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  1. K

    Important new low side effect treatment option in clinical trial you may be eligible for (or help others learn about)

    But did David say that they are looking at taking international patients now aswell, it also says it on their website?
  2. K

    Important new low side effect treatment option in clinical trial you may be eligible for (or help others learn about)

    Hi all I am too on humira, do they say how long that you have to be off the humira before you can commence the trial? Because I am not having great success with the humira :(
  3. K

    Important new low side effect treatment option in clinical trial you may be eligible for (or help others learn about)

    Hi all I am too on humira, do they say how long that you have to be off the humira before you can commence the trial? Because I am not having great success with the humira :(
  4. K

    Sore Throats

    Yes I am in Ireland and my crohn's guy is only really getting used to humira now he was only prescribing remicade before that, he has never mentioned any of those other biologics to me. he hasn't mentioned methothrexate to me. I think I may have to go back to the drawing board with him. I am...
  5. K

    Sore Throats

    Thanks for reply :). no I am not on any other medication. We have tried steroids, asacol, pentasa, 6mp, steroids again, steroid enema, pentasa suppositries, remicade (which was fantastic in the beginning, stopped the bleeding immediately, was having such relief until my stupid body decided to...
  6. K

    Sore Throats

    Hi Everyone Ive started Humira since mid-feb. Just wondering if any of you were experiencing bad sore throats? In the last four weeks I have got 2 really bad sore throats and have had to go on antibiotics, I have my second one now. I never got sore throats this bad until I started Humira, I...
  7. K

    IV Steroids

    Yea hopefully it will :)
  8. K

    IV Steroids

    ya was on pentasa at the time, he has taken me off that now as he says research has suggested that it isn't really good for crohn's. I used to take 2grammes a day I think. but it never did any good.
  9. K

    IV Steroids

    I remember my bleeding worsened on the steroids last two times I was put on them. It only stopped when they put me on remicade.
  10. K

    IV Steroids

    Sorry for ambiguity, I mean nearly died as in I felt so bad. Had no life threatening side effects but I literally was not able to go outside the house for the duration I was on them, I think it was about 6 to 8 weeks. And plus they didn't work. They loaded me with the IV steroids first inside...
  11. K

    IV Steroids

    Hi all I'm in the middle of a flare and after having a sigmoid colonoscopy I am being admitted tomorrow for IV steroids and humira. I was on remicade and it worked so well but then after 9th or 10th infusion I reacted after 3 mins and they had to stop. Turns out I have built up anti bodies...
  12. K

    Flare after 8 Treatments

    Hi All Haven't been around for a while because I have doing so great and was back to normal, working etc. but have started to flare after 8 treatments, quite out of the blue. I am worried now that remicade has lost its effect :( I had out of date predsol enemas in the press, I tried this as...
  13. K

    Pins and Needles and Joint Pain after 7th and 8th Influsions

    Hi All First off, just like to say I haven't been here for a while so to update you all I have been taking Remicade and it literally gave me my life back. I started the drug around September last year and it literally worked straight away. I had been suffering with bad bleeding, lost a lot...
  14. K

    Blood in mouth in morning

    Hey All :sign0085: Ever since I started remicade I get blood on the roof of my mouth most mornings. It is putting me off my breakfast because of the taste! Usually when I wake up i have this terrible taste in my mouth and when I rub my tongue to the roof of my mouth and spit there is...
  15. K

    Remicade Club Support Group

    well the nurses told me that everyone was different and it was the 3rd or 4th infusion for some people before they really saw the benefits.
  16. K

    Remicade Club Support Group

    how'd you get on?
  17. K

    Remicade Club Support Group

    hey everyone getting my 3rd infusion tomorrow. Doing really well on the remicade, completely of the prednisolone now. Its great cos i was having a horrible time on them. I too have had a great success with remicade so far, long may it last!
  18. K

    Overwhelmed and needing someone to understand...long note

    I think everyone on this forum can identify with how you are feeling at the moment. There comes a time when you have to set boundaries, limits, for what you are able to do. I am just getting a flare under control at the moment, but I was in pretty bad shape a few weeks ago and it just got to...
  19. K

    Need some advice please!

    Hopefully it won't come to that - I am fairly new to this myself - even though I was diagnosed in 2005 I have only really copped on and started to research this better this year. I'm sure others will help better but I did have wall thickening in my terminal ileum around 2007 and 6-mp got it...
  20. K

    Concentrating and reading

    hey i have being having blurry vision problems over the last month as well. I was putting it down to medication?? Am on a tapering dose of prednisolone and have just started remicade 2 weeks ago. But nearly everyday i get blurred pixel type vision. But I was just putting it down to side effects.
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