I don't know a great deal about pulmonary Crohns but from a quick search I can see that its very rare, so it may be that many doctors aren't aware that it can occur. From what I could find, it seems that pulmonary issues are often due to...