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Hey, we're awake at the same time! Glad the stoma is making such a difference, I have a friend who also doesn't want it reconnected as she's doing so well, let's hope it's as successful for you!

Not really seeing much improvement, last week was particularly bad. It seems to me that the Humira was doing something, just not enough. My next infusion is in 2 weeks, the last of the loading doses. I really hope that will be the one to make a difference! Good to hear you're up and about! Is...

Good to hear some good news, hope it continues!

I was in a similar situation as you are a few years ago; years of suffering obstructions and a few ER visits. The last one turned into a 5 day hospital stay with loads of hydrocortisone and and ng tube and I was lucky that things started moving again rather than have emergency surgery. I was...

I really feel for all you Americans and your health system every time I read threads like this! I've lived in several countries and wouldn't even consider living in one without a public health system. I've just switched from Humira to Remicade and it costs me nothing, nada, zip, zilch. When I...

Have a look at the FODMAP diet/theory. I think it was discovered by the Monash university in Melbourne, so not some random unscientific internet thing. The F in Fodmap stands for fructose so yes you're not alone, a sensitivity/intolorance to some kinds of sugars is quite normal. I've tried the...

I've been away a few days and missed that you've had your op and now a second one! Oh dear, I sure hope that was it for the next wee while, fingers crossed for you! Hope you're on the up from here and home soon:highfive:

I too had keyhole surgery, worth waiting for! Good luck with it all. Did you ever get your second remi infusion? I finally got mine yesterday, a week late, but better late than never!

Thanks for that explanation, that makes sense. I have to admit that whenever I have even the slightest inkling of a stricture I stop taking anything that may slow things down, even psyllium. The zinc was prescribed by my dermatologist to counter hairloss- female pattern baldness. That started...

Hi Carol, I would certainly take Imodium for the trip! Sorry to go off topic a bit but do you know why your GI doesn't like you to take it? I take it when I need it otherwise I just wouldn't be mobile much! I swap it around with Codeine because I prefer the effect and I find it more reliable...

Hey Tony, sorry to hear that! But yes if it helps your quality of life it's worth it. I had surgery 2 years ago now and what a relief it was to be able to eat without fear of strictures. Hope it all goes well!

I guess I'm really lucky in that I don't have that much pain. I did when I was initially diagnosed, the cramps were killing but now it's really just D and fatigue with the occasional cramp. Oh and some pesky fissures. Just heard today that I'll also be having an iron infusion when I go for the...

ps, meant to say lovely view, I've been to Cork years ago and liked it a lot :)

Hope the doubling of the dose works for you! My second dose has been delayed because of a junior doctor strike so I don't get it until next Tuesday! Which is a bit of a pain as I'll be working on Wednesday so I hope I'll get some sleep this time. I'm otherwise fine, getting by on immodium and/or...

Good to hear you're doing better! I don't have any throat issues or heard about them, may not be related? I was good for the first few days but back to blood in stool and general tiredness etc. In hindsight I think the hydrocortisone made me feel better. Not the Remicade, yet. Hopefully the...

Thanks! I was feeling very optimistic for the first couple of days and even had a little salad! But back to taking Imodium or codeine now to "stem the flow". Almost can't wait for the second dose, hoping that will have a more lasting effect. Hope the dexa scan doesn't show things getting...

Thanks, I'll look into Cellcept, never heard of it but who knows it might be available here too.

I felt immediate relief with Humira but only during the loading doses so say the first month or so. When the dosage was increased to once a week that helped a little too but just not enough. I'm really hoping Remicade will be different. I'm fairly good today so hoping it's the remicade kicking...

I've been prescribed 50mg daily by my dermatologist for hair loss. It makes me nauseous if I don't have it directly after or with a meal and sometimes forget to take it. If I forget too often I really start to notice it, dry and itchy skin, sensitivity to some metal jewelry and last but not...

I've recently discovered Ultraproct ointment, so far the only thing that works! Also applying something like sudacream before you go helps a little but not nearly as much as the ultraproct cream. In case it's called something else where you are, it contains fluorcortolone pivalate...