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Crohn's Disease Forum

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  1. Grumbletum

    Decisions, decisions......

    Thank you to you both for your replies. Krika, in the job specs they say they say employees will have health insurance through Bupa. If it's a medical emergency people tend to be flown to Thailand for treatment. Don't think cost of flight is covered, but it's not that far away. Due to a previous...
  2. Grumbletum

    Decisions, decisions......

    I don't know if I told you lot before, but I used to teach English abroad before coming to live here on the island and after a few years juggling various part-time jobs, I got my current position of Finance Administrator ( with training and qualification. ) Anyhoo, I've been doing good with the...
  3. Grumbletum

    Migraine And Crohn's Disease Support Group

    Thanks, Gotumtum. I will definitely try the magnesium and find the time to get yoga back into my daily routine.
  4. Grumbletum

    Migraine And Crohn's Disease Support Group

    Subscribing. They've come back on almost on a daily basis. Guts are still behaving themselves though. The headache is mild compared to the ones I've had in the past, I just feel a bit nauseous with them. I guess I should get my eyes tested - it's been a while. And I'm on holiday from Friday so...
  5. Grumbletum

    Bowel movements irritation 1 year post resection

    Lol, Scaryman, you'll just have to get a manbag! But seriously, I am a year and a half post resection and in remission. I lost my cecum and IC valve too. I find that I have issues with frequency and urgency if I eat the wrong things - mainly foods high in fat and sugar. Have you asked your docs...
  6. Grumbletum

    Feeling out of my skin...is it the Prednisone?

    Hi again. I would echo what Valleysangel says about not tapering the steroids too fast. Coming down off them can be quite tough. I had horrible joint pain when I tapered and felt really down. But it does pass. But I think I would phone your doctor or IBD nurse about your face swelling. I take it...
  7. Grumbletum

    Feeling out of my skin...is it the Prednisone?

    I really feel for you Jellybean. I think the 'out of your skin' feeling is a combination of the meds and just the whole experience you are going through. Steroids are definitely a big factor and are well know for the feeling of spaced outness they can induce. But I think it's the whole horrible...
  8. Grumbletum

    Headaches on Imuran?

    James, you must be unique. I don't know of many people who don't get huge appetites and balloon on steroids! You'll have to get some IBD leaflets to leave on a few tables! Pre-steroids I had a couple of people ask me if I had cancer. It's a very misunderstood disease. Hopefully the 'Get Your...
  9. Grumbletum

    twitchy gut

    Yes, Sailorluna, I remember that too when I was in flare. Sometimes it would be strong twinges like having a stitch. And sometimes it would be a sort of fluttering - a bit like when you are pregnant and the baby first starts moving, only stronger. It is indeed a strange feeling. I thought it...
  10. Grumbletum

    Headaches on Imuran?

    James, it might be worth asking your doctor about 6mp? That's a common next step for those who are not getting on with Aza. I know what you mean, sometimes it seems like a rock and a hard place with Crohn's and the meds :-(
  11. Grumbletum

    Urges after heliocolectomy.

    Hi Rick I am glad to hear that your surgery went well and that you are on the mend. I'm coming up on two years post resection in which I also lost my appendix, caecum and ileocaecal valve. I experience the urgency you describe, but I had just assumed that it was my 'new normal' and down to my...
  12. Grumbletum

    Diagnosed at age 50 & over Support Group

    Hi Rick. How are you feeling now? I'm sorry to hear about your diagnosis and time in hospital. What a shock and it sounds like your disease is quite severe. If you are still experiencing severe pain and vomiting, I would call your GI or IBD nurse if you have one and see what they suggest.
  13. Grumbletum

    Headaches on Imuran?

    Hi Sassym. I was started on 25mg of Azathioprine ( Imuran ) and increased 25 every two weeks til my therapeutic dose of 150. When I got to 100, I started to get really bad headaches that were making me wake at 2 or 3 in the morning. Friends here advised me to try splitting the dose - half in the...
  14. Grumbletum

    Expat: 2014 Diagnosis = No remission

    Hi Jaron and a big welcome to the forum from an ex ex-pat English teacher! Sorry to hear about your diagnosis and I understand the challenges of being ill and abroad. Are you due a summer holiday? Just wondering if you could perhaps make a trip home and see if you can see a specialist there? If...
  15. Grumbletum

    Remession

    :congratualtions: What fantastic news. I am so pleased for you. Wishing you long, long years of remission.
  16. Grumbletum

    175mg of imuran, feeling spaced out

    Did you start straight away on 175g? My doc started me on 25mg and had me increase by 25g every two weeks til I reached my therapeutic dosage.
  17. Grumbletum

    175mg of imuran, feeling spaced out

    Hi Will And a big warm welcome to the forum. I'm sorry to hear about your diagnosis of UC and I hope that your current med regime will help get things under control. It's definitely hard to know what are effects of the disease and what are side effects of the meds when you're on quite a few. The...
  18. Grumbletum

    Finally.....

    Ah, I guess that's good news in a way. A time for mixed emotions. It's a relief, isn't it, to finally know why you've been feeling unwell and to have a treatment plan. Hope you'll continue to feel well and that the meds will get things under control for you x
  19. Grumbletum

    Humira and Athlete's foot

    Hi Anny. Yes, when you are immune suppressed, you can be more susceptible to fungal infections. I had 3 treatments of Infliximab and developed a painful, flaky rash on my feet and legs. My GP is not sure if it's psoriasis or a fungal infection. I would keep a close eye on yours and make an...
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