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He has done remicade, humira, methotrexate, 6mp, leukine, pentasa. No major problems with entyvio so far but back pain and headache.

Is there anyone on here in the Myrtle Beach, SC or Charleston, SC area that has experience with a good pediatric GI? My husband and I are discussing moving to that area but we would be leaving a wonderful doctor so I am concerned.

My son who is 16 just had his 3rd Entyvio infusion. After the first infusion his only complaint was moderate back pain like between his shoulder blades. After the second infusion it was back pain in the same spot and a bad headache like a migraine. Now it is 4 days after his 3rd infusion and...

I have two kids both diagnosed with Crohn's disease. My son was diagnosed first at age 7 and he is 15 now. My daughter is 23 and was diagnosed at 21. My son's Crohn's is a lot worse than my daughters. Wish no one had this disease but since that isn't a reality I wish my son's was mild like...

Well she just spoke to the PA. One set of labs shows Crohn's, the Prometheus lab work shows UC. Can you have Crohn's and UC? They gave her an appointment to come back and that is all I know so far.

My son who is 15 has been diagnosed with Crohn's disease since the age of 7. My daughter who is 22 was just diagnosed a little over a year ago with Crohn's. She moved not long after her diagnoses and had to change doctors. They just did her 6 months lab at the new doctor and they just left a...

Hang in there. I know how you feel. I had to leave my daughter's high school graduation early because my son started getting really sick with his Crohn's. Talk about Momma guilt! Now we are planning my daughter's wedding and my son is in the middle of a flare and needing iron infusions. It...

QueenGothel, we take my son to Cincinnati Children's. We have been there for 8 years now and absolutely love his Dr. and staff. And the nurses on the GI floor are great. Hope you get answers soon and that your daughter feels better soon!

Thanks Mehita. Getting ready to call.

Okay so Tanner has now had 3 days of Zithromax after a week of Amoxicillin and has an inhaler too. Coughed til he threw up in bed at 2 a.m and says after a coughing fit it is harder to catch his breath. How concerned should I be? No fever but the phlegm he coughs up is yellowish green...

My son has been on 6 mp off and on for years. Had a flare so he had a hospital stay has been on prednisone also for a month and a half. While in the hospitAl he started getting a little cold but since then he has developed a horrible cough. We went to an after hours clinic last weekend and...

Thank you araceli!! Yes I guess we are Super Moms! Just another Chapter in our crazy life!

Thanks ladies, it does help that we as a family have experienced alot of the horror of Crohn's so we know all about medicines and treatments. Just was not expecting this.

Praying for you and your child! I know how you feel, I went through all those feelings when our only option was to remove my son's colon. We were lucky though that he did not have to have another ilieostomy. But you still wonder about all your decisions and you still worry about their future...

I haven't been on here in quiet awhile. I have a 13 yr old son who was diagnosed with Crohn's at age 7. His Crohn's was severe and ended up having surgery to remove all but 10 to 12 inches of his colon. Now as of Tuesday the 26th my daughter who is 21 was also diagnosed with Crohn's but her...

Praying for you and your baby. It has been a little over 6 yrs now since my son was diagnosed. I cried after the doctor told me and left the room and cried several times a day every day for a long time. I still get upset and cry as someone else said over the childhood he was robbed of, and...

well it started yesterday and I don't think it completely stopped just went down on the pain scale and as the day has gone on has gone up on the pain scale. Will probably go to the doctor after school if he makes it thru school :(

well it has been a couple of years since his last kidney stone but this pain is up high like middle of ribs and up to shoulders. Kidney stone was my first thought too but this pain isn't the same as kidney stone pain.

I was wondering if anyone on a combination of pred and 6mp has had the symptom of upper back pain? My son has complained of this for the past two days and several of the people I work with have had that symptom when they were having gallbladder pain. So I am concerned we may have a new problem...

well his doctors know surgery is the last resort for us, and I hadn't thought about the whole still growing thing. I just wish they would find a cure soon, for all of you!!!!