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Crohn's Disease Forum

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  1. teeny5

    How did you get into remission?

    I've been in remission for several years. Currently take Colazal, if I feel things are starting up I usually end up on a steroid to quickly stop it. I would say my disease has always been mild to moderate so I know many have more severe symptoms. I make sure to never miss my meds, colonoscopy...
  2. teeny5

    What happened to David and many of the old members?

    I got the email. I have been busy with work mostly. Doing well on Colazal still, have started taking Benefiber and ashwaganda daily. I currently have a colonoscopy every 2 years...lots of scaring, no active disease, polyps, divurticula, internal hemorrhoid. GERD has been under control but flares...
  3. teeny5

    What can I eat in crohn’s remission?

    My GI told me I could eat anything in remission, however keep in mind anything that irritates the digestive tract in general will be more irritating to mine. Of course a healthier diet is better for overall health...he said avoid spicy, greasy, and fried foods. He recommends fiber and probiotic...
  4. teeny5

    If I'm not in a flare, will the colonoscopy show anything?

    I haven’t been in a flare in a long time and my last colonoscopy still showed all the scaring where the disease was previously. My GI said that he could see where and how severe the disease was (he was not the GI who did the initial colonoscopy when I was flaring).
  5. teeny5

    Mesalamine~ New and something seems wrong

    I recommend a second opinion. My GI was not listening to me at first and I felt the meds were not working. I went to urgent care and saw an on call GI...he changed my meds that day. My GI wasn’t happy, but he has listened to me since.
  6. teeny5

    Preventive Care

    Mine have always been seen as maintenance as well. Could a Dr. recategorize them? I have had Drs do that in the past to get a med covered by insurance before...just never had to try with an IBD med. I had a Dr give me a prescription for an over the counter med as well, so that it would be...
  7. teeny5

    Can't stop BELCHING

    Sounds like reflux issues...Rolaids Advanced works well for me. Plus the usual recommendations for reflux - don't eat within 3 hrs of going to bed, elevated your head when sleeping, don't eat too fast, no foods that aggravate (spicy foods, carbonated beverages, alcohol, caffeine, acidic drinks...
  8. teeny5

    Raw vs. boiled vegetables?

    Cooking the vegetables does reduce some of the nutrients, but I have a hard time with raw veggies. I believe steaming them is better to not affect the nutrition as much and should make them more digestable.
  9. teeny5

    From Crohns to UC??

    My diagnosis has never been for sure stated as UC or Crohn's. I only have it in the large intestine, but it looks more like Crohn's. My diagnosis right now is indeterminate colitis. It's been that way for over 10 years. When I am flaring badly I have to go on a liquid mostly diet. I like...
  10. teeny5

    Arthritis???

    I have been having some joint issues lately. I stand or walk for most of my work shift and some days I am fine, other days I am left with a lot of pain. What hurts most is my hips, knees and heels. I am just shy of 40, so I feel like arthritis isn’t out of the question however I don’t have any...
  11. teeny5

    Why Don't GI Doctors Take The Role Of Diet Seriously?

    My GI had told me that diet does not cause or prevent Crohn's, however he does recommend a healthy diet now that I am in remission. While I was flaring I had to eat what I could tolerate, which wasn't much. I had to drink nutritional drinks just to get my weight up. He has given me...
  12. teeny5

    Crohns changed over last few months

    I have been through stages of diarrhea and constipation. My GI recommended a fiber supplement to help with constipation. I use the brand Benefiber and it does help without any cramping or gas. I believe dehydration can contribute to constipation as well.
  13. teeny5

    Telling your employer about crohns

    Those who I have worked with for a long time are more understanding because they saw me when I was extremely under weight and had to take a month off of work. Those people ask me how I am doing from time to time and get that I have a disease. Others that are newer that I have told because they...
  14. teeny5

    New blog post on (mis)diagnosis of diverticulosis

    I was recently diagnosed with diverticulosis with my last colonoscopy...my first thought was great another gut issue! From some of your earlier posts...I found it interesting that you had an issue as a child, but still had gone so many decades before being diagnosed. I remember going to...
  15. teeny5

    Adding Stawberries to Diet Found to Decrease Gut Inflammation

    Add them slowly...for some, like myself, too many may cause diarrhea.
  16. teeny5

    Second Scope Test Tomorrow

    So great to hear you found a GI that is listening to you and taking action! I agree, don’t want anything to be wrong, but would want to know so that it can be treated.
  17. teeny5

    Polyp found after clean colonoscopies

    I have had polyps, none were cancerous. My GI said they happened because of scarring in my colon.
  18. teeny5

    What were your symptoms at diagnosis?

    Pain in lower abdomen, lower right side and behind belly button. Literally felt like a sausage was behind my belly button! I couldn’t eat anything without it feeling like shards of glass were going through my body or I would throw it up. I also had a fast heart rate (125 beats a minute at...
  19. teeny5

    Striving to be “normal”

    Striving to be “normal” I have been in remission for several years, yet I don’t feel normal. I am nervous about and even avoid certain foods. I know that I should be able to eat anything I want, yet I still shy away from what I perceive as “problem foods.” I feel like a ticking time bomb. Is...
  20. teeny5

    Does orange juice cause any gut related problems for you?

    Sugar can also cause inflammation and fruit juices have a lot of sugar. The issue I get from orange juice is acid reflux.
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