Search results

Just to update on my Remicade infusions. Had 7 now in total since last December. Have to continue until April 13. Will have another MRE to review activity of disease. Consultant very pleased with me as all my inflammatory markers have completely come down. I was asymtomatic when I started...

I am seeing my GP tomorrow, but I have been on Azathioprine and Remicade for over 9 months now, my ankles have become quite swollen, am a little concerned as I am flying to ~Europe for a two week break in a very hot country. Any one have had this before, I have read it can be a side effect of...

I had this test done and it was fine. I this is a new test for me ever and it is great they have developed this for small bowel disease. ZIGGY

Thank you all for your information. Very informative. Will look into a few things. ZIGGY

I have been told my Calcium is low and I may have to start supplements with this and vitamin D. I have been off steroids for years as I know these can affect absorption. I Aamalso getting full blood work done up for minerals etc at my own request but my doctor is not that keen on general vit...

Thank you for all you replies. Very interesting to hear other peoples views and what is available elsewhere. Being a Buddy means you work very closely and report back to the Specialist nurses so you write a report every time you contact the patient. We also have patient forum every month in...

Hi Grant I have been on this drug for over 9 years now since my resection. By the way no one ever at one time before operation said to me that I woud probably have to take this drug for the rest of my life.. or that it it would be so gross to take! Any how two years ago my Gastroenterologist...

Hi Our local Health Authority has supported a plan brought about through our local NACC support group for an IBD Buddy project. This is giving new patients the chance to meet / be supported by an IBD patient to help them through their first few months of first being diagnosed with just...

Hi Astra Yes I have had to have two of these over the past year. They were the long five hour ones, although the newer version takes an hour, I believe you had the fast track one.. lucky you. Although I did take a whole day off work which is great. They certainly helped me and my Hb is...

Thanks to all for your kind replies. My resection was in my terminal ileum due to fibrosis and scarring due to years of inflammation, had at least 12 " bowel taken away. Have been on the Remicade for since December, and finding it ok except it has made me put back on some weight ( I had...

Hi I am Ziggy. New to this site and forum. Just to give a background to my crohns disease. Diagnosed at 23 in 1985. Hospitised for 6 weeks with a stomach infection, anorexia (lost almost 3 stone in weight), anaemia, ovarian cyst. It took 8 weeks until diagnosis of crohns. Had never heard...

Hi I am new on this site and forum. I have started on Remicade 6 months ago. I have read lots of posts on general side effects. My question is ... excessive hunger ... and I am not on Prednisolone either ! this seems to effect some people too, but having lost nearly 6 stone in weight (having...