She was hospitalized Friday for a ostomy prolapse. They tried reducing it and failed then from messing with it so much it quit outputting so much. We stayed the night she was NPO they were prepared for surgery and that night it retracted on its own. She was released early Saturday Morning. We got the call back from Cincinnati and they were scheduling but with another hospitalization we ended up getting an earlier appointment. We saw GI and Ped Surg in Cincinnati we are staying in Kentucky. Tomorrow we have another appointment with Hepatology.
They have a couple of possible new diagnosis. We don't know without testing. It could be PSC or Blocked duct caused by Pancreas Divisum. Also testing for another immune system issue it could be has something to do with immunoglobulins being low. I don't know until we test MRCP and Liver biopsy. The GI thinks she has Crohns but has no proof. He thinks the distal loop is blocked from something inside (Crohns) or outside (adhesions). Both Ped Surg and GI agree end ileostomy is best saving the rectum for future surgery if we want. Can wait to remove the rectum later if needed. If no PSC SIAA can be done for either UC or a Crohns. Suggest all future operation to assume she has Crohns even though she is not being treated for it because the antibiotics are helping. If after surgery she is symptomatic bigger guns come in. Specifically mention Remi and Pred.
. We are planning to do an end ileostomy.
Her hospital wants to do the SIAA now and give her a mucous fistula blow hole for a later connect. Highly doubting this will happen the surgeon said it would be ok if it were Crohns to do this. GI agreed. Still thinking I will take the high road. Mentioned it might be our only chance depending on what things look like. Basically they think I should suggest what I want but give them the ok to do an SIAA if they think they couldn't do it again safely. The surgeon explained it as they have to connect the intestines to somewhere whether it is an ostomy or rectal cuff doesn't matter.
Hepotology tomorrow.
Went swimming all day and night in the pool. Rowan and her sister loved it.
They have a couple of possible new diagnosis. We don't know without testing. It could be PSC or Blocked duct caused by Pancreas Divisum. Also testing for another immune system issue it could be has something to do with immunoglobulins being low. I don't know until we test MRCP and Liver biopsy. The GI thinks she has Crohns but has no proof. He thinks the distal loop is blocked from something inside (Crohns) or outside (adhesions). Both Ped Surg and GI agree end ileostomy is best saving the rectum for future surgery if we want. Can wait to remove the rectum later if needed. If no PSC SIAA can be done for either UC or a Crohns. Suggest all future operation to assume she has Crohns even though she is not being treated for it because the antibiotics are helping. If after surgery she is symptomatic bigger guns come in. Specifically mention Remi and Pred.
. We are planning to do an end ileostomy. Her hospital wants to do the SIAA now and give her a mucous fistula blow hole for a later connect. Highly doubting this will happen the surgeon said it would be ok if it were Crohns to do this. GI agreed. Still thinking I will take the high road. Mentioned it might be our only chance depending on what things look like. Basically they think I should suggest what I want but give them the ok to do an SIAA if they think they couldn't do it again safely. The surgeon explained it as they have to connect the intestines to somewhere whether it is an ostomy or rectal cuff doesn't matter.
Hepotology tomorrow.
Went swimming all day and night in the pool. Rowan and her sister loved it.
