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Infusion is weight based, so different for everyone. Mine took 1 1/2 hrs, I had no side effects. They watched for 30min after and then I went home. I'm in USA, not sure if they will do it different in UK. good luck. It did take 6 weeks for any improvements with me.

Never had this. Have you told your dr? You use some of the same abdominal muscles for both areas down there. I know my GI issue are worse when my period is going on. Could you have fistulas? I would let your doc know about this as soon as possible. Must be horrible pain.

It just gets so overwhelming.... when the humira was working, I was walking 6-8 miles on the weekends, swimming, doing normal people stuff. Now I'm afraid to leave my house. The Stelara is working, but the c-diff just never wants to leave. I work as a nurse so I know where I'm getting it, but I...

I am sorry you are having a bad time. If you go to the hospital you could get your treatment started sooner. If you wait till Monday you might get to see your own GI doc who knows you. Hard decision, I know. Have you tried calling your GI and talking to the doc on call?

Welcome, you have found a good place at this site. Hope your treatments go well. Sometimes it takes them a while to work, so don't give up if you don't see immediate results. Whoops!

I just honestly do not know how much longer I can take it! I see my GI regularly and agree and am following his plan, but this loosing my bowels business I just can't take!! Long story short, humira quit November, started Stelara, and this whole time C-diff 3 times. Right now on Vanco for 21...

Nurse 👩🏼⚕️& I love it! I work different areas in my hospital, ICU, ER & PACU! Pretty much all critical care. The pros - I see my GI on a regular daily basis so I get to ask random questions if I need too. I get my blood work done pretty easy, usually by a co- worker and I can drop it off at...

As a previous ER nurse I will say this. Do not lie to get back to a room faster. For example, if you say you have chest pain & you get to the room, it WILL be discovered that you do not. Everything else you say to the medical staff will be taken as a lie. It is the fastest way to get your chart...

Going into month 6, crohns flair and c-diff 3 times. I'm exhausted.

Have you looked at different diets like Specific Carbohydrate, GAPS, Paleo. There are some others out there. I want to say ther is one called the autoimmune diet. I have done the SCD diet before. You start out with a broth that you make for a few days, and then add foods slowly. This would give...

Fatigue is horrible. I nap, I try to eat right, but I have learned to really listen to my body. If I get up and 2 hrs later I'm tired. Back to bed it is ( if I'm not working) when I get home from work, I sleep if needed. It took me years to wrap my head around the fact I'm not lazy... my body is...

Welcome to the group. I am sorry you are having a hard time. No doubt about it, crohns is a very messed up disease. Crying has been a part of my life a lot lately too. What else can I do though but to keep moving forward. I am glad that your family is supportive, that is great as there many here...

Stick the enema bottle under your arm pit for 15 min before using so it isn't cold. Also make sure you squeeze the air out of the bottle before using. You may be having a reaction to the med, I would touch base with your Dr. just to let them know.

Gas can be pretty painful. Night time trips to the bathroom are very common for me. You can buy gas x, or some other over the counter gas relief to try. Also try to avoid foods that can cause gas during the day. For me it's dairy, or veggie like broccoli..I also try to finish eating for the day...

Thanks all. Turftec you are about 2 weeks behind me I think. I was exactly the same as you, got my Stelara 2 weeks ago and things have improved some. I also felt like I was a step away from loosing my mind. Just want the D to stop. Will try the suggestions on here.

I'm 2 weeks after my Stelara infusion & I know it can take some time to work. GI has given me lomital and told me to take it every 6 hrs as needed which has been round the clock. I still have slight blood, not bad. The D seems to be worse at night. I have been told to eat a high protein diet...

I'm in my second week post infusion. So far the horrible night fevers have stopped & I have seen a slight decrease in blood in my stools. I still have to take lamotil every 6 hrs or it's horrible. Just wondering when everyone seen some significant improvement? Been flaring since November. Thanks

I do this a lot too. It really frurstrates me & I have no one to blame but myself. I am currently in the worst flair I have ever had. Wating on the Starla infusion to start working. Yesterday I felt just a tad better so I ate two scrambled eggs instead of the usual one and I added cheese which I...

Getting ready for my first dose Friday. just curious as to what meds have failed for everyone? Mine are humira, methotrexate, remicade, Pentasa.

I'm glad your getting treatment, hope you don't get too bored in the hospital.. good luck