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Ugh, the waiting is a pain! Let us know how you get on.

Indeed, Dusty, you were one of the first people to spring to mind. :kiss: The time you take to look after us on here, as well as your IRL patients, does not go unnoticed or unappreciated xxx

I didn't know you could get cards, but then I live in the sticks. Only learned of it yesterday cos my friend, who's a nurse, posted something on Facebook.

Hi Caithanc. Sorry to hear about your diagnosis. Definitely a time of mixed emotions, yeah? I was the same. I'd been ill for 8 months when I got diagnosed, and I had a good cry when I found out, but was also relieved to get some answers and get on the way to being well. Are you being referred to...

Hi Andy. I had been on Pred for 6 months when I was admitted to hospital and the docs and pharmacist there were really surprised I hadn't been prescribed a 'protecter' and put me on Omeprazole. To be honest, I hadn't had any stomach issues on the Pred. Well, apart from the Crohn's ones!

Hi Khaley. My situation was as Dusty describes. I had an intestinal fistula. Eventually one GI referred me to hospital on the mainland for a resection, but when I got there the surgeon thought I should try Infiximab ( Remicade ) first. I was a lot better after three infusions, but the fistula...

Thank you for your dedication and all the differences you make xxx

Same here. I had open non-Crohn's related surgery in my mid twenties and bounced back really quickly. My recent surgery was laparoscopic, but it was a good 8 weeks before I felt fully fighting fit again. Maybe it's an age thing! Rest up and hope it's not too long before you are back to your old...

Hi Theresa It's good to hear that things have gone well with your surgery. That's quite unusual, your bowel waking up so quick. So the distension is not because you're backed up, then! They do pump you full of air during surgery in order to see the organs better, so it might be that some of that...

Hello there and welcome to the forum. I'm with Clash. When first diagnosed, I was put on Prednisolone and then Azathioprine. I had been on it for about three months and starting to feel a good bit better, but was admitted to hospital for tests for persistent issues with a fistula and abscess...

How frustrating for you :-( It can so stressful going through the tests, which are all pretty horrible and for many of us it took a while to get a confirmed diagnosis. It can be really difficult to see properly into the TI. Perhaps the Pred has knocked the inflammation on the head. Have you...

I wouldn't say I was super intelligent, but I was always in the top group in my school classes. I went on to get my degree in English and Drama then a Diploma in EFL. I'm studying through work to qualify as an AAT accounting technician, and have passed all my exams so far. The eternal student...

Welcome back, but I am sorry to hear you are feeling poorly again :-( I am also sorry to hear you are giving up your dancing. But I can see how doing such a physically taxing job would be almost impossible in full flare. I guess you are really going to miss it. I hope you get someone to properly...

Hello there. I had surgery for an intestinal fistula - mine was bowel to bladder. I'm not sure what symptoms you have with yours. I had a lot of pain from an abscess associated with the fistula and horrible bladder problems. I spent a year on a lot of meds but the fistula wouldn't stay healed. I...

Hey there. Just to add to all the good points the others have made, I still have issues with loose stools and a noisy gut, but it tends to be if I overdo the fatty and high sugar content foods, so having a look at your diet might help.

Hey there Benny and a big welcome to the forum. I'd second what Valleysangel says. My surgery was laproscopic and went smoothly, but I was quite surprised how long it took to feel back to some sort of normality. I had major non-Crohn's related surgery when I was in my twenties and got over it...

I have an IBD nurse on the mainland. I only found out about him when I was admitted to hospital in Inverness where he's based. He's the only one in the Highlands and Islands apparently! He's really good. He was the one who did my Infliximab infusions and, cos of the distance involved, he told...

Yes, it seems to be very common amongst IBD sufferers. I guess when things are inflamed and swollen, back pain could be caused by pressure. Or referred pain? I know some of mine was related to bladder issues caused by a fistula. It has almost totally gone since I had the surgery. Only resurfaces...

Hi there Ragdoll. I'm so sorry you are having a hard time of things at the moment :-( Have a look at the surgery stories on this link Many of us, including myself, have had the type of resection that you are having and shared there stories here. I think they will give you a good idea of what to...

Hi Ness. Good to see you here on the forum, but sorry it's because you are unwell. When I was flaring badly, I had really debilitating lower back pain too. I found the best way to alleviate it was with a hot water bottle. I'm guessing a heating pad might do the trick too.