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  1. Catherine

    What is YOUR weather like today??

    And more missing in Tasmania.
  2. Catherine

    Stephen... Remicade now...

    Actually surgery within in the mouth is high risk as normal occurring Bacteria of mouth can enter directly in the bloodstream. Very bad:(:(
  3. Catherine

    Blood Pressure

    S had low blood pressure, 80/45. They only seem worry when you have symptoms.
  4. Catherine

    What's up ? Aza not working ? Is this a flare ? Whats next ?

    Where is your child Crohn's located? Do you have any other faecal calprotectin results? Faecal calprotectin results are very individual. There are children on here who have results in the thousands, but my daughter has never had a reading over 650. A result over 200 is a full flare for my child.
  5. Catherine

    What's up ? Aza not working ? Is this a flare ? Whats next ?

    Two month is longer enough to get blood level of aza to stabilise at their new level but may not be longer enough to know whether aza will work at that dose level as it takes up 4 months to be effective. Meaning it a good time to test levels to see if you can increase the dose. How long go...
  6. Catherine

    What's up ? Aza not working ? Is this a flare ? Whats next ?

    I think you may need consider using EN or pred to get back into remission along with increasing Aza. Aza works well at keeping someone in remission but it not good at you getting into remission. But don't want to this unless you have to after the further testing is complete.
  7. Catherine

    What's up ? Aza not working ? Is this a flare ? Whats next ?

    How long since the increase? Aza takes while to have full effect after each increase dose rate. We use pred to give the Aza time to work. At one stage we were testing Aza levels every few months then increasing the amount Aza. Sarah had 7 increases in dose in total.
  8. Catherine

    What is YOUR weather like today??

    I think winter has come to Melbourne. Top of 14C today. Tomorrow 13C.
  9. Catherine

    Travel Insurance - Travel from Australia to USA

    TammyR, try both Covermore and Suresafe, find a general insurance broker. Make sure you fill out the medical declaration correctly. I purchased a 12month policy for daughter for England using Covermore. Your trip is for next year? Suresafe I believe is one year for hospitalisation. Check...
  10. Catherine

    What's up ? Aza not working ? Is this a flare ? Whats next ?

    They will be testing blood level for AZA. The results will tell them whether they can safely increase the AZA dose. My daughter is on high dose AZA, she take 200mg a day and weights approximately 58 kg. She started at 50mg at 44 kg. She is now 20 age old.
  11. Catherine

    What's up ? Aza not working ? Is this a flare ? Whats next ?

    Leed2713 My daughter had number of increases her aza doses and 3 course of pred before getting in a solid remission. Have they tested the aza levels?
  12. Catherine

    Imuran/Azathioprine/6-MP Support Group

    Send me a PM and I will response regarding specialist.
  13. Catherine

    What is YOUR weather like today??

    Ron, you could head down our way. Gale force winds, rain, and 19C.
  14. Catherine

    Fecal Calprotectin and different types of Crohns???

    I don't think IBS can cause a risen faster calprotectin. I have a dx of IBS my faecal calprotectin never been above 19. There are other causes of raised calprotectin other than Crohn's
  15. Catherine

    Imuran/Azathioprine/6-MP Support Group

    Hi James I am also from Melbourne. I would look at having faecal calprotectin run. Note well this test is not free. This test measures inflammation in the digestive track. My 20 year old daughter was dx with Crohn's Disease, and her Crohn's flares without physical symptoms.
  16. Catherine

    To Aza or not to Aza.

    The dose rate seems really low. What your weight? The white cell count seems high for someone on AZA. AZA works by lower the white cell count, the seem to work best when it about 4.0. Iron number seem normal. B12 is looking low. You may want to low a supplementing B12. Have you had faecal...
  17. Catherine

    Wbc counts falling

    Do you know how low your white cell count is?
  18. Catherine

    Forum Newbie from Thailand (Crohn's)

    Paging Chris_k to this thread as you both in Thailand.
  19. Catherine

    Gastritis, pain, diarrhoea, fatigue...

    I have chronic gastritis and IBS. Wheat/gluten gives me reflux. I also have a problem with fat. I do better on the FODMAP diet.
  20. Catherine

    Our new GI

    My opinion is the dizziness and high rate sound like her most pressing issues. Prior to Sarah's dx we saw a neurologist for fainting. He was was the one who arranged most of her heart tests. He also gave the OK for her drive. You are not allow to drive if you have a seizure or faint without...
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