- Joined
- Jul 3, 2014
- Messages
- 19
Feeling out of my skin
Hello, I am a 35 year old girl living in NH. Here is my story: I was diagnosed with Crohns about a month ago while being hospitalized. The doctors say I've had an active disease for over 10 years and are puzzled over how the heck I was able to go through all the pains and how it went undetected for so many years. My problems go back about 10 years precisely when I started to experience sharp stabbing pains in my stomach from doing just about nothing. This went on for a while (more like months) until the day my father drove me to the hospital He knew something wasn't right. I was running high fevers and my blood pressure was sky rocketing. They did an ultrasound and found that I had gallstones and some sort of infection (or abscess). I was told that I had irreparable damages from the untreated infection so it was better to remove the gallbladder completely. Following the laparoscopic surgery, the surgeon thought it was strange that this would happen without having any prior history and being underweight. I was later refered to a gastro specialist who eventually had me go through several tests including an endoscopy that found high levels of H-Pylori bacteria in the lining of my stomach. During these years of discovery, I experienced episodes of excruciating pain that would send me to the ER. I felt many times as a time bomb and though that I would pass out and die. I've had several upper GI CAT scans and ultrasounds with no findings. Typically during these visits they would find anemia from a CBC result or low potassium levels, high blood pressure and fevers but nothing pointing to the cause. Many times I would be released for UTI's that I knew I didn't have. More recently I decided to find home remedy and avoid the hospital. I managed for some time with a prescription of Hydrocodone. It wasn't until I became pregnant that I started to believe that stomach pain was just the past. Not once during and after my pregnancy did I experience pain. Those were the best two years I've had and wish I could reverse in time. But this happiness was only a tease, right about the time I decided to wean my baby from breastfeeding began the discomforts and crampy-nauseating pains. Not sure why but somehow the change triggered the misery of pain and stomach discomfort once again appearing in my life. The sharper, excruciating pains just reappeared as they were there yesterday. I felt in agony, the pain would linger and continue onto the next day. Finally convinced myself that it had to be serious and made an appointment with my primary Dr who coincidentally had an opening the next day. It was during this appointment when it all started...four weeks ago... I walked in and two hours later I'm admitted to the hospital after getting the results of a lower GI CAT scan (never done before) the same day: finding a mess of tissues, narrowing of the large intestine, fistulas, bowel obstruction and a large abscess that was apparently the main reason why they would not let me drive back home. I was given the combination of Cipro and Flagyl and a colonoscopy was ordered the next day. The surgeon paid me a visit to tell me that surgery was not an option in my case, assuring me that if Remicade was to work I could extend the life of my large intestine. My worries continue since there is so much to think about...the risks of treatment, the active and destructive disease I have living in me, limited options if the treatment is a fail. I've already had an issue the first time we tapered off the Prednisone, this is my second round. I can't concentrate and feeling out of my skin. I have a little boy who is now two...I fear of what's going to happen to me...I want to see him grow.
Hello, I am a 35 year old girl living in NH. Here is my story: I was diagnosed with Crohns about a month ago while being hospitalized. The doctors say I've had an active disease for over 10 years and are puzzled over how the heck I was able to go through all the pains and how it went undetected for so many years. My problems go back about 10 years precisely when I started to experience sharp stabbing pains in my stomach from doing just about nothing. This went on for a while (more like months) until the day my father drove me to the hospital He knew something wasn't right. I was running high fevers and my blood pressure was sky rocketing. They did an ultrasound and found that I had gallstones and some sort of infection (or abscess). I was told that I had irreparable damages from the untreated infection so it was better to remove the gallbladder completely. Following the laparoscopic surgery, the surgeon thought it was strange that this would happen without having any prior history and being underweight. I was later refered to a gastro specialist who eventually had me go through several tests including an endoscopy that found high levels of H-Pylori bacteria in the lining of my stomach. During these years of discovery, I experienced episodes of excruciating pain that would send me to the ER. I felt many times as a time bomb and though that I would pass out and die. I've had several upper GI CAT scans and ultrasounds with no findings. Typically during these visits they would find anemia from a CBC result or low potassium levels, high blood pressure and fevers but nothing pointing to the cause. Many times I would be released for UTI's that I knew I didn't have. More recently I decided to find home remedy and avoid the hospital. I managed for some time with a prescription of Hydrocodone. It wasn't until I became pregnant that I started to believe that stomach pain was just the past. Not once during and after my pregnancy did I experience pain. Those were the best two years I've had and wish I could reverse in time. But this happiness was only a tease, right about the time I decided to wean my baby from breastfeeding began the discomforts and crampy-nauseating pains. Not sure why but somehow the change triggered the misery of pain and stomach discomfort once again appearing in my life. The sharper, excruciating pains just reappeared as they were there yesterday. I felt in agony, the pain would linger and continue onto the next day. Finally convinced myself that it had to be serious and made an appointment with my primary Dr who coincidentally had an opening the next day. It was during this appointment when it all started...four weeks ago... I walked in and two hours later I'm admitted to the hospital after getting the results of a lower GI CAT scan (never done before) the same day: finding a mess of tissues, narrowing of the large intestine, fistulas, bowel obstruction and a large abscess that was apparently the main reason why they would not let me drive back home. I was given the combination of Cipro and Flagyl and a colonoscopy was ordered the next day. The surgeon paid me a visit to tell me that surgery was not an option in my case, assuring me that if Remicade was to work I could extend the life of my large intestine. My worries continue since there is so much to think about...the risks of treatment, the active and destructive disease I have living in me, limited options if the treatment is a fail. I've already had an issue the first time we tapered off the Prednisone, this is my second round. I can't concentrate and feeling out of my skin. I have a little boy who is now two...I fear of what's going to happen to me...I want to see him grow.
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