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I had my second infusion yest and although I felt drowsy it wasn't like my first one. I was able to stay up and be aware of my surroundings but I was a little snappy, drowsy and I had to go to bed around 8pm. My next infusion they won't give me the benedryl as I guess entivyo doesn't have as...

I had my first entivyo infusion today. They gave me some pre meds as a precaution due to a previous allergic reaction to Remicade. They also did a blood draw for a tuberculosis test (I didn't have time to get the usual skin test done before the infusion so the center just did the blood draw test...

I'm also on 4 pills (1.2 grams each) of lialda and 25 mgs of mercaptipourine (6mp). The class that 6mp falls into I can only moderately metabolize so I can't go up any further on that. I was on 50 mgs but I was starting to not produce enough white blood cells so I had to be dropped down. I'm...

Has this happened to anyone else? I was on Remicade for a few years when I had a few allergic reactions and was pulled off. Then I was placed on humira 40 mgs every other week, when that wasn't cutting it I was bumped to every week. I had a recent colonoscopy which showed I was still raw and...

Thanks for the support everyone. The bullying is done by one primary student who is new to the school. As he's told me she makes a friend then she ends the friendship by doing something mean to them. The school is working with her but can't tell me exactly what they are doing with her...

So...recently DS has made a few comments about killing himself. On a regular basis he is fine but when he's in school, in trouble or very very sad he makes comments about wanting to die and go to hell. We're getting him help, he sees a psychiatrist and several counselors. I'm not sure if it's...

Quickie question... Has anyone had sharp pain under their right breast around their ribs? Is it a problem with 6mp? My recent bloods showed my liver was fine but I wasn't producing enough white blood cells.

I think it's worth offering even if for a trial basis. When I was in the hospital it was a pretty bleak expirience, not like when I had my children. When I had my kids staff were constantly checking on me, saying hi, asking how I was feeling and giving me all sorts of paperwork and pamphlets...

So I'm starting to think applying for disability might be a good idea. Since having my daughter a little over a year ago I haven't been able to do much. I had 3 infections right after her birth and the antibiotics lead to cdiff infection around Feb and another cdiff infection I'm battling now...

I think it's a nice idea for those who could afford an extra like that but in my case I wouldn't be able to afford $20 for someone to wash my hair. Would it be wonderful to have a visitor, yes and would it be great to get my hair washed, sure but its an extra my husband and I couldn't afford. I...

My gi called yest and told me to cancel the mri due to having cdiff. Wants to treat that then do the mri. Im not on an antacid currently since I only get the reflux during certain times (like a trigger) having an empty stomach and drinking tons of liquid then laying flat triggers it. During my...

I think I got my first infection from the hospital after I had my baby. Im used to passing blood as part of having crohns. I also had several infections after having her (mastitis, uterine infection ect) One day I developed a 102 degree fever and my left side starting really hurting and then I...

I have c-diff again ugh

Well I had my second opinion app for whether surgery is the route to go. He said there's 2 other biologics to try first and since I'm a new patient he wants to do a battery of tests to see what the disease is up to. He ordered stool samples and blood work and an mri (and he acted like an mri was...

Rash has spread. It's covering the entire area around his mouth now. It's red, bumpy and patchy with areas of white flakes. I'm not sure what even caused this rash :/

No appointment yet were getting all the paperwork and stuff together. We had an illness go around the house on weds. Little Z threw up several times, my husband had a fever and the Itty bit has been vomiting off and on since Tuesday night. Today little Z developed a rash next to his bottom...

Just thought I'd pop in for a quick update.. I've begun the process of getting him seen at cincinnati. I'm not sure if I should get him on a ppi and scoped at his current GI and then have the slides sent to Cincinnati or if I should take a week and get everything done at cincinnati Still...

Well I think it's time to request a second opinion. (I know I said I'd call Cincinnati but I got pretty sick so things got put on hold) Little Z had his meeting with the allergist today...and she doesn't feel he has EE, she thinks instead he has IBD. She talked to me about how EE is supposed to...

Ok I'll call tomorrow morn. Thanks for the help

I'd like to get him seen in Cincinnati but the issue would be if they accept his insurance. Seeing and expert can be really expensive and we're struggling financially as it is :/ I've been trying to get approved to see the Cleveland clinic for IBD and have been hitting a wall.