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I was diagnosed at age 51 at the end of last September. I felt a twinge in my gut for a few months before which I thought was due to anxiety and stress of taking care and grieving for my mother who succumbed to Alzheimer's disease after two years of decline. I have no complaints, taking care...

Rejection My third infusion was rejected three days after. I went into neck and back seizures every time I sat down in a my reclining chair or on the toilet. Frozen for 5 to 20 minutes in pain for 2 1/2 days and then chronic diarrhea to the point whatever I ate came out as it went in. I was...

My swollen tongue was finally solved with a compound called actually called Magic Mouthwash. I had to get it from a compound pharmacy. Walgreens said they could order it, but it would cost $55. Clear Creek Pharmacy in Littleton, Colorado hooked be up and billed it to my insurance. Before this...

Fatigue is almost worse that the other symptoms. As much as I hate living in a bathroom sometimes, the fatigue is worse. I feel so guilty for being useless. My Dad is 80 and does his best to take care of things, but at this age I should be taking care off him. I was raised to believe when...

Thank you and I will check the multi Vitamin. Have a great Day

I have not discussed it with my GI, but the doctor that leads my support group is all for it, because he has seen it work. He is also very positive and into research. He told us there is a tectonic shift in the care of IBD like we have not seen since Remicade came on the scene 20 years ago...

Hello Everybody, I just joined the forum and am pleased to be a part of this. Today I am battling frustration playing the waiting game again. Two weeks ago, I rejected Remicade, with seizures of my neck and back every time I sat down for 2 days, followed by massive diarrhea, where everything...