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Crohn's Disease Forum

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  1. robbo87

    Swim wear

    What do blokes do as far as swimshorts is concerened? just wear them high? I'm going on my first proper holiday since surgery in a weeks and I have a waistband , but because I wear a 2 piece you can kinda see the flange sticking through.
  2. robbo87

    Sit, Stand or Kneel?

    I stand up, I may occasionally sit down but most of the time I'm happy standing, It can go a bit wrong though if you're not careful! especially during the night when I'm half asleep!
  3. robbo87

    17 year old newbie stoma-girl with questions!

    Mucous poo's are exaclty what they say on the tin lol, It happens less often in some people, for me probably every couple of days. Basically your colon still produces mucous which would normally be passed alongside the usual... but now there is nothing passing through the mucous still has to go...
  4. robbo87

    Feeling rubbish and silly!!

    It's not the nicest tasting thing in the world but it's drinkable and one cup full does the trick. there are a few different flavours, I've had the blackcurrant and natural one, imagine a cold beechams. Not all shops have it but there is also a "lite" version of lucozade sport, this is the one...
  5. robbo87

    Feeling rubbish and silly!!

    So sorry your feeling so crappy, but to an extent maybe it's a good thing that you've realised why and should hopefully now start feeling better soon? Lucozade is very dodgy stuff, well thats if we are talking about their glucose based fizzy drink anyway, particularly if you are losing liquids...
  6. robbo87

    Trying a 2 piece, need some advice

    Well I've officially moved over to a 2 piece, Not had a single leak since I started using this coloplast sensura and ive been getting 4 nights out of my bags and could probably get more if wanted to. why did I not get these sooner! got the maxi and midi bags, tend to just keep the maxi bags on...
  7. robbo87

    17 year old newbie stoma-girl with questions!

    Hi hannah :), recovery for me was a slowish process tbh, probably a good 2 months from coming home to my wounds healing and being a bit more confident. Like you I have to empty probably every 3 hours, it does change a bit depending on what and how much I've been eating, But you'll get into the...
  8. robbo87

    Abscess drains, so terrible!

    I had one in my back for about 2 weeks last year whilst I was in hospital. "supphrenic drainage" i think it was reffered to as. I had it inserted under a local aneasthetic though. They basically shoved a needle into my back and then put what i believe was a rubber tube/coil which was then...
  9. robbo87

    Tips on coping with crohns

    Sorry to read you are having such a tough time. It's never easy when things get to much but I always found coming on here to talk like you have done is always very helpful. Just being able to see that you are not alone and talk to people who have been there and "get it" really helped me. Thing's...
  10. robbo87

    Does anyone else get super tired after eating?

    This happens to me almost every afternoon after I eat my lunch, I'm fine after breakfast when eating on an empty stomach but after I eat my lunch , particularly if it's a large meal I have no choice but to go to bed for an hour or so for a nap. I don't know what really causes it or hot to stop...
  11. robbo87

    Mouth Ulcers

    I used to always get lots of mouth ulcers and they would be on of the first things to show before a bad flare up. usually once my flare was controlled the ulcers would go away
  12. robbo87

    Joint aches!

    I have had really bad joints in the past alongside having flare ups, one particular flare up made it impossible for me to move or even get up out of a chair without being in pain. Hope you are sorted soon
  13. robbo87

    Losing

    Sorry to hear you are having problems :( It's perfectly natural to feel scared and anxious but this will make things better for you! Having a colostomy certainly doesn't mean you have lost a battle. I'm sure your children and husband will adjust just as you will have to.
  14. robbo87

    Do you consume a lot of french fries, potato chips, and other fried potato products?

    I eat a bag of crisps every day near enough, i do occasionally eat chips but they dont digest to well and kind of come out my bag half digested. I love potato wedges but again these can cause problems usually because of the skin. I think fried food in general is just difficult
  15. robbo87

    Replacing anxieties?

    You've absolutely no need to feel shamed. You deserve to have a better life as much as the next person. Of course people end up with a bag having been down very different roads but that doesn't particularly mean anyone is any more deserving of an operation. Of course like others have said, which...
  16. robbo87

    Replacing anxieties?

    I guess it's all about confidence, I'm still at a stage where I worry before doing things incase I can't get to a toilet to empty and stuff. I nearly sold a ticket to a concert last weekend because this was the first gig I've been to in years let alone since my surgery and I was really worried...
  17. robbo87

    Dreams/nightmares

    I've had a couple like that in the past, one in particular I was going downhill and my car breaks were unresponsive... according to google it meant i was worried about not being in control or something, I also had a few dreams in the last year or so where i was back in school again and involving...
  18. robbo87

    Trying a 2 piece, need some advice

    Thanks for the link Kaz. I've been using me fix for the last 12 months which is ok for securing stuff a bit but is useless as far as water is concerned. just checked everything this morning and it looks ok. the area of the flange immediately around my stoma is a lot lighter looking as oppossed...
  19. robbo87

    Trying a 2 piece, need some advice

    ahh ill have a look then. Do you use pastes or anything btw? I've just taken my bag of and had a look and i can't tell if anything is getting underneath etc, cant feel any itching but im not sure, Guess ill have a better idea in the morning. if i make it that far. Is it weird that I'm getting...
  20. robbo87

    Trying a 2 piece, need some advice

    Just googled and found out that its called "opsite flexifx" , I can get this with fittleworths, they dont have tagaderm I don't think so I'll give that a try. God i wish I'd tried this sooner!!
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