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And no I avtually purchase my bone broth from "realbonebroth.com" it's legit and grass fed and cooked the right way and shipped frozen. I make my kefir and I take all the supplements (cod liver oil, biokult.)

@Cit I see that you had fistulas. Were they pretty bad? And they closed just on GAPS? How long were you on it before they started closing? I have been on GAPS for like five months. I recently started cheating a little because I had seen no difference and had to go on Humira and I'm just so...

Thanks! Will look at that site

Yeah unfortunately I already built antibodies to remicade :(

I have had some bad fistulas since March of last year. Very little other symptoms but I have four setons that drain and cause pain all the time. I'm on the GAPS diet, Ldn, and Humira and nothing is healing them. Has anyone healed fistulas with medical marijuana? If so, how? In what form? How...

I have been dealing with some pretty bad fistulas since March of last year. I have four setons that drain and hurt all the time, but very little else in terms of active symptoms. I'm on the GAPS diet, Humira, and Ldn. Nothing is working. I ordered some absorb plus. Has anyone had fistulas...

I am dealing with some pretty bad fistulas right now. I was on SCD for months and have gone to a slightly modified version more like GAPS (I eat cocoa powder and kefir.) Anyway, don't really notice any difference but I'm sticking to it and other natural healing methods. In the meantime, my...

Thanks!!

@paul11 yeah I'm starting to think that's where I will end up. Just kind of hoping for a miracle sometime soon instead!

So I've got quite the fistula saga. As of right now I've got four setons, on a super strict diet and supplements (remicade failed and trying to stay away from humira,) and for the most part on most days I'm not in too much pain, other than just uncomfortable, and I have minimal drainage. But...

Unfortunately, when I got my setons in April I had immense and ridiculous pain and drainage that was uncontrollable. It hurt almost all the time as if the abscess was still full and was excruciating to use the bathroom. I went on Remicade and it slowly got better, then remicade failed, now I'm...

Just wanted to let everyone know, I found a storebought yogurt brand and confirmed that they ferment their yogurt for over 24 hours. It's called "Bulgarian yogurt" by wild mountain foods and I know they sell it at Whole Foods. Huge game changer for me since I don't have much time for making the...

@LilB13- so sorry you're going through this too!! My first few weeks after surgery were absolute hell. So much pain and drainage. Couldn't move- it even hurt to turn to one side in bed. I will say that it gets better- and worse- and better. But I do think there is a light at the end. I ended up...

So after a long journey of mostly paleo I have finally been fully committed to SCD (specifically GAPS protocol) 100%. My digestive symptoms have been completely controlled before I even went paleo (they went away with IV steroids and antibiotics) but have been dealing with a particularly painful...

I have two severe and painful perianal fistulas. The rest of my disease is under control. I'm on the GAPS diet and remicade but the fistulas are not closing. The doctors are suggesting adding imuran to the remicade but I know that comes with lots if risk. My GI doesn't prescribe LDN as far as I...

Thank you all for your empathy and thoughts! Yes, I'm actually on heavy duty probiotics, BioKult (the GAPS ones.) I've tried tons of others including garden of life and natren. Hoping these do something. I also soak in Epsom salts pretty much every day. I know they are probably going to suggest...

I had a terrible crohns flare in March of this year. Ended up in the hospital with a huge perianal abscess and fistulas. I had seton placement surgery along with antibiotics and steroids. A few weeks later they started me on remicade. Initially, even after the seton surgery, I had terrible pain...

Well the area had always been warm the entire time since I had the surgery. The doctor just says the abscess cavities are still really inflamed but that it is okay because they are draining properly. And I'm on the flagyl for infection. I don't have a fever- just a lot more pain all of a sudden...

I had a flare starting in February of my large intestine-located crohns. High dose prednisone was doing nothing. By April I had extreme rectal pain along with my typical symptoms and it had turned out I had an egg sized abscess and a fistula. They performed a seton surgery. I have two setons...

Good to know! I called my CRS's office and they said no MRI- they will just take it out when it stops draining. I may have to ask my Gi about the MRI!